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CDC Center for Disease Control and Prevention - About Cerebral Palsy

The Cerebral Palsy Research Registry is a multi-institutional collaborative effort whose primary mission is to improve our understanding of cerebral palsy. We believe that by working together, families and researchers can make a difference in the lives of people affected by cerebral palsy.

2008 Pub Med Abstract assessing Stress in parents of children with cerebral palsy: what sources of stress are we talking about? Study to explore the relation between aspects of parental distress in the parenting role and the child's limitations in functional skills and the child's behavioural difficulties, in parents of children with CP.

PubMed Abstract: Study - Although the frequent occurrence of Scoliosis in patients who have Spastic Cerebral Palsy is well known and surgical treatment has often been recommended for these patients, little is known about the natural history of scoliosis in this population. This study objection was to clarify the natural history of scoliosis from childhood through to adulthood and provide objective data on proper surgical indications for such patients.

Sports and Recreation for All Seasons. Adaptive Adventures has something for everyone. Offers progressive programs for children, teens, adults, as well as service members (active duty and veteran) who have been severely injured in Iraq and Afghanistan or other conflicts. Programs cover a wide-range of physical disabilities including people with spinal cord injuries, amputations, Cerebral Palsy, traumatic brain injuries (TBI), spina bifida, and visual impairment.

PubMed Abstract of investigation to assess the effect of Selective Dorsal Rhizotomy in the treatment of children with Cerebral Palsy

Custom-builds mobility devices for individuals with disabilities such as Cerebral Palsy, Spina Bifida, Muscular Dystrophy, Angelman Syndrome, Rett Syndrome, and visually impaired. Freedom Concepts Inc. (FCI) custom designed tricycles, walkers and chairs provide mobility and therapeutic benefits for thousands of special needs individuals throughout Canada and the U.S.

National Institute of Arthritis and Musculoskeletal and Skin Diseases - Questions and Answers about Scoliosis in Children and Adolescents - This booklet defines scoliosis and provides information about how it is diagnosed and treated in children and adolescents. You may be interested in contacting one or more of the organizations listed on the site for more information.

Stanford trial and study to learn about upper extremity hypertonia (stiffness) in children and young adults with cerebral palsy. Specifically, they want to learn about ways to measure the stiffness in the joints of hypertonic arms. The information the research team will collect includes any physical exams or computer generated data about your arm movements.

NIH Clinical Study - This multi-center collaborative study will establish a database of information about stroke in infants and children

The American Occupational Therapy Association AOTA - What Parents Need to KNow about School Based Occupational Therapy

Study being conducted to learn about upper extremity hypertonia (stiffness) in children and young adults with cerebral palsy. Specifically, they want to learn about ways to measure the stiffness in the joints of hypertonic arms.

"The purpose of this study is to collect detailed information about the characteristics and genetics of a large number of individuals with epilepsy"

"This multi-center collaborative study will establish a database of information about stroke in infants and children."