PHE - Resources

Apologies, one more big one, also mostly for clinicians / institutions and not insignificant subscription costs. But well-respected and good suite of services for those can do so easily.

"A new electronic self-report body map is an innovative tool for precision health." The CHOIR body map is validated in almost 600 people with chronic pain. Our results demonstrated excellent performance of the map in all of these validation studies. Furthermore, we used the interviews with participants and their suggestions to further optimize the body map. Clinicians and researchers have used the CHOIR body map in over 100,000 assessments across the CHOIR network worldwide.

Open Access. Abstract Introduction: Critical for the diagnosis and treatment of chronic pain is the anatomical distribution of pain. Several body maps allow patients to indicate pain areas on paper; however, each has its limitations. Objectives: To provide a comprehensive body map that can be universally applied across pain conditions, we developed the electronic Collaborative Health Outcomes Information Registry (CHOIR) self-report body map by performing an environmental scan and assessing existing body maps. Methods: After initial validation using a Delphi technique, we compared (1) pain location questionnaire responses of 530 participants with chronic pain with (2) their pain endorsements on the CHOIR body map (CBM) graphic. A subset of participants (n = 278) repeated the survey 1 week later to assess test-retest reliability. Finally, we interviewed a patient cohort from a tertiary pain management clinic (n = 28) to identify reasons for endorsement discordan

"Collaborative Health Outcomes Information Registry (CHOIR) open source, open standard, and highly flexible platform for a learning healthcare system to optimize care and advance real-world research discovery and innovation"

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Discovered by Tyler Orion: "Abstract Thermoelectric generators (TEGs) are an excellent candidate for powering wearable electronics and the "Internet of Things," due to their capability of directly converting heat to electrical energy. Here, we report a high-performance wearable TEG with superior stretchability, self-healability, recyclability, and Lego-like reconfigurability, by combining modular thermoelectric chips, dynamic covalent polyimine, and flowable liquid-metal electrical wiring in a mechanical architecture design of "soft motherboard-rigid plugin modules." A record-high open-circuit voltage among flexible TEGs is achieved, reaching 1 V/cm2 at a temperature difference of 95 K. Furthermore, this TEG is integrated with a wavelength-selective metamaterial film on the cold side, leading to greatly improved device performance under solar irradiation, which is critically important for wearable energy harvesting during outdoor activities. The optimal properties and design concepts of TEGs reported here can pave the way for delivering the next-generation high-performance, adaptable, customizable, durable, economical, and eco-friendly energy-harvesting devices with wide applications."

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"Our partner, Genome Medical, makes it easy for you to speak with a clinical professional about your DNA information. Interested in DNA testing but don't know where to begin? The experts at Genome Medical can help with that, too. Access your data files directly from your LunaDNA dashboard to support proactive health discussions. Help you better understand your genetic test results or help you determine if testing is right for you Explain your health risks based on your family and personal health history Offer guidance on how you can integrate your results into your health care Assess whether family members should consider genetic testing Within days from scheduling your phone or video appointment, speak with a board-certified genetic counselor who can: Genome Medical's genetic counselors do not analyze raw data from various DNA vendors, such as 23andme and AncestryDNA. However, they can answer any of your specific medical questions and determine if additional genetic testing is right for you and your family. SCHEDULE YOUR SESSIONASK A QUESTION SELF-PAY $99 AS LOW AS $50 With qualified insurance the cost for genetic counseling may be as low as $50 if the consultation is a covered service under your plan. © 2020 LunaPBC. All rights reserved. ABOUT US   LunaDNA was created by the Public Benefit Corporation, LunaPBC™, a team of passionate genomics and technology veterans. 2019 Technology Pioneers World Economic Forum SELF-PAY $99 AS LOW AS $50 With qualified insurance the cost for genetic counseling may be as low as $50 if the consultation is a covered service under your plan. SCHEDULE YOUR SESSIONASK A QUESTION HOW IT WORKSRESOURCES 2020 Most Innovative Companies Fast Company "

