PHE - Resources

A message from Sharon: Please support Project Apollo Team as they "Ride Out Lyme to raise funds for Lyme research & to support patients! The 2nd annual event, we raised $10,000 last year. The money is split between BAL to support research and ROL for grants to patients over the age of 26 with financial need. We hope to earmark money raised by ROL La Jolla for San Diego patients in 2021, but this year the money is open to anyone in the US. The mission of Bay Area Lyme "to make Lyme disease easy to diagnose and simple to cure" and we plan to submit a "Measured Lyme" research proposal from Project Apollo in the coming year. Sharon, Mike and Meg will ride as part of the Project Apollo team. Others are welcome! We would love your support as a rider or with donations! To donate to Team Project Apollo visit https://rideoutlyme.salsalabs.org/lajolla2020/t/projectapollo/index.html Let's empower people to realize optimal health!

"What is disulfiram and why is it sparking excitement in Lyme community?"

"FasterCures is an action tank that works to speed and improve the medical research system. 10,000 diseases. 500 treatments. We have work to do."

"BUILDING A FASTER CURE TO EB. By fixing a single mutation, we can change the lives of many. Join us on our venture into cures, your investment will be transformational." Epidermolysis Bullosa is a family of rare genetic disorders that affect the body's largest organ: the skin. Individuals with EB lack critical proteins that bind the skin's two layers together. Without these proteins, the skin tears apart, blisters, and shears off leading to severe pain, disfigurement, and wounds that may never heal.

"CREATE ON YOUR OWN TERMS Start a membership business to develop a direct relationship with your biggest fans and generate predictable, recurring revenue from your creative work."

"The Genomic Kitchen combines genomics, nutrition and culinary skills so you can leverage the power of your genes with food-for a lifetime of great health. The Genomic Kitchen is a system of cooking and eating that directly connects the food you eat with the behavior of your genes. Beyond determining the color of your eyes, genes play an active role throughout life, converting the food you eat into the biochemical reactions that keep you living, breathing and growing"

"Intermittent fasting Metabolic switching and different forms of fasting." Resource suggested by Vicky Newman

"Join us January 23-26, 2020 in San Diego! This educational event is a must-attend for anyone wanting to acquire a wide-range of knowledge and expertise for addressing and managing dietary supplement use."

4 Lessons in Self-Advocacy - Sometimes you have to save your own life.

"our Choices and Information Sharing Smart Patients gives you important choices about controlling your personal information - whom you let see it, how much, and when. We encourage you to make these choices thoughtfully. Your choices include: Whether you want to browse the website anonymously or create an account and provide us your personal information; Whether you want to join Community Discussion relating to a particular condition; How much health or other personal information you want to share with other patients and caregivers through Community Discussion; Whether you want to participate in surveys we may offer from time to time. The nature of the survey and the form in which the results will be disclosed will be explained to you in advance; Whether you want to participate in any other opportunity we may offer to share your health information with others. For example, if we think you have written something in a Community Discussion that would be particularly helpful to others facing the same condition, we may invite you to post an excerpt from your comments on our public website. Any such opportunity would be clearly explained to you in advance, and whether you decide to share your information would be entirely up to you; Discontinuing active participation or closing your account at any time."

Online community

It's hard to tell a complex story. At appointments, you feel pressured to remember what happened and tell your story in the right order. The details are often trapped in old medical records. Especially when visiting a new doctor, it's challenging to tell your whole life story.

"Every patient has a story Medicine used to be a one-size fits all model. Disease X meant treatment Y. Doctors made decisions and patients listened.  Clinical trials were our only data source. But those days are over. Medicine has gotten personal.   Today, we know  that every patient has a unique medical story. The best care requires knowing those stories and the next generation of medical discovery requires compiling those stories into structured data sets.   That's why PicnicHealth works directly with patients to gather and manage complete, up-to-date medical records. That's also why with our PicnicAI platform, we go beyond serving patients directly, and partner with the most innovative Life Sciences companies to sponsor PicnicHealth accounts for groups of research volunteers. Only by putting patients in control of their own data will we move beyond fragmented, unstructured medical records for both individual patient benefit today and for the opportunity to meaningfully contribute to tomorrow's medicine."

"Precise. Personalized. Prevention. Express your best DNA - the power to impact genetic expression is in your hands. Epigenetics is the study of how lifestyle & environment influence the expression of your genes." OUR MISSION is to empower and inspire providers and patients in optimizing genetic potential through precise, personalized protocols that positively impact patients' health and future generations.

"Optimize for Time, Cost, Risk, and Patient Centricity Think of Trials.ai as the best second opinion you've ever had. The result is an optimized trial that ultimately enables a new treatment to reach patients faster- all through the lens of time, cost, and patient centricity powered by our Patient Burden Index™. ‍ Our system also looks for potential pitfalls that might need to be flagged and adjusted. Get feedback about how each decision you make affects:"

"The Four Agreements are: Be Impeccable With Your Word. Don't Take Anything Personally. Don't Make Assumptions. Always Do Your Best."

Koolulam mass singing event at Tower of David Museum joins disparate voices in a show of unity coinciding with the Muslim holiday of Eid al-Fitr.

"In this podcast, IFM's Director of Medical Education, Dan Lukaczer, ND, interviews researcher, educator, and clinician David Rakel, MD, on the power of empathy, compassion, the placebo effect, and the patient story. In particular, they explore how empathy and sympathy can lead to burnout, while compassion can be restorative." shared by Vicky Newman

"NAD+ is essential to the creation of energy in the body and the regulation of pivotal cellular processes. Here's why it's so important, how it was discovered, and how you can get more of it."