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Current government rules do too little to protect the privacy of people's personal health information and also hinder the use of health data in medical research, a panel of experts reported on Wednesday. A committee of the Institute of Medicine, which provides advice to U.S. policymakers, urged Congress to take an entirely new approach to protecting personal health data in research. Federal standards for protecting privacy of personal health data under the Health Insurance Portability and Accountability Act of 1996, or HIPAA, are not doing the job, the panel said. Congress and the Obama administration are planning major changes this year to the U.S. health care system. Regarding the privacy rules, Congress should either start from scratch or thoroughly overall HIPAA's privacy provisions, the panel said. Better data security is needed, with greater use of encryption and other security techniques, the panel said. Encryption should be required for laptops, flash drives and other devices containing such data, it said. "Both privacy and health research are important. And we feel that we can strengthen privacy protections for people who participate in research while also allowing important research to proceed without unnecessary impediments," Dr. Bernard Lo of the University of California San Francisco, a member of the panel, told reporters. HIPAA governs how personally identifiable health information can be used and disclosed by health plans, health care providers and others. The intention is to protect personal health information while permitting the flow of information for health-related research and medical care. Lo said HIPAA has burdensome and confusing procedures for people to consent to have their health data used in medical research, dissuading people from taking part in such research.

Traditionally, we trust doctors with confidential information about our health in the knowledge that it�s in our own interests. Similarly, few patients object to the idea that such information may be used in some form for medical research. But what happens when this process is subject to scrutiny?How explicit does our consent have to be? Since the introduction of the Data Protection Act 1998 medical researchers have raised concerns over the increasing barriers they face to accessing patient data.These concerns have heightened amongst some researchers since the passing of the Human Tissue Act 2004 introduced in the wake of the Alder Hey and Bristol Royal Infirmary scandals. When scientific advances are unraveling the secrets of DNA and the decoding of the human genome has opened up substantial new research opportunities.Clinical scientists and epidemiologists argue that the requirements being placed upon them are disproportionate to the use they are making of either datasets or tissues samples and, besides, their work is in the public interest.At the heart of the debate lie key questions over trust and consent and how these can best be resolved.To complicate things, it is no longer just medical researchers, but also public health bureaucrats who are keen to have access to our data.Quasi-official bodies have been charged with persuading individuals to change their behaviour and lifestyles in connection with all manner of issues such as diet, exercise, smoking and alcohol consumption.Social Marketing � the borrowing of commercial marketing techniques in the pursuit of 'public goods' � is in vogue amongst public health officials. Empowered by advanced data collection and computing techniques, armed with the latest epidemiological research, and emboldened by a mission to change unhealthy behaviour, public health officials are keen to target their messages to specific 'market segments' in most need of advice.Are government researchers abusing patients' trust? Can an

Government Information Security Podcasts Credit Eligible As a GovInfoSecurity.com annual member, this content can be used toward your membership credits and transcript tracking. Click For More Info Heartland Breach -- What it Means to Banking Institutions: James Van Dyke, Javelin Strategy & Research January 29, 2009 The Heartland Payment Systems data breach - it's the first major security incident of 2009. But how big is it really? What are the key takeaways for banking institutions left explaining this breach to their customers? In an exclusive interview, James Van Dyke, Founder and President of Javelin Strategy & Research, discusses the implications of the Heartland case, offering insight on: Conclusions we can draw from the Heartland breach; How banking institutions should communicate with their customers; Vulnerabilities we should watch to avoid the next big breach. Van Dyke is founder and president of Javelin Strategy & Research. Javelin is the leading provider of independent, quantitative and qualitative research for payments, multi-channel financial services, security and fraud initiatives. Javelin's clients include the largest financial institutions, card issuers and technology vendors in the industry.

A year ago, we talked about reaching for Terabit Ethernet, the next power-of-10 increase in speed over the state of the art today. Now, researchers have demonstrated one way to do that. In a paper published in the Feb. 16 edition of Optics Express, the researchers detail their approach for de-multiplexing signals at high speeds, claiming that they were able to achieve 640Gbps over fiber-optic lines with no errors. The material they used in the chip is chalcogenide, and Australian researchers were talking about the high-speed networking possibilities of the material last summer. Calling it "just a piece of scratched glass," they said it could potentially be cheap to produce.

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When ethical hackers track down computer criminals, do they risk prosecution themselves? Security researchers at this week's Usenix conference in Boston believe this is a danger, and that ethical hackers have to develop a uniform code of ethics for themselves before the federal government decides to take action on its own. One such researcher introduced himself by saying "Hi, I'm Dave Dittrich, and I'm a computer criminal." Dittrich, senior security engineer and researcher at the University of Washington's Information School, has not been unlucky enough to be prosecuted. But ten years ago, he took actions to disrupt distributed denial-of-service attacks which he says could have been construed as criminal, he says. Working within the University of Washington Network, Dittrich says he "copied files from one host in Canada that was caching malicious software and logs of compromised hosts," allowing him to gain a fuller understanding of the nascent distributed denial-of-service tools, and to inform the operators of infected Web sites that a problem existed.

