Group items tagged

Only medical center in the state that's 100% focused on caring for children, from babies to teens. Teaching hospital and home of the University of Connecticut School of Medicine Department of Pediatrics Connecticut Children's Medical Center is the largest pediatric primary care service for children between Boston and New York. Pediatricians provide primary care services such as well-child checkups and immunizations, and care for minor illnesses. Emergency room staffed serves approximately 30,000 patients annually. Surgical unit nearly 6,000 surgeries performed annually. Intensive care unit serves children with traumatic injuries, life-threatening illness and children recovering from major surgery. We're a neonatal intensive care unit caring for about 500 critically ill or premature newborn babies a year; some children who weigh one pound at birth.

The HRSA Maternal and Child Health Bureau improves the health of mothers, children and their families. Authorized under Title V of the Social Security Act, HRSA maternal and child health programs - Assure access to quality care, especially for those with low-incomes or limited availability of care. Reduce infant mortality. Provide and ensure access to comprehensive prenatal and postnatal care, especially for low-income and at-risk women. Increase the number of children receiving health assessments and follow-up diagnostic and treatment services. Provide and ensure access to preventive and child care services, as well as rehabilitative services for certain children. Implement family-centered, community-based systems of coordinated care for children with special healthcare needs. Provide assistance in applying for services to pregnant women with infants and children who are eligible for Medicaid.

Children with Cerebral Palsy often do not grow the same as other children. Children with CP are often shorter and thinner than other children of the same age. We do not know if this is normal, or if there could be a problem with nutrition or hormones, and so we are interested in discovering what is just right for a child with CP. The first step in understanding growth in Cerebral Palsy is to measure a large group of children with CP.

Most children have a preconceived notion that every day of summer should be exciting and adventurous. Children with special needs are no exception. As parents, we feel an obligation to provide our children with memorable summer breaks, without breaking the bank! Determining how to manage that day-to-day challenge can be exhausting for parents of a special needs child, especially when you factor in possible accessibility issues that may arise for children in wheelchairs or with mobility challenges.

National Institute of Arthritis and Musculoskeletal and Skin Diseases - Questions and Answers about Scoliosis in Children and Adolescents - This booklet defines scoliosis and provides information about how it is diagnosed and treated in children and adolescents. You may be interested in contacting one or more of the organizations listed on the site for more information.

The Federation is a center for parents and parent organizations to work together on behalf of children with special needs and their families. A coalition of parent groups representing children with a variety of disabilities, the Federation operates a Parent Center in Massachusetts which offers a variety of services to parents, parent groups, and others who are concerned with children with special needs.

Bravekids.org helps children with disabilities, chronic, life threatening illnesses and special needs by providing thousands of resources & medical information on childhood conditions, plus message boards to connect children and parents to others sharing similar challenges. (You will find medical information on conditions such as autism, cancer, cerebral palsy, ADHD & ADD, just to name a few.

Study to compare rates, nature, and mechanisms of school injuries in children with and without disabilities. Conclusions: For children with disabilities, physical impairment may play a greater role than cognitive impairment in managing risk for injury at school. Individual education programs (IEP), developed for children in special education, could be tailored to include injury prevention strategies.

PubMed Abstract: OBJECTIVES: To thoroughly examine the literature dealing with life expectancy in children with cerebral palsy and mental retardation. This review paper comprehensively reviews the literature relating to survival in children with cerebral palsy and developmental disability. CONCLUSIONS: Literature review definitively shows that children with CP and DD have a diminished life expectancy, which can be assessed based on simple clinical examination findings.

American Journal of Speech-Language Pathology - speech Breathing in Able-Bodied Children with Cerebral Palsy - a Review of the Literature and Implications for Clinical Intervention. Review concluded that little information regarding either the nature or the treatment of speech breathing in children with cerebral palsy is available and that there is a definite need for basic research as well as treatment efficacy studies.

2006 Study ssessing: "Sense of coherence and parenting stress in mothers and fathers of preschool children with developmental disability. RESULTS: Mothers and fathers of children with DD reported high levels of parenting stress, with 84% of mothers' and 67% of fathers' scores falling within the clinical range. Parents of children with DD consistently reported higher levels of parenting stress, weaker SOC, and, for mothers and parents in 2-parent families, poorer health than parents of children without DD. Within families, mothers of children with DD reported poorer health, higher levels of parenting stress, and weaker SOC than their partners. There were no significant differences in reported health, parenting stress, or SOC between parents of children without DD.

Parents helping Parents - Practical Solutions that Strengthen Relationships at Home - Special Needs Children for Mom and Dad

eap.partners.org - Special Needs Children: Working with Professionals - Content provided courtesy of the National Dissemination Center for Children with Disabilities (NICHCY). For more information or to discuss parenting concerns please contact Partners Employee Assistance Program at 1-866-724-4EAP

The Administration for Children and Families (ACF), within the Department of Health and Human Services (HHS) is responsible for federal programs that promote the economic and social well-being of families, children, individuals, and communities. ACF programs aim to achieve the following: *families and individuals empowered to increase their own economic independence and productivity; *strong, healthy, supportive communities that have a positive impact on the quality of life and the development of children; *partnerships with individuals, front-line service providers, communities, American Indian tribes, Native communities, states, and Congress that enable solutions which transcend traditional agency boundaries; *services planned, reformed, and integrated to improve needed access;*and a strong commitment to working with people with developmental disabilities, refugees, and migrants to address their needs, strengths, and abilities.

National dissemination Center for Children with Disabilities - NICHCY is very pleased to offer you a wealth of information on disabilities! NICHCY stands for the National Dissemination Center for Children with Disabilities. Central source of information on: disabilities in infants, toddlers, children, and youth, IDEA, which is the law authorizing special education, No Child Left Behind (as it relates to children with disabilities), and research-based information on effective educational practices.

Research Study for Children to Test Balance. Researchers at the University of Kentucky College of Health Sciences are conducting a research study to investigate the reliability of a test of balance for typically developing children and children with cerebral palsy

Dr. Michelle Kuperminc of the University of Virginia is conducting a clinical study to determine what the best way is to measure Body Composition in children with Cerebral Palsy. Body composition is the amount of muscle, bone and fat in your body. There are several different ways we can measure body composition and would like to know which one is best for children with CP.

Shriners Hospitals for Children study to evaluate the use of unilateral or bilateral VEPTR devices, with or without expansion thoracoplasty, for preventing further progression of the Cobb angle, allowing for spinal growth and improving pulmonary function in the treatment of children with progressive scoliosis without rib abnormalities

The Administration for Children and Families (ACF), within the Department of Health and Human Services (HHS) is responsible for federal programs that promote the economic and social well-being of families, children, individuals, and communities.

PubMed Study Abstract: Growth and health in children with moderate-to-severe cerebral palsy. Study proposed to describe observed growth patterns and their relationship to health and social paricipation in a respresentative sample of children with moderate-to-severe cerebral palsy.