National Library of Medicine PubMed abstract regarding Characteristics and management of feeding problems of young children with cerebral palsy

Research article on Japanese study measuring the effects of pectin liquid on gastroesophageal reflux disease in children with cerebral palsy

London study to determine if acupuncture helps delayed gastric emptying

European study to find out whether 4 different protein sources affect the rate of gastric emptying and electrofysiology in this group of children.The protein composition of nutrition may affect the rate of gastric emptying and gastric fysiology. This is especially important in children with neurologic impariment, who commonly rely on tube feedings, have feeding problems, nausea, vomiting, gastroesophageal reflux and delayed gastric emptying.

National Library of Medicine PubMed.gov Abstract of 2004 study relating to Gastric emptying in children with cerebral palsy and gastroesophageal reflux

Look here for FDA Approved Drug Products, and medication information

PSN is dedicated to helping parents and families cope and move forward in their lives. PSN is also the first support group for infant, pediatric and childhood stroke registered with the American Heart Association

Children's Hospital Boston is a 396-bed comprehensive center for pediatric health care. As one of the largest pediatric medical centers in the United States, Children's offers a complete range of health care services for children from birth through 21 years of age. (Our Advanced Fetal Care Center can begin interventions at 15 weeks gestation, and in some situations, we treat adults.)

The Federation is a center for parents and parent organizations to work together on behalf of children with special needs and their families. A coalition of parent groups representing children with a variety of disabilities, the Federation operates a Parent Center in Massachusetts which offers a variety of services to parents, parent groups, and others who are concerned with children with special needs.

University of Michigan Health System - Development & Behavior Resources. A Guide to Information & Support for Parents

The Pediatric Heart Network (PHN) is a group of hospitals in the United States and Canada that conduct research studies in children with congenital or acquired heart disease . Congenital heart defects occur in approximately 40,000 infants in the US each year and are a major cause of infant death. Acquired heart disease can cause death and long-term disability.

NHLBI ARDS Clinical Network web site. This site was established to provide information to the public on ARDS and the ARDS Network. In order to hasten the development of effective therapy for Acute Respiratory Distress Syndrome (ARDS), the National Heart, Lung, and Blood Institute, National Institutes of Heath, initiated a clinical network to carry out multi center clinical trials of ARDS treatments. The goal of the Network is to efficiently test promising agents, devices, or management strategies to improve the care of patients with ARDS.

National Heart Lung and Blood Institute (NHLBI) Diseases and Conditions Index (DCI). This Web-based health index gives you a quick and easy way to get complete and dependable information about heart, lung, and blood diseases and sleep disorders.

In large, multicenter clinical studies, a therapy has been shown to significantly lower the risk of lung and brain damage in some very low birthweight premature infants. Results from two randomized clinical trials demonstrate that when given within the first few weeks of life, inhaled nitric oxide helps prevent chronic lung disease in some low birthweight premature infants. In addition, when used within 48 hours after birth, treatment appears to protect some premature newborns from brain injury.

Ongoing study sponsored by NICHD will compare the use of continuous positive airway pressure initiated at birth with the early administration of surfactant administered through a tube in the windpipe within 1 hour of birth for premature infants born at 24 to 27 weeks gestation. In addition, these infants within 2 hours of birth, will have a special pulse oximeter placed to continuously monitor their oxygen saturation in two different target ranges (85-89% or 91-95%). This study will determine whether or not these two management strategies affect chronic lung disease and survival of premature infants.

A Pilot Study to Assess the Efficacy and Effectiveness of High-Frequency Chest Wall Oscillation (HFCWO) in Preventing Pulmonary Exacerbations in Children With Muscle Weakness and Restrictive Lung Disease To further demonstrate that airway clearance provided by Vest therapy reduces the frequency of respiratory exacerbations requiring hospitalization or antibiotic utilization in patients with muscle weakness and restrictive lung disease.

Study will measure the frequency of several coagulation factor abnormalities (factor V Leiden, prothrombin 20210A, protein C, protein S, antithrombin III, and antiphospholipid antibodies) in children with a history of porencephaly and stroke, and will compare these to the prevalence of these mutations in population controls and family members.

Intensive Habilitation (PIH) -a New Norwegian Multidisciplinary Program for Intensive Training for Children With Disabilities

Observational cohort study designed to identify the mechanisms of disease in patients with preterm labor/contractions and preterm premature rupture of membranes and to describe the relationship between clinical, biochemical, histological, biophysical parameters and the development of infant neurological disorders.

Future planned study to assess the effect of the Protein Composition on the Gastric Emptying Rate in Children With Cerebral Paresis and find out whether 4 different protein sources affect the rate of gastric emptying and electrofysiology in children with cerebral palsy