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Hi, I am "Mom" to Lauren, who is a 24 year-old young woman with severe, multiple disabilities. Lauren requires care in every aspect of her life. This blog will be a journal of the struggles and joys of providing care for Lauren. Since she self-directs the services she receives and requires my help in order to make that possible, this blog will also point out the issues, promise, and problems inherent in self-direction from the perspective of a primary caregiver. I will provide information and advice to others who care for or about someone with developmental disabilities as well as offer insights into participating in self-direction. Hopefully my efforts will be helpful, enlightening, and thought provoking. And, I hope that you will share your thoughts, ideas, and suggestions with me. Someone wise once said, "Life is a journey not a destination." I invite you to share part of my journey with me

As we see the first early signs of spring, we know summer can't be far away. Start planning now for summertime activities to help middle and high school students continue their journey toward adulthood. This web conference will touch on ideas such as: Completing the Transition Workbook as a family activity Volunteering Summer jobs Exploring new assistive technology Establishing new connections in the community Continuing and documenting the Discovery process Testing out new leisure activities Learning about support needs...while having fun! The web conference will be held on Monday, March 15th, from 1:00 - 2:30 Mountain Time. 

As we see the first early signs of spring, we know summer can't be far away. Start planning now for summertime activities to help middle and high school students continue their journey toward adulthood. This web conference will touch on ideas such as: Completing the Transition Workbook as a family activity Volunteering Summer jobs Exploring new assistive technology Establishing new connections in the community Continuing and documenting the Discovery process Testing out new leisure activities Learning about support needs...while having fun! The web conference will be held on Monday, March 15th, from 1:00 - 2:30 Mountain Time. 

There are many mistaken ideas about Learning Disabilities (LD, NLD, EFD) and Attention-Deficit/Hyperactivity Disorder (ADHD). These myths and misconceptions can stand in the way of your child's progress.

KidActivities.net is dedicated to school-age care professionals--additionally it is a resource for pre-school thru high school educators, parents, and program directors--in short anyone who loves engaging children.

The first sign may be that your bright child is having trouble reading, or organizing school assignments, or concentrating on homework. Your child may be frustrated with school, and you may find yourself frustrated with what looks like a lack of effort. And a teacher may also notice that something is amiss.

A review of free technology resources and how teachers can use them. Ideas for technology integration in education.

In an effort once considered unimaginable, scientists are testing a series of drugs which they hope will improve the mental abilities of individuals with fragile X syndrome. Unlike currently available drugs that treat symptoms of fragile X — like anxiety — the new medications now in trials are designed to address core components of the disorder. The idea is not to cure fragile X, but rather to improve the mental functioning abilities of those who have it.

I got a reader question a few days ago which initially had me stumped. The author has a child with autism who is greatly calmed during car journeys by listening to an iPod. However, due to the child’s autism, they fiddle with the iPod buttons incessantly and occasionally turn it off or pause the sound by accident, then being unable to turn the sound back on again and becoming agitated. The reader asked if I had any ideas for preventing this.

There’s no sob story in a new national push to promote hiring of people with disabilities. In fact, the advertising campaign launching this week hardly even mentions the word “disability.” Instead, the focus is on the many quirks found in the workplace — everything from the co-worker who talks too loud to the one who can’t put together a decent outfit. The idea is that disability presents just one more element to workplace diversity and that hiring people with disabilities can be cool.

The Interagency Autism Coordinating Committee (IACC) is a Federal advisory committee that coordinates all efforts within the Department of Health and Human Services (HHS) concerning autism spectrum disorder (ASD). Through its inclusion of both Federal and public members, the IACC helps to ensure that a wide range of ideas and perspectives are represented and discussed in a public forum.

Welcome to the draft of the National Education Technology Plan. We encourage you to host discussion groups with various stakeholders and look forward to your comments, ideas, and links to appropriate videos, stories and research. Commenting is available at the bottom of each page, enabling you to provide comments within the context of the plan and we will make this feature available for the next sixty days. Thank you.

This session will offer an overview of the resources offered by AAC TechConnect to assist in AAC evaluations in the following ways: An overview of the unique "ACES Module and Toolkit Approach" will offer ideas for low-cost toolkits which can be assembled and used for effective AAC evaluations One-of-a-kind online clinical resources will be demonstrated for locating info at www.aacTechConnect.com for pictures/flyers/comparison charts for most AAC devices Descriptions of locale workshops including AAC Vendor Forums which are being scheduled nationally by AAC TechConnect/ATIA and hosted by local AT centers.

My son is dyslexic. He has an IEP and receives services in a special education classroom. Because he is not making enough progress, I enrolled him in the Barton Reading program. The school is implementing a new reading program that will conflict with the Barton program. If I refuse consent for this new intervention program, can the school terminate my son’s IEP?

The concepts are simple: Don't bully, help those who are being bullied and tell an adult what's going on. Pearre tries to reinforce the idea that the bully doesn't act alone. The community can take away the bully's power by refusing to cheer him on, by telling an adult, or perhaps the ultimate step: stepping in to help the victim.

Parents of a child with learning disabilities can sue a school district for ignoring the problems and failing to arrange tutoring or other educational help, a federal appeals court ruled Monday.

The decision by the Ninth U.S. Circuit Court of Appeals in San Francisco in a case from Compton (Los Angeles County) is one of the first in the nation on a parent's ability to enforce a federal law that requires schools to identify all children with disabilities and provide them with an appropriate education.

The IDEA Partnership is dedicated to improving outcomes for students and youth with disabilities by joining state agencies and stakeholders through shared work and learning. This dedication has been operationalized in the collaborative work on Autism Spectrum Disorder (ASD) of 12 partner organization representatives, nine national and state technical assistance providers, and a number of state and local organizations and agencies. Members of this ASD collaborative work group represent a range of roles at all levels of the education system as well as coming from geographic locations from across the United States. Together with the Office of Special Education Programs (OSEP), these partners form a community with the potential to transform the way we work.

Deaf actress Marlee Matlin is exploring an idea for a unique reality TV show: It’s called “My Deaf Family” and it’s about growing up with deaf parents. Matlin created a pilot for the series and made it available for free on YouTube. The show depicts the challenges of having parents with disabilities, but not having those disabilities yourself.

Let’s get reconnected and renew our support for each other and other area families. What better time than Autism Awareness month to come and say hello and check out the YMCA facilities where we will be having our monthly meeting. You’ll also get to see the preschool room where we will be providing childcare (This won’t exclude older children. We will have activities for them as well!). Plus, we can talk about our plans for summer activities as well as get ideas from you for additional activities.

These easy-to-use guides were created especially for teachers/caregivers and parents to provide hands-on ways to embed social emotional skill building activities into everyday routines. Each book nook is comprised of ideas and activities designed around popular children’s books such as Big Al, Hands are Not for Hitting, On Monday When it Rained and My Many Colored Days. Examples of suggested activities include using rhymes to talk about being friends, making emotion masks to help children identify and talk about different feelings, playing games around what to do with hands instead of hitting and fun music and movement activities to express emotions.