PHE - Resources

Dennis: "Simply Brilliant work". Potential SME

"Years after her son's tragic death, a bereaved mother is on an impassioned mission to un-silence grief in our modern culture that has buried and forgotten the essential art of grieving."

Camille Nebeker: And another that my colleague, Eleanor wrote entitled the Rise of the New Bio-Citizen speaks to the need for governance and safety considerations when doing DIY research.

"I started Crohnology because after living for Crohn's for 14 years, I realized that the data that I was gathering outside the doctor's office was just as important as, if not more than, what I was learning inside. Since my diagnosis at age 12, I have had a dozen major flare ups of the disease. I found that, for me, diets and supplements, stress reduction and mental relaxation, and exercise help. I heard many people on the internet claim that they had found the magic bullet, but I thought it was irresponsible to be so confident. Just because these things worked for me, I wasn't about to claim that they work for everybody. Instead, I decided to build a patient-powered research network that would allow patients everywhere to be contributing their own treatment experimentation in a way that could be aggregated for us to learn what actually works for whom. - Sean Ahrens"

Camille Nebeker: I'm writing a paper on mHealth and research ethics across regulated and unregulated sectors. Came across an article that you may appreciate - it's basically saying that people need to be trained when conducting scientific research. It was aimed at clinicians - not citizen scientists:

Spend Money on AI or Just Give Doctors More Time? Eric J. Topol, MD; Abraham Verghese, MD; Danielle Ofri, MD, PhD DISCLOSURES September 04, 2019

Let's remember to feel happy!

Recommended by Kabir

"Tick-borne diseases, and Lyme disease in particular, cause complex, multi-system health issues with devastating consequences. This event focuses on the importance of using a broad and comprehensive diagnostic and treatment approach. We will explore important avenues for testing and treatment including a discussion on the role that antibiotics play in supporting the immune system: " Sharon Wampler - Keynoting

"Can Lifestyle Changes Reverse Alzheimer's Disease? Dr. Dean Ornish, Dr. Bruce Miller, and Dr. Joel Kramer are directing the first randomized controlled trial to determine if the progression of early stage Alzheimer's disease may be reversed by a comprehensive lifestyle medicine program, without drugs, devices, or surgery. This lifestyle medicine program includes a whole foods low-fat, low-sugar plant-based diet;moderate exercise; stress management techniques including meditation; and psychosocial support." Tied into Rob Knight's lab

"Building on the successes of our events in Philadelphia and Jersey City, we are excited to be back where it all began - San Diego.  Please join us for the most thought-provoking Precision Medicine event in the marketplace. Our speakers cover the panoply of leaders in the healthcare continuum, these include clinicians, industry experts, academics, regulators, payers, genetic counselors, bioinformaticians, and many more who are shaping the way Precision Medicine is implemented into healthcare systems on a global scale. Join us for panel discussions, keynotes, "Meet the Expert", roundtables, networking, exhibits, and opening reception to hear from thought leaders who are making the promise of Precision Medicine a reality. "

"The Extreme Science and Engineering Discovery Environment (XSEDE) is a single virtual system that scientists can use to interactively share computing resources, data and expertise. People around the world use these resources and services - things like supercomputers, collections of data and new tools - to improve our planet."

"We provide NSF-funded, online and in-person resources and services. Our goal is to facilitate-at little or no cost-the sharing of experiences, technologies, and practices of those working with science gateways."

"Bruce H. Lipton, Ph.D. Uploaded on Aug 20, 2019 SUBSCRIBE 252K www.brucelipton.com"suggested by Vicki Newman

"Biohacking - also known as DIY biology - is an extremely broad and amorphous term that can cover a huge range of activities, from performing science experiments on yeast or other organisms to tracking your own sleep and diet to changing your own biology by pumping a younger person's blood into your veins in the hope that it'll fight aging. "

"LIBERATING THE COLLECTIVE POTENTIAL Geoff Fitch, Tamara Androsoff, and guests - August, 2019" How learning to open to emergence is an act not of will, but of willingness, and how relearning how to play is an essential to allowing something new to emerge among us. Abigail Lynam commenting on the relevance of this work to these times, given the recent mass shootings in the US: "what if the very thing that I yearn for the most is exactly what we all need to get through these times?"

"Enabled by a generous gift from South Dakota businessman and philanthropist T. Denny Sanford, the Institute for Empathy and Compassion at UC San Diego will explore the neurobiology of compassion, transform medical education and address the epidemic of physician burnou"