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Provides hospital and retreat housing services to critically ill children and their families. Programs include Hospital and Respite Housing, respite facilities

Resources and referrals to help people and their families cope with the problems that occur with TS. Membership includes individuals, families, relatives, and medical and allied professionals working in the field. University of Michigan - Hereditary Spastic Paraplegia - Program development, education and medical programs, government outreach, adherence to TSA's mission, maximizing efforts, minimizing expenses, event management, awareness, media, publications, chapter relations, research grants, scientific and medical conferences, are ongoing efforts of TSA's full-time professional staff.

Only national voluntary non-profit membership organization in this field. Mission is to identify the cause of, find the cure for and control the effects of Tourette Syndrome. Offers resources and referrals to help people and their families cope with the problems that occur with TS. We raise public awareness and counter media stereotypes about TS. Membership includes individuals, families, relatives, and medical and allied professionals working in the field

Washington State -- The mission of the Division of Developmental Disabilities (DDD) is to endeavor to make a positive difference in the lives of people eligible for services, through offering quality supports and services that are: individual/family driven; stable and flexible; satisfying to the person and their family; and able to meet individual needs. Supports and services shall be offered in ways that ensure people have the necessary information to make decisions about their options and provide optimum opportunities for success.

The mission of the Waisman Center, University Center for Excellence in Developmental Disabilities (UCEDD) is to support the full inclusion and self determination of people with developmental disabilities and their families through:development of personnel qualified to provide services in the health, education, and social service systems provision of services, technical assistance and the dissemination of information, improvement of assessment, service and support approaches, contribution of new knowledge about the causes and prevention of developmental disabilities, the impact of disabilities on individuals and families, and the efficacy of different assessment, intervention and support methods.

The National Birth Defects Prevention Network (NBDPN) is a group of individuals involved in birth defects surveillance, research, and prevention. It was created to establish and maintain a national network of state and population-based programs for birth defects surveillance and research. The Network assesses the impact of birth defects upon children, families, and health care; identifies factors that can be used to develop primary prevention strategies; and assists families and their providers in secondary disabilities prevention.

This notebook is intended to aid primary care providers in their pursuit of optimal care, well-informed patients, and healthy families.Content: This site is derived from a peripheral brain collection of medical notes and is divided over 4316 topics within 616 chapters and 31 subspecialty books. Information is gleaned from reputable sources, referenced where possible, taken from lectures and workshops, peer reviewed articles and bulletins, and key texts.

American Family Physician - Interpretation of the Electronic Fetal Heart Rate During Labor

Special Needs Definition at the Sloan Work and Family Research Network - Boston College

The Center on the Social and Emotional Foundations for Early Learning (CSEFEL) has published a new Family Tool to help family members and caregivers understand what self-help skills can be expected from young children and to provide tips for helping children learn how to become more independent with daily routines. It is available online.

Family Village - Adaptive products & Assistive technology products. Clothing available for children, preemies, sensory impairments and sensory integration.

Most children have a preconceived notion that every day of summer should be exciting and adventurous. Children with special needs are no exception. As parents, we feel an obligation to provide our children with memorable summer breaks, without breaking the bank! Determining how to manage that day-to-day challenge can be exhausting for parents of a special needs child, especially when you factor in possible accessibility issues that may arise for children in wheelchairs or with mobility challenges.

When a child with cerebral palsy is unable to attend school, parents may opt to have the school come to them. By law, Home and Hospital Teaching (HHT) is a program that must be offered to students who are unable to attend a regular school program due to a physical or emotional condition. Normally, these programs are offered for a short period of time, but in some cases are appropriate for long term education.

Lab Tests Online has been designed to help you, as a patient or family caregiver, to better understand the many clinical lab tests that are part of routine care as well as diagnosis and treatment of a broad range of conditions and diseases

The NACDD serves as the national voice of State and Territorial Councils on Developmental disability. Supports councils in implementing the Developmental Disabilities Assistance and Bill of Rights Act and promoting the interests and rights of people with developmental disabilities and their families

U.S. Department of Education - My Child's Special Needs - A Guide to the Individualized Education Program (IEP) - Archived Information providing guidance to assist educators, parents, and state and local educational agencies in implementing the requirements of Part B of the Individuals with Disabilities Education Act (IDEA) regarding Individualized Education Programs (IEPs) for children with disabilities, including preschool-aged children. (This guide does not address the development of Individualized Family Service Plans (IFSP) for infants and toddlers.)

The Center on Human Development and Disability - A comprehensive interdisciplinary center. The Center on Human Development and Disability (CHDD) at the University of Washington makes important contributions to the lives of people with developmental disabilities and their families through a comprehensive array of research, clinical services, training, community outreach, and dissemination activities.

PubMed Abstract: CFP MFC Official Publication of the College of Family Physicians of Canada - Microcephaly and Vulnerability of the Brain int he Etiology of Cerebral Palsy

The Hydrocephalus Association provides support, education and advocacy for people whose lives have been touched by hydrocephalus and the professionals who work with them. We strive to ensure that families are empowered with educational materials, informed about the latest research, and have access to quality health care.

Executive Order 13227 - The President's Commission on Excellence in Special Education Report" A new Era: Revitalizing Special Education for Children and Their Families