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PubMed Study Abstract: Growth and health in children with moderate-to-severe cerebral palsy. Study proposed to describe observed growth patterns and their relationship to health and social paricipation in a respresentative sample of children with moderate-to-severe cerebral palsy.

For most children, a clear sign that a ventriculoperitoneal (VP) shunt is not working is a painful headache. Because Braden could not communicate his pain to me, I quickly had to learn to look for other symptoms.

The Medical Product Safety Network (MedSun) improves FDA's understanding of problems with the use of medical devices so that the FDA, healthcare facilities, clinicians, and manufacturers can better address safety concerns. The MedSun Web page is a newsletter-based website which provides monthly updates about timely medical device issues that may impact patient safety. This website also provides public access to de-identified reports 2 sent into the MedSun program, in addition to important safety information to MedSun participants and to the national clinical community about reported problems.

Study is to find out the outcomes of using the PASS LP System to correct adolescent idiopathic scoliosis. This system is a unique set of spinal instrumentation used to surgically correct the rotation and deformity of the spine that is caused by scoliosis. Also, this study wants to find out the effects this system has on the physical appearance and quality of life for patients with scoliosis.

The investigators in this study sponsored by the University of Michigan are working on a tool to help people who are severely paralyzed. This tool is called a brain-computer interface (BCI). BCIs can connect to computers or other electronic devices, such as a power wheelchair. In this study, patients with Amyotrophic Lateral Sclerosis (ALS) will be able to control the tilt feature of their power wheelchair using only brainwaves, allowing for independent control.

Study to determine if the drug 17-hydroxyprogesterone caproate can help reduce the risk of preterm delivery in women with certain risk factors for preterm birth. We hope to learn whether this same medication can be used to prolong pregnancy in a group of patients in whom this medication has not been previously studied. Specifically, we hope to learn whether progesterone supplementation will delay delivery in women with pre-term, premature rupture of membranes (PPROM).

United Spinal Association has released an updated version of the Accessible Air Travelâ€" A Guide for People With Disabilities. The revised edition includes expanded regulations for the Air Carrier Access Act. This is the law that mandates air travel accessibility for people with disabilities. Our revised edition includes the new regulations that take affect on May 13, 2009. This helpful booklet informs individuals with disabilities of their rights as passengers on commercial airlines and how to adequately prepare to ensure their air travel experience is enjoyable. It also provides valuable insight on a multitude of air carrier procedures, such as information about requirements for foreign airlines, what to expect in terms of equipment liability, how to file a complaint, and airport screening requirements.

Accessible Playgrounds in the United States - Let Kids Play "Playground Directory" Accessibleplayground.net is the THE site for Accessible Playgrounds. Here you will find great resources on how to develop an accessible playground from A to Z. You will also find hundreds of examples of what other people have done. In addition, if you are heading out on vacation and want to ensure you have an accessible place to play, the site can point you in the right direction. The Accessible Playground directory and learning lab is a project of Let Kids Play.

The HRSA Maternal and Child Health Bureau improves the health of mothers, children and their families. Authorized under Title V of the Social Security Act, HRSA maternal and child health programs - Assure access to quality care, especially for those with low-incomes or limited availability of care. Reduce infant mortality. Provide and ensure access to comprehensive prenatal and postnatal care, especially for low-income and at-risk women. Increase the number of children receiving health assessments and follow-up diagnostic and treatment services. Provide and ensure access to preventive and child care services, as well as rehabilitative services for certain children. Implement family-centered, community-based systems of coordinated care for children with special healthcare needs. Provide assistance in applying for services to pregnant women with infants and children who are eligible for Medicaid.

The MindProject Community - consortium on Cognative Science Instruction CCSI - Consortium on Cognitive Science Instruction was formed to coordinate the efforts of individuals and institutions (public and private) committed to the dissemination of information about the cognitive and learning sciences. The primary objective of the Consortium is to create a well-organized community of teachers, researchers, and students which fosters the growth of cognitive science education, the sharing of resources, collaboration on student-centered research projects, and an increased level of communication and cooperation between all types of institutions committed to these goals.

Nation Aphasia Association - The NAA's mission is to educate the public to know that the word aphasia describes an impairment of the ability to communicate, not an impairment of intellect. The NAA makes people with aphasia, their families, support systems, and health care professionals aware of resources to recover lost skills to the extent possible, to compensate for skills that will not be recovered and to minimize the psychosocial impact of the language impairment.

Provides information on disability laws and other subjects available to download and listen to, as well as podcast transcripts to read. Information covered includes the Americans with Disabilities Act, the Air Carrier Access Act, the Ticket to Work program, the Fair Housing Act and other laws and programs that support the rights and independence of people with disabilities.

Study being conducted to identify specific motor signatures of different forms of dystonia. Study will examine abnormal co-activation in distal and proximal muscles to evaluate the characteristics of the loss of selectivity of the motor command in mobile vs. fixed dystonia. We will also study possible cognitive and limbic components of the disease, examining the influence of cognitive and emotional loads on movement production.

Mayo research study to determine if there are enough patients with hard to treat epilepsy that might qualify for a future study of a medical device that is being developed to treat epilepsy. Participants will not be testing the device during this study. The study doctor will be assessing seizure type(s) and determine how frequently they occur, and to verify if antiseizure medications can be held constant for a period of 12 weeks.

Study to develop a comprehensive spasticity management program which will then be developed for the individual. Clinical and outcome assessments at baseline and at follow-up will include measures of range of motion, global spasticity according to a modified Ashworth scale, and the time and number of staff required for the task. In addition, video will be obtained of caregivers performing each participant's care area tasks at baseline and follow-up to allow an independent external reviewer to judge task difficulty

The North American Clinical Trials Network (NACTN) is one more way that the Reeve Foundation is moving promising therapies from the lab to spinal cord injured patients. NACTN is working hard to insure that any clinical trial will be done in a way that maximizes both patient safety and our ability to gather valid, meaningful data. NACTN is an international network of hospitals with highly trained personnel and uniform protocols and data collection that help to ensure safety for all trial subjects and interpretable trial data

Study will determine whether giving low-dose indomethacin to infants weight 500 to 999 grams (approximately 1 to 2 pounds) at birth improves their survival without cerebral palsy or developmental problems at 18 to 22 months of age.

Provides the information and tools parents need to understand the uniqueness of children and to enable them to help each child develop into the successful human being they were meant to be. Our mission is to help parents develop a positive parenting style that leads to a family where parents and children can listen to each other, support each other and have fun playing and enjoying family activities.

Provide support, current information, and understanding to those affected by the Arnold Chiari malformation and syringomyelia. Staffed by dedicated volunteers, the World Arnold Chiari Malformation Association (WACMA) is committed to providing heartfelt support, current information, and understanding to those affected by Arnold Chiari Malformations, Syringomyelia, and related conditions.site features our member recommended doctors listing, a variety of helpful articles, illustrations and general information about Chiari and related conditions, tips on dealing with symptoms, the largest database of archived information of any Chiari support group in the world, and more

DHS helps Illinois families achieve self-sufficiency, independence and health to the maximum extent possible. One of Illinois' largest agencies, provides state residents with streamlined access to integrated services.