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Suppose the typical U.S. health insurance plan didn’t cover treatment for cancer. Or suppose most American insurance companies put annual and lifetime benefit limits on cardiac care, limits that didn’t apply to other ailments. Imagine that the health plans still covering heart care applied higher deductibles to that treatment than to other health care bills. These ideas are outrageous, yet they are reality for American families living with mental illnesses.

The ink was hardly dry on the health-care overhaul law when foundations, industry groups and consumer advocates began putting together guides to the new rules. Here are some Web sites worth keeping an eye on:

This short summary describes the health coverage provisions contained in the Patient Protection and Affordable Care Act and the Health Care and Education Reconciliation Act of 2010, including the individual mandate requirements, expansion of public programs, health insurance exchanges, changes to private insurance, employer requirements and cost and coverage estimates.

Grantee Spotlight Project Access grantees are implementing unique and innovative strategies to address the challenges children and youth with epilepsy face within their health care system, schools, and communities. Learn more as we highlight a new grantee each month. How can I help improve care for children and youth with epilepsy? Explore the resources and best practices from the National Center for Project Access (NCPA) to learn about what others have done to improve systems of care. News & Events Stay informed with current epilepsy and Project Access news, funding opportunities, and upcoming events. Next About Project Access is a national initiative funded by the Maternal and Child Health Bureau of the Health Resources and Services Administration that seeks to increase awareness of epilepsy and improve access to coordinated, comprehensive care for children and youth with epilepsy in medically underserved and rural areas.

Project Access is a national initiative funded by the Maternal and Child Health Bureau of the Health Resources and Services Administration that seeks to increase awareness of epilepsy and improve access to coordinated, comprehensive care for children and youth with epilepsy in medically underserved and rural areas.

For parents of children with multiple medical problems, keeping up with countless doctor's appointments, ongoing tests and a variety of medications can be overwhelming, especially for those in challenging socioeconomic situations. 

As a result, families often wind up using the emergency room, the country's most expensive form of care delivery, to get help for their kids.

But a growing concept in health care reform called the "medical home" offers parents a way to simplify, organize and coordinate the complexities of their medically fragile child's health care needs. The medical home is not a location but an approach to care coordination designed to provide a constant trusted source of care, typically by a general pediatrician.

The Indian Health Care Improvement Act (IHCIA), the cornerstone legal authority for the provision of Health Care to American Indians and Alaska Natives, was made permanent when President Obama signed the bill on March 23, as part of the Patient Protection and Affordable Care Act. The authorization of appropriations for the IHCIA had expired in 2000, and while various versions of the bill were considered by Congress since then, the act now has no expiration date.

This knowledge path about caring for children and youth with special health care needs has been compiled by the Maternal and Child Health Library at Georgetown University. It offers a selection of current, high-quality resources that analyze data, describe effective programs, and report on policy and research aimed at developing systems of care that are family-centered, community-based, coordinated, and culturally competent. A separate section lists resources for families. The final part of the knowledge path presents resources that address specific aspects of care and development, such as advocacy, early intervention and special education, financing services, rehabilitation, screening, and transition. This knowledge path for health professionals, program administrators, policymakers, educators, researchers, and families will be updated periodically.

The nation’s children have a lot at stake in the ongoing federal and state level debates over Medicaid’s role in deficit reduction efforts. Children and youth with special health care needs (CYSHCN) are most vulnerable to Medicaid cuts because so many rely on it. Approximately 14% (10.2 million) of children meet the criteria of having a special health care need. Of these children, 36% rely on Medicaid for all or part of their health coverage.

The Safer Health Care for Kids program is designed for physicians, allied health professionals, administrators, parents, and caregivers, who share a commitment to ensuring a safe Health Care environment for infants, children, adolescents, and young adults.