PHE - Resources

"In a world where you don't own or control your data, we source a copy of your medical data, structure it to make it usable and valuable, and store it in your personal record to own as your personal property."

"We are working alongside our partners to mitigate the impacts of COVID-19 through immediate relief, capacity building, and longer-term efforts to support resiliency and recovery, especially among marginalized communities most disproportionately impacted."

"Alzheimer's Advocate, Family Caregiver, and Health Policy/Delivery/Research/Technology Thought Leader"

"For the more than seven million people in California's Bay Area living through historic wildfires, it's been hard to breathe for the past month. For 29 days the region has been under a "Spare the Air" alert, which means inhaling outdoor air presents a health hazard. Air quality is even worse in Oregon and Washington, and by this morning smoke had stretched all the way to the East Coast and even to Europe. Wildfire smoke contains a variety of gases and particles from the materials that fuel the fire, including ozone, carbon monoxide, polycyclic aromatic compounds, nitrogen dioxide, and particulate matter-pollutants linked to respiratory and cardiovascular illnesses, according to a study in the Journal of the American Heart Association."

"Build a Personal Care Community Livpact helps you organize and connect family, friends, professional support, community services and helpful resources."

"About AMIA - American Medical Informatics Association ® Discovering Health Insights. Accelerating Healthcare Transformation. AMIA ® (American Medical Informatics Association ®) is a community committed to the vision of a world where informatics transforms people's care. Over the last 35 years, the use of informatics has grown exponentially to improve health and to make better healthcare decisions. Today, informatics is the key to accelerating the current goals of healthcare reform. Every day millions of people benefit from informaticians' ability to accelerate healthcare's transformation by collecting, analyzing and applying data directly to care decisions. Data produced throughout health and healthcare is the driving force of informatics and its ability to innovate critical advancements that directly benefit people. AMIA's members are critical to discovering these insights, which is why AMIA is committed to being the professional home for the informaticians of today and the driver of informatics' future."

"AMIA 2020 VIRTUAL ANNUAL SYMPOSIUM The Annual Symposium builds on more than 40 years of sharing pioneering research and insights for leveraging information to improve human health. Topics of interest span the spectrum from deciphering the underpinning phenomena of disease, to managing information and communications for improving patient care, to tracking the health of populations. The AMIA 2020 Annual Symposium showcases the latest innovations from the community of biomedical informatics researchers and practitioners. The AMIA 2020 Virtual Annual Symposium brings together informatics professionals from diverse backgrounds committed to transforming health through informatics. From the leading experts in the field, to the students eager to get started, the AMIA 2020 Virtual Annual Symposium provides an opportunity to learn and to grow professionally, to network, and to flesh out ideas with colleagues and start new collaborations."

"The coronavirus is killing Hispanic, Black and American Indian children at much higher numbers than their White peers, according to federal statistics released Tuesday."

"WIFIRE's mission is to turn data into a utility for advancing fire science. This mission comprises: Building workflows to integrate data, software and computing infrastructure Creating systems, services and tools for AI integrated fire science Translating scientific and data advancements into practical use in response and planning"

Recommended by Janice O'Connor: "As the world awaits vaccines to bring the COVID-19 pandemic under control, UC San Francisco scientists have devised a novel approach to halting the spread of SARS-CoV-2, the virus that causes the disease."

by Donald M. Berwick, MD, MPP1 How do humans invest in their own vitality and longevity? The answer seems illogical. In wealthy nations, science points to social causes, but most economic investments are nowhere near those causes. Vast, expensive repair shops (such as medical centers and emergency services) are hard at work, but minimal facilities are available to prevent the damage.

Based on your stories and feedback, Best Buy has made it a priority to align our benefit programs with caregiver needs to help you address these challenges. This guide won't cover everything you need to know, but I hope it gives you a place to start learning. I also hope it gives you comfort knowing that Best Buy supports you and those you care about. We're in this together.

"ARCHANGELS is a national movement and a platform that is reframing how caregivers are seen, honored, and supported using a combination of data and stories. We believe shining a light on caregivers so they feel seen, and honored, is the first line of care. Loving on them and thanking them for the work they do is the next step. And step three is lifting them up by providing resources that actually help. Our job is to find the things that make the good things about being a caregiver 'good-er,' and make the bad things better. "

mettacare isc survey results

Recommended by Janice O'Connor: These variables affect whether you live, die or get help during the pandemic. Race affects who can flee from a viral hotspot to a second home, who can't distance from infected co-workers and much more. Systemic racism is a public health issue, and the pandemic is making it worse.

"In a high-performing health care system, measurement drives progress toward safe, effective, efficient, timely, equitable, and patient-centered care. Measurement helps to identify priority areas for improvement, evaluate which changes make a difference in performance, and promote accountability. Measurement informs how health care is paid for, how resources are allocated, and, increasingly, how patients and their care teams make care decisions. "

"Without clear information from official sources, many long-haulers have found answers from one another. Support groups on Facebook have thousands of members. One Slack group, founded within a wellness organization called Body Politic, has almost doubled in size since June to more than 7,000 active participants from 25 countries. There are channels for discussing every organ system in the body. There are lists of sympathetic medical providers, and tips for convincing those who aren't listening. Eerily, the group's membership morphs as the pandemic spreads: "When Brazil had a huge spike, we had a massive influx of Brazilian patients," said Nichols, who is an administrator."