PHE - Resources

"Precise. Personalized. Prevention. Express your best DNA - the power to impact genetic expression is in your hands. Epigenetics is the study of how lifestyle & environment influence the expression of your genes." OUR MISSION is to empower and inspire providers and patients in optimizing genetic potential through precise, personalized protocols that positively impact patients' health and future generations.

"Every patient has a story Medicine used to be a one-size fits all model. Disease X meant treatment Y. Doctors made decisions and patients listened.  Clinical trials were our only data source. But those days are over. Medicine has gotten personal.   Today, we know  that every patient has a unique medical story. The best care requires knowing those stories and the next generation of medical discovery requires compiling those stories into structured data sets.   That's why PicnicHealth works directly with patients to gather and manage complete, up-to-date medical records. That's also why with our PicnicAI platform, we go beyond serving patients directly, and partner with the most innovative Life Sciences companies to sponsor PicnicHealth accounts for groups of research volunteers. Only by putting patients in control of their own data will we move beyond fragmented, unstructured medical records for both individual patient benefit today and for the opportunity to meaningfully contribute to tomorrow's medicine."

"BUILDING A FASTER CURE TO EB. By fixing a single mutation, we can change the lives of many. Join us on our venture into cures, your investment will be transformational." Epidermolysis Bullosa is a family of rare genetic disorders that affect the body's largest organ: the skin. Individuals with EB lack critical proteins that bind the skin's two layers together. Without these proteins, the skin tears apart, blisters, and shears off leading to severe pain, disfigurement, and wounds that may never heal.

"CREATE ON YOUR OWN TERMS Start a membership business to develop a direct relationship with your biggest fans and generate predictable, recurring revenue from your creative work."

"The Genomic Kitchen combines genomics, nutrition and culinary skills so you can leverage the power of your genes with food-for a lifetime of great health. The Genomic Kitchen is a system of cooking and eating that directly connects the food you eat with the behavior of your genes. Beyond determining the color of your eyes, genes play an active role throughout life, converting the food you eat into the biochemical reactions that keep you living, breathing and growing"

"shows how people can rewrite the toxic stories they tell themselves. The film reveals how individuals battling addiction, trauma, and depression can change their stories and transcend their pain."

"Intermittent fasting Metabolic switching and different forms of fasting." Resource suggested by Vicky Newman

"Join us January 23-26, 2020 in San Diego! This educational event is a must-attend for anyone wanting to acquire a wide-range of knowledge and expertise for addressing and managing dietary supplement use."

4 Lessons in Self-Advocacy - Sometimes you have to save your own life.

"our Choices and Information Sharing Smart Patients gives you important choices about controlling your personal information - whom you let see it, how much, and when. We encourage you to make these choices thoughtfully. Your choices include: Whether you want to browse the website anonymously or create an account and provide us your personal information; Whether you want to join Community Discussion relating to a particular condition; How much health or other personal information you want to share with other patients and caregivers through Community Discussion; Whether you want to participate in surveys we may offer from time to time. The nature of the survey and the form in which the results will be disclosed will be explained to you in advance; Whether you want to participate in any other opportunity we may offer to share your health information with others. For example, if we think you have written something in a Community Discussion that would be particularly helpful to others facing the same condition, we may invite you to post an excerpt from your comments on our public website. Any such opportunity would be clearly explained to you in advance, and whether you decide to share your information would be entirely up to you; Discontinuing active participation or closing your account at any time."

Online community

"  Presented by the Law and Policy Working Group and Ethics Working Group Date: Friday, November 22, 2019, from 1:00 PM to 2:15 PM EST Presented by the Law and Policy Working Group and Ethics Working Group Date: Friday, November 22, 2019, from 1:00 PM to 2:15 PM EST"

It's hard to tell a complex story. At appointments, you feel pressured to remember what happened and tell your story in the right order. The details are often trapped in old medical records. Especially when visiting a new doctor, it's challenging to tell your whole life story.

"We leave a trail of digital data breadcrumbs as we go about our days. With access and good apps, we could make sense of this "small data" to help get a clearer picture of our personal health. Deborah Estrin, networked sensing pioneer, Professor of Computer Science at the new Cornell Tech campus in New York City and co-founder of the non-profit startup, Open mHealth, explains at TEDMED 2013."

"We hear a lot about how big data, smart devices, and all the '-omics' (for example, genomics, proteomics, metabolomics, and so forth) are going to transform medicine-and they will. But there is another force that is going to change the way we think about and practice health, and that is our small data-small data derived from our individual digital traces."

Dennis: "Simply Brilliant work". Potential SME

"Years after her son's tragic death, a bereaved mother is on an impassioned mission to un-silence grief in our modern culture that has buried and forgotten the essential art of grieving."

Camille Nebeker: And another that my colleague, Eleanor wrote entitled the Rise of the New Bio-Citizen speaks to the need for governance and safety considerations when doing DIY research.