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Roger Holt

Prenatal Surgery Shows Promise For Spina Bifida - Disability Scoop - 0 views

  • Researchers found for the first time that children with spina bifida are more likely to walk and less likely to have neurological difficulties when surgery is done in the womb rather than after birth.
Sierra Boehm

The Charles Campbell Children's Camp - Red Lodge - July 14-19, 2013 - 0 views

  •  
    Register for this event or volunteer to be a counselor

    What:
    The wonders of nature, friendship, and fun with a theme. Special times for special kids are what we are about. If you have or know of a physically challenged child who might enjoy a camp experience contact us. Physical disabilities including but not limited to; sight or hearing impairment, cerebral palsy, spina bifida, amputee, gross motor skill impairments, and other disabilities. They don't stop kids from enjoying their time at camp in the beautiful Beartooth Mountains. Charles Campbell Children's Camp campers enjoy fishing, hiking, swimming, games, dances, campfires, singing, family style living and dining, and the call of the great outdoors.

    When:
    July 14-19, 2013 (counselor training on July 13)

    Where:
    Lions Camp outside of Red Lodge, Montana

    Cost:
    Free of charge

    Contact:
    Gary Van Dyke - 406-860-2039 or Sue Hanson - 406-670-2496
danny hagfeldt

Episode 2: CDC's Life Course Model for Children and Young Adults With Chronic Condition... - 0 views

  • Reserve your spot here!What:This webinar will focus on CDC's Life Course Model and public health approach for rare and complex disabling conditions, such as fragile X syndrome, muscular dystrophy and spina bifida.  Panelists will provide an overview of childhood-onset conditions, discuss current approaches to data collection, and describe how CDC incorporates a life course approach into its work.When: Tuesday, November 29, 20112:00 PM - 3:00 PM MT
Roger Holt

Teen Masters Double Back Flip In Wheelchair - Disability Scoop - 0 views

  • Spina bifida isn’t stopping Aaron Fotheringham who recently became the first person to do a double back flip in a wheelchair.
  • Spina bifida isn’t stopping Aaron Fotheringham who recently became the first person to do a double back flip in a wheelchair.
Roger Holt

Rolling Dance Chair a step toward freedom of movement for people with disabilities | Li... - 0 views

  • Morris is a dance professor at the University of South Florida, and more recently, an inventor. She was introducing kids with spina bifida and cerebral palsy to a chair she dreamed up. On this weekend in their class, the chair would let them dance. Not pretend to dance, not be pulled by a dancer, but actually dance.
Roger Holt

Travel With a Disability - Spina Bifida Association - 0 views

  • With a little research, an assertive attitude and an adventurous spirit, backed up with knowledge of personal rights for the disabled, travel is becoming accessible to everyone.
Roger Holt

The Challenges After Surviving a Childhood Disease - WSJ - 0 views

  • Some novel programs are addressing a growing gap in health care: helping the millions of survivors of serious childhood diseases find treatment when they grow up. Thanks to medical advances, there are a growing number of survivors of childhood cancers as well as patients living longer with diseases like cystic fibrosis and spina bifida. More children have diseases like diabetes and asthma that will follow them into adulthood. Nearly 25% of children have at least one of a list of 18 chronic conditions, according to federal survey data.
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