PHE - Resources

Recommended by DeAunne Denmark MD PhD: Serious Illness Digital Ecosystem (SIDE) is the intentional aggregation of disparate digital and mobile health technologies into a single system that connects all of the actors involved in serious illness patient care. The 5 pillars of a SIDE are: Identification, Education, Engagement, Service Delivery, and Remote Monitoring. To me, this is just a preliminary and pragmatic first step(s). It also misses or misrepresents large care gaps, e.g. framing as the need for education/engagement of patients vs directing to physicians/providers. That said, I think there are still some useful constructs for us here for digital infrastructure.

"Discussion This study found that in patients who had recovered from COVID-19, 87.4% reported persistence of at least 1 symptom, particularly fatigue and dyspnea. Limitations of the study include the lack of information on symptom history before acute COVID-19 illness and the lack of details on symptom severity. Furthermore, this is a single-center study with a relatively small number of patients and without a control group of patients discharged for other reasons. Patients with community-acquired pneumonia can also have persistent symptoms, suggesting that these findings may not be exclusive to COVID-19.6 Clinicians and researchers have focused on the acute phase of COVID-19, but continued monitoring after discharge for long-lasting effects is needed."

Recommended by DeAunne Denmark MD PhD: " How did it come to this? A virus a thousand times smaller than a dust mote has humbled and humiliated the planet's most powerful nation. America has failed to protect its people, leaving them with illness and financial ruin. It has lost its status as a global leader. It has careened between inaction and ineptitude. The breadth and magnitude of its errors are difficult, in the moment, to truly fathom.

Recommended by DeAunne Denmark MD Phd: "...the immune system is very complicated. Arguably the most complex part of the human body outside the brain, it's an absurdly intricate network of cells and molecules that protect us from dangerous viruses and other microbes. These components summon, amplify, rile, calm, and transform one another: Picture a thousand Rube Goldberg machines, some of which are aggressively smashing things to pieces. Now imagine that their components are labeled with what looks like a string of highly secure passwords: CD8+, IL-1β, IFN-γ. Immunology confuses even biology professors who aren't immunologists"

Recommended by Sharon Wampler: MD PhD by "By June, clinicians were swapping journal papers, news stories, and tweets describing more than three dozen ways that COVID-19, the disease the coronavirus causes, appears to manifest itself. Now researchers at UC San Francisco and around the world have begun taking a closer look at this dizzying array of symptoms to get at the disease's root causes. They are learning from people inside the hospital and out; people on the brink of death and only mildly sick; people newly exposed and recovered; people young and old, Black, brown, and white. And they are beginning to piece together the story of a virus unlike any known before."

"Welcome to "COVID-19: The CIDRAP Viewpoint." Our intent with the Viewpoint series is to add key information regarding the pandemic, address issues that haven't garnered the attention they deserve, and reflect the unique expertise among the CIDRAP team and our expert consultants. In this periodic series of reports we will address timely issues with straight talk and clarity. And the steps we recommend will be based on our current reality and the best available data. Our goal is to help planners envision some of the situations that might present themselves later this year or next year so that they can take key steps now, while there's still time. Upcoming reports will address supply chains, epidemiologic issues, key areas for research, and other pressing topics."

"American Association for Clinical Chemistry (AACC) President Dr. Carmen Wiley gives an overview of PCR testing, which is the most common type of test for COVID-19 and the one that patients are currently most likely to encounter."

"John Barry, author of the 2004 book, The Great Influenza, draws parallels between today's pandemic and the flu of 1918. In both cases, he says, "the outbreak was trivialized for a long time.""

During a recent visit with Kabir, he suggested I visit this site. He knows the authors and feels they are reliable investigators. I've spent a bit of time browsing. Interesting.

"You've probably heard a lot about coronavirus testing recently. If you think you have coronavirus disease 2019 (COVID-19) and need a test, contact your health care provider, local pharmacy, or local health departmentExternal Link Disclaimer immediately. The FDA has been working around the clock to increase the availability of critical medical products, including tests for the coronavirus, to fight the COVID-19 pandemic. Learn more about the different types of tests and the steps involved."

The video on this page seems to be solid information for raising health information literacy. What does the group think?

This podcasts leads with stories of heathcare workers, especially those of color. There is a writing/journaling thread here as well.

"Viewed in isolation or presented without context, coronavirus numbers don't always give an accurate picture of how the pandemic is being handled. Here, ProPublica journalists Caroline Chen and Ash Ngu offer insight on how to navigate the figures. by Caroline Chen, graphics by Ash Ngu July 21, 10:57 a.m. EDT"

"91-DIVOC is home to many data-forward, high-quality, interactive, and informative visualizations made during the global pandemic created by Prof. Wade Fagen-Ulmschneider. I hope you'll spend some time and nerd out on data with me! :)"

Just a note to the data nerds in our group. This is the system I am using as I set up our Instructional Design Department. It is an open source way to insure our learning content will grow into the big vision of Project Apollo and PHE>

"One love. One heart." Bob Marley's everlasting message about the power of love and solidarity is more important than ever as families face the COVID-19 pandemic and millions call for equality.

Recommended by Caroline Kryder

Recommended by Sharon Wampler: "The award-winning Cancer Survival Toolbox is a free audio program. It was created by leading cancer organizations to help people develop skills to better meet and understand the challenges of their illness."

"FREE & ONLINE REPLAY 11-12 July 2020" Have you experienced EMOTIONAL STRESS or TRAUMA? 67% of all adults have experienced early life stress, it is the number ONE most underexposed risk factor for ALL chronic illness. High exposure leads to a dramatic increased risk of developing 7 of the top 10 causes of death OUR EXPERTS WILL COVER: The Trauma and Mind Body Super Conference brings together the most comprehensive framework for healing emotional trauma and cultivating an optimum state for healing possible. To truly heal, we need to address everything that functional medicine, psychology, neurology and energy medicine have to offer

"It's now clear that nearly everyone who recovers from coronavirus disease 2019 (COVID-19) produces antibodies that specifically target SARS-CoV-2, the novel coronavirus that causes the infection. Yet many critical questions remain. A major one is: just how well do those particular antibodies neutralize the virus to fight off the infection and help someone recover from COVID-19? Fortunately, most people get better-but should the typical antibody response take the credit?"