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Membership organization that supports and promotes a national network of university-based interdisciplinary programs. Network members consist of: University Centers for Excellence in Developmental Disabilities (UCEDD), funded by the Administration on Developmental Disabilities (ADD) 39 Leadership Education in Neurodevelopmental Disabilities (LEND) Programs funded by the Maternal and Child Health Bureau (MCHB) Intellectual and Developmental Disability Research Centers (IDDRC), most of which are funded by the Eunice Kennedy Shriver National Institute for Child Health and Development (NICHD) LEND Programs are interdisciplinary leadership training programs federally funded through HRSA's Maternal Child Health Bureau.

The Association of University Centers on Disabilities (AUCD) is a membership organization that supports and promotes a national network of university-based interdisciplinary programs. Network members consist of: 67 University Centers for Excellence in Developmental Disabilities (UCEDD), funded by the Administration on Developmental Disabilities (ADD), 39 Leadership Education in Neurodevelopmental Disabilities (LEND) Programs funded by the Maternal and Child Health Bureau (MCHB), 19 Intellectual and Developmental Disability Research Centers (IDDRC), most of which are funded by the Eunice Kennedy Shriver National Institute for Child Health and Development (NICHD). These programs serve and are located in every U.S. state and territory and are all part of universities or medical centers. They serve as a bridge between the university and the community, bringing together the resources of both to achieve meaningful change.

The Association of University Centers on Disabilities (AUCD) is a membership organization that supports and promotes a national network of university-based interdisciplinary programs. Network members consist of: 67 University Centers for Excellence in Developmental Disabilities (UCEDD), funded by the Administration on Developmental Disabilities (ADD) 39 Leadership Education in Neurodevelopmental Disabilities (LEND) Programs funded by the Maternal and Child Health Bureau (MCHB) 19 Intellectual and Developmental Disability Research Centers (IDDRC), most of which are funded by the Eunice Kennedy Shriver National Institute for Child Health and Development (NICHD)

PubMed Abstract of study by Pediatric Clinic, Mersin University School of Medicine Research and Administration Hospital, Turkey - Difficulties experienced by families with disabled children

Provide support, current information, and understanding to those affected by the Arnold Chiari malformation and syringomyelia. Staffed by dedicated volunteers, the World Arnold Chiari Malformation Association (WACMA) is committed to providing heartfelt support, current information, and understanding to those affected by Arnold Chiari Malformations, Syringomyelia, and related conditions.site features our member recommended doctors listing, a variety of helpful articles, illustrations and general information about Chiari and related conditions, tips on dealing with symptoms, the largest database of archived information of any Chiari support group in the world, and more

The Enable Newsletter is prepared by the United Nations Secretariat for the Convention on the Rights of Persons with Disabilities (SCRPD) hosted by the United Nations Department of Economic and Social Affairs (DESA). Input has been received from by UN offices, agencies, funds and programmes, as well as from civil society. It is also available on-line at: http://www.un.org/disabilities.

The Metropolitan Atlanta Developmental Disabilities Study (MADDS) was the first U.S., population-based epidemiologic study of the prevalence of intellectual disabilities, cerebral palsy, hearing loss, vision impairment, and epilepsy in school-aged children. National Center on Birth Defects and Developmental Disabilities (NCBDDD) staff have written scientific papers using information from MADDS. These papers look at such topics as how common autism spectrum disorders are and what causes hearing loss in children. You can see a list of these papers (starting in 1990) by using the keyword search on the NCBDDD publications Web page. Choose "MADDS (Metropolitan Atlanta Developmental Disabilities Study)" in the keyword box on the search page. You can choose whether you want the list to be sorted by author or by date

For About and By Caregivers. Caregiver Media Group is a leading provider of information, support and guidance for family and professional caregivers. Founded in 1995, we produce Today's Caregiver magazine, the first national magazine dedicated to caregivers, the "Fearless Caregiver Conferences", and our web site, caregiver.com which includes topic specific newsletters, online discussion lists, back issue articles of Today's Caregiver magazine, chat rooms and an online store. Caregiver Media Group and all of it's products are developed for caregivers, about caregivers and by caregivers