Discovered by Tyler Orion: "EDNA is the first Genetic Sequencing Service Provider to go far beyond hereditary or ancestral related reporting. EDNA allows individuals from anywhere in the world to own their personal encrypted whole genome sequence, and sell and/or donate their personal genome to accredited medical research teams from around the globe who share their personal ambitions of finding a cure for many of life's most debilitating and too often fatal disease"

"About this Research Topic Healthcare narratives (such as clinical notes, discharge letters, nurse handover notes, imaging reports, patients posts on social media or feedback comments, etc.) have been used as a key communication stream that contains the majority of actionable and contextualised data, but which - despite being increasingly available in a digital form - is still not routinely analysed, and is rarely integrated with other healthcare data on a large-scale. There are many barriers and challenges in processing healthcare free text, including, for example, the variability and implicit nature of language expressions, and difficulties in sharing training and evaluation data. On the other hand, recent years have witnessed increasing needs and opportunities to process free text, with a number of success stories that have demonstrated the feasibility of using advanced Natural Language Processing to unlock evidence contained in free text to support clinical care, patient self-management, epidemiological research and audit."

Christina P. Kantzavelos, LCSW #73271, MSW, MLIS *She/Her/Ella Licensed Psychotherapist and Writer (619) 797-6383 Free 15-min Consultation www.beginwithintoday.com hello@beginwithintoday.com Follow us on Instagram @beginwithtoday My name is Christina Kantzavelos, and I am a licensed psychotherapist and coach who specializes in treating clients with chronic illness @beginwithintoday, and the author of the Begin Within Journal. I'm also a gluten-free food, travel and health-conscious writer @buenqamino. Lyme Disease changed the entire trajectory of my life. Although, I was likely infected in middle school when we first noticed the cat scratch stretch marks, and strange symptoms (fatigue, panic attacks, fainting spells), they were manageable. Prior to getting 'really sick' in 2018, I was fearless, traveling the world, conducting international humanitarian work, working full-time, eating whatever I chose (minus gluten, and dairy), and essentially, a yeasayer. As mentioned, I had some ongoing health concerns prior to then, but it did not stop me from living my life.

January 28, 2021 Dear KRI Research Team, I am very pleased to announce that our latest article "Spiritual Fitness: A New Dimension In Alzheimer's Prevention" which I co-authored with ARPF SAC member, Andrew Newberg, M.D. of Thomas Jefferson University, has been accepted for publication by The Journal of Alzheimer's Disease. Dharma Singh Khalsa, M.D. Founding President / Medical Director Alzheimer's Research and Prevention Foundation (ARPF) www.alzheimersprevention.org drdharma@alzheimersprevention.org

From LinkedIn: As a society, we have not learned from past outbreaks. It's critical that we identify and build on recent progress in biomedical research and innovation. Explore the 20 lessons learned during #COVID19 that can be preserved and enhanced to help speed cures to multiple diseases: #research https://lnkd.in/dztPFiA Among those interviewed for the report were: Francis Collins of National Institutes of Health, Anthony Fauci of National Institute of Allergy and Infectious Diseases (NIAID), Scott Gottlieb of American Enterprise Institute, Margaret Hamburg of National Academy of Medicine, Annalisa Jenkins of London School of Hygiene and Tropical Medicine, U. of London, Peter Mark of Center for Biologics Evaluation and Research, FDA; and Janet Woodcock of FDA. #biomedicalresearch #biotech #preparedness

Recommended by Tyler Orion: Christina Kantzevekos

Recommended by Oz Gontang: Interesting take on news sources, fact vs opinion, and bias.

Recommended by Tyler Orion: Understanding the Rare Disease Ecosystem "Rare diseases (RDs) are different from more common ones, often presenting special challenges for patients, physicians, caregivers, payers, and pharma companies. Those differences and challenges are mostly a consequence of rarity (of patients, experts, data, resources, etc.) and the typically high disease burden. "