Group items tagged

There are two rod sizes routinely used for the correction of juvenile and adolescent idiopathic scoliosis, 5.5mm and 6.35mm, typically stainless steel. Currently there is no scientific evidence supporting the superiority of one size rod relative to the other. This study will evaluate the amount of radiographic correction obtained using the 5.5mm versus the 6.35mm spinal instrumentation rods.

The NACDD serves as the national voice of State and Territorial Councils on Developmental disability. Supports councils in implementing the Developmental Disabilities Assistance and Bill of Rights Act and promoting the interests and rights of people with developmental disabilities and their families

The Clinical and Translational Science Center (CTSC) addresses the necessity of an integrated, comprehensive research support system that includes education, training and mentoring for clinical research investigators, coordinators and staff. Our mission is to support, advance, and promote clinical and translational research enterprises at WCMC

The Association of University Centers on Disabilities (AUCD) is a membership organization that supports and promotes a national network of university-based interdisciplinary programs. Network members consist of: 67 University Centers for Excellence in Developmental Disabilities (UCEDD), funded by the Administration on Developmental Disabilities (ADD), 39 Leadership Education in Neurodevelopmental Disabilities (LEND) Programs funded by the Maternal and Child Health Bureau (MCHB), 19 Intellectual and Developmental Disability Research Centers (IDDRC), most of which are funded by the Eunice Kennedy Shriver National Institute for Child Health and Development (NICHD). These programs serve and are located in every U.S. state and territory and are all part of universities or medical centers. They serve as a bridge between the university and the community, bringing together the resources of both to achieve meaningful change.

The Hydrocephalus Association provides support, education and advocacy for people whose lives have been touched by hydrocephalus and the professionals who work with them. We strive to ensure that families are empowered with educational materials, informed about the latest research, and have access to quality health care.

LDA Learning Disabilities Association of America - LDA has provided support to people with learning disabilities, their parents, teachers and other professionals. At the national, state and local levels, LDA provides cutting edge information on learning disabilities, practical solutions, and a comprehensive network of resources. These services make the Learning Disabilities Association of America the leading resource for information on learning disabilities

Title II - National Center for Special Education Research at idea.eg.gov - Mission.--The mission of the Special Education Research Center is-- (1) to sponsor research to expand knowledge and understanding of the needs of infants, toddlers, and children with disabilities in order to improve the developmental, educational, and transitional results of such individuals; (2) to sponsor research to improve services provided under, and support the implementation of, the Individuals with Disabilities Education Act (20 U.S.C. 1400 et seq.); and (3) to evaluate the implementation and effectiveness of the Individuals with Disabilities Education Act in coordination with the National Center for Education Evaluation and Regional Assistance. (c) Applicability of Education Sciences Reform Act of 2002.--Parts A and F, and the standards for peer review of applications and for the conduct and evaluation of research under sections 133(a) and 134, respectively, shall apply to the Secretary, the Director, and the Commissioner in carrying out this part.

Apraxia-KIDS - The Childhood Apraxia of Speech Association of North America (CASANA) - The mission of CASANA is to strengthen the support systems in the lives of children with apraxia, so that each child has their best opportunity to develop speech

Children's Hemiplegia & stroke Association - The first non-profit organization in North America to offer information and support to families of infants, children, and young adults who have Hemiplegia or Hemiplegic Cerebral Palsy.

National Institute of Arthritis and Musculoskeletal and Skin Disease NIAMS - The mission of the National Institute of Arthritis and Musculoskeletal and Skin Diseases is to support research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases; the training of basic and clinical scientists to carry out this research; and the dissemination of information on research progress in these diseases.

The objectives of the ABEA are: To educate physicians regarding optimal evaluation and management of upper aerodigestive tract disorders. To present, at the annual meeting of the ABEA held in conjunction with the Combined Otolaryngological Spring Meeting (COSM), research findings of medical interest and importance to the ABEA's members. To advocate and support endoscopic training in residency and fellowship programs. To encourage and participate in basic and clinical research and continuing education programs all in concert with domestic, foreign and international colleagues and medical and surgical specialty organizations who share these objectives and concerns for the art and science of Broncho-Esophagology.

Parenting tips for Special Needs at Early Intervention Support.com - This website is a place for families who are facing challenges pertaining to their child's development and growth. It is a place to find answers and practical suggestions.

The National Family Caregivers Association educates, supports, empowers and speaks up for the more than 65 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age. NFCA reaches across the boundaries of diagnoses, relationships and life stages to help transform family caregivers' lives by removing barriers to health and well being.

Study assessing the comparison of impact on mood, health, and daily living experiences of primary caregivers of walking and non-walking children with cerebral palsy and provided community services support.

The Association of University Centers on Disabilities (AUCD) is a membership organization that supports and promotes a national network of university-based interdisciplinary programs. Network members consist of: 67 University Centers for Excellence in Developmental Disabilities (UCEDD), funded by the Administration on Developmental Disabilities (ADD) 39 Leadership Education in Neurodevelopmental Disabilities (LEND) Programs funded by the Maternal and Child Health Bureau (MCHB) 19 Intellectual and Developmental Disability Research Centers (IDDRC), most of which are funded by the Eunice Kennedy Shriver National Institute for Child Health and Development (NICHD)

CODI -Directories - has the membership list of the President's Committee on Employment of People with Disabilities, two RCEP II directories (CAPs and ILCs) and a national list of support organizations compiled by the IBM Special Needs Information Referral Center.

The Administration for Children and Families (ACF), within the Department of Health and Human Services (HHS) is responsible for federal programs that promote the economic and social well-being of families, children, individuals, and communities. ACF programs aim to achieve the following: *families and individuals empowered to increase their own economic independence and productivity; *strong, healthy, supportive communities that have a positive impact on the quality of life and the development of children; *partnerships with individuals, front-line service providers, communities, American Indian tribes, Native communities, states, and Congress that enable solutions which transcend traditional agency boundaries; *services planned, reformed, and integrated to improve needed access;*and a strong commitment to working with people with developmental disabilities, refugees, and migrants to address their needs, strengths, and abilities.

"Welcome to the Long-Term Care Planning tool. The primary goal of this tool is to help you understand:What long-term care services are available, How much you can expect to pay for long-term care, and What financing options are available to support your long-term care costs. The results of the Long-Term Care Planning tool are general in nature and not intended to replace comprehensive financial and other long-term personal planning. This tool will ask between twelve and twenty questions and will then provide you with the long-term care results you need by comparing your answers to those of individuals with similar profiles."

Global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support.

Disease organization representing children and families who are affected by a pediatric neurotransmitter disease. Helps children and families who are affected by PND's, support the identification of new PND's, find better treatments and ultimately a cure for those diseases that are already known. The PND Association is a non-profit, voluntary organization