MIUSA works in four main areas to provide programs and services including:National Clearinghouse on Disability & Exchange (NCDE) International Development & Disability MIUSA International Exchange Programs Women, Disability and DevelopmentSince 1995. Serves as the National Clearinghouse on Disability and Exchange (NCDE), a project sponsored by the Bureau of Educational and Cultural Affairs of the United States Department of State and managed by MIUSA to: educate people with disabilities and related organizations about international exchange opportunities; increase the participation of people with disabilities in the full range of international volunteer, study, work and research programs; advise international exchange organizations about the Americans with Disabilities Act

The Pittsburgh NMR Center, jointly sponsored by Carnegie Mellon University and the University of Pittsburgh is funded as a Biomedical Technology Research Center by the National Institute of Biomedical Imaging and Bioengineering and the National Institutes of Health

Mayo Clinic is the first and largest integrated, not-for-profit group practice in the world. Doctors from every medical specialty work together to care for patients, joined by common systems and a philosophy of "the needs of the patient come first." Mayo Clinic is governed by a 33-member Board of Trustees.

Completed study. In this feasibility study, hyperoxemia, as proximated by transcutaneous hemoglobin saturation with oxygen (Sp02), at the time of birth will cause sustained pulmonary oxidative stress as demonstrated by elevation of ulmonary protein carbonyl. Furthermore, this oxidative stress will be directly proportional to the imposed oxygen-burden during resuscitation at the time of birth. This study will give us information regarding the magnitude of protein carbonyl elevation in the preterm infant. With these results we will be able to 1. establish the technique for the running or protein carbonyl assays and 2. calculate an appropriate sample size for a future randomized control trial.

PubMed Abstract - Early surfactant administration with brief ventilation vs. selective surfctant and continued mechanical ventilation for preterm infants with or at risk for respiratory distress syndrome. Purpose of the purpose of this review was to compare outcomes between two strategies of surfactant administration in infants with RDS; prophylactic or early surfactant administration followed by prompt extubation, compared with later, selective use of surfactant followed by continued mechanical ventilation.

Boston University - Neuromuscular Research Center - established in October 1984. Its mission is to increase our understanding of human motor control and improve the quality of life for the neuromuscularly impaired. It pursues these goals by performing basic and applied research, and by developing new techniques and technology in electromyography and biomechanics. The NMRC has active collaborations with various hospitals and clinics in the Boston area as well as research groups in seven countries throughout the world.

Disease organization representing children and families who are affected by a pediatric neurotransmitter disease. Helps children and families who are affected by PND's, support the identification of new PND's, find better treatments and ultimately a cure for those diseases that are already known. The PND Association is a non-profit, voluntary organization

Website provides an overview of patient services, specific information on our patented Pump It Up! TM Socket design, helpful links and a forum for amputees to exchange information.The forum has provided a wealth of information to amputees around the world and is free of charge to registered users. The forum, hosted by Amputee Treatment Center since 1997, is monitored daily by many dedicated volunteers from around the world."

Promote and provides equal access to communication and learning for students who are blind, visually impaired, deaf, hard of hearing, or deaf-blind. Provides training resources for new and experienced captioning vendors-the Captioning Key for Educational Media-and description vendors-the Description Key for Educational Media. The DCMP is an idea that works thanks to funding by the U.S. Department of Education and administration by the National Association of the Deaf.

Increases access to assistive technology in North Dakota by engaging in activities that raise awareness, disseminate information, provide training and dssessments, work with policy makers, loan equipment for trial-use, and demonstrate assistive technology (AT) devices to individuals of all ages with disabilities and those experiencing the effects of aging throughout the state. IPAT increases AT acquisition by making available a used equipment bulletin board and an alternative financial loan program specific to the purchase of AT devices and services. Delivers servics to people with disabiilities can get the assistive technology they need for work, school and home.

New web site featuring articles written by award winning columnist John Williams. Mr. Williams has been writing about disability issues since 1978 and coined the phrase "Assistive Technology". Also featured are articles written by guest columnists and introductions to new technologies that provide readers with additional insight into the field of Assistive Technology."

Charcot-Marie-Tooth, or CMT, is the most commonly inherited neurological disorder and is found world-wide in all races and ethnic groups. Discovered in 1886 by three physicians, Jean-Martin-Charcot, Pierre Marie, and Howard Henry Tooth, CMT affects an estimated 2.6 million people. The CMTA is a 501(C)(3)nonprofit organization founded in 1983 whose goals are patient support, public education, promotion of research and ultimately the treatment and cure of CMT. This international group of men and women are noted CMT experts in neurology, genetics, orthopedic surgery, physiatry, physical therapy and podiatry.