As your day ticks by, it seems that everything you do can leave a data trail. From your purchases online to the resumes you post, to health care transactions made with your insurance cards, you probably are exposing your own personal data to possible snooping, fraud, or identify theft. "Having so much sensitive information available makes it even more difficult for other organizations to release information that is effectively anonymous," says Latanya Sweeney, associate professor of computer science, technology and policy, and director of Carnegie Mellon's Data Privacy Lab. Sweeney demonstrated that birth date, gender and 5-digit ZIP code is enough to identify 87 percent of people in the U.S. One year ago, Sweeney started to pull together a group of faculty who were looking at issues relating to privacy and security, and working toward possible solutions. In the Internet age, few areas of our private lives-and what U.S. Supreme Court Justice Louis Brandeis called "the right to be left alone"- remain untouched by technology. Lorrie Cranor, associate research professor in the School of Computer Science, and director of Carnegie Mellon's Usable Privacy and Security Laboratory, describes Carnegie Mellon as "the place to be for privacy research." She explains, "There's a concentration of researchers and experts here that you just don't find at any other university." So how do these Carnegie Mellon experts suggest you protect yourself when you find the information technology that drives your everyday life to be more sophisticated than you are? Here is a sample of some of their creative solutions-your wake-up call for keeping your data "self" both private and secure.

Is it a violation of privacy that should be banned or a tool necessary to keep the internet running? Canada's privacy commissioner has opened an online discussion on deep packet inspection, a technology that allows internet service providers and other organizations to intercept and examine packets of information as they are being sent over the internet. "We realized about a year ago that technologies involving network management were increasingly affecting how personal information of Canadians was being handled," said Colin McKay, director of research, education and outreach for the commissioner's office. The office decided to research those technologies, especially after receiving several complaints, and realized it was an opportunity to inform Canadians about the privacy implications. Over the weekend, the privacy commissioner launched a website where the public can discuss a series of essays on the technology written by 14 experts. The experts range from the privacy officer of a deep-packet inspection service vendor to technology law and internet security researchers. The website also offers an overview of the technology, which it describes as having the potential to provide "widespread access to vast amounts of personal information sent over the internet" for uses such as: * Targeted advertising based on users' behaviour. * Scanning for unlawful content such as copyright or obscene materials. * Intercepting data as part of surveillance for national security and crime investigations. * Monitoring traffic to measure network performance.

Government Information Security Podcasts As a GovInfoSecurity.com annual member, this content can be used toward your membership credits and transcript tracking. Click For More Info Insights on the Insider Threat: Randy Trzeciak of Carnegie Mellon's CERT February 25, 2009 We all know the risk of the insider threat is high, but what are the specific vulnerabilities for which organizations should be particularly vigilant? In an exclusive interview, Randy Trzeciak of Carnegie Mellon's CERT program discusses recent insider threat research, including: Patterns and trends of insider crimes; Motives and means displayed in real insider cases; What employers and staffs can do to prevent and detect crimes. Trzeciak is currently a Senior Member of the Technical Staff for the Threat and Incident Management Team in the CERT Program at Carnegie Mellon University's Software Engineering Institute. He is a member of a team in CERT focusing on insider threat research, including insider threat studies being conducted with the US Secret Service National Threat Assessment Center, DOD's Personnel Security Research Center (PERSEREC), and Carnegie Mellon's CyLab.

PCI - better than nothing, but still vastly inadequate. - Karl The Heartland Payment Systems and Network Solutions data breaches have thrust the Payment Card Industry Data Security Standard (PCI DSS) into the spotlight, raising the question: Does PCI compliance help in the fight against fraud? David Taylor, founder of PCI Knowledge Base, recently administered new research on PCI compliance, and in an exclusive interview he discusses: Goods news - and not-so-good-news - about PCI compliance; Unique PCI challenges for merchants and banking institutions alike; What needs to be done to raise awareness of PCI compliance. Taylor founded the PCI Knowledge Base and before that the PCI Alliance. He worked with many leading edge companies as an analyst for Gartner for 14 years. The PCI Knowledge Base is a research community that shares information and knowledge to help merchants, banks and other organizations achieve PCI compliance.

The Heartland Payment Systems and Network Solutions data breaches have thrust the Payment Card Industry Data Security Standard (PCI DSS) into the spotlight, raising the question: Does PCI compliance help in the fight against fraud? David Taylor, founder of PCI Knowledge Base, recently administered new research on PCI compliance, and in an exclusive interview he discusses: Goods news - and not-so-good-news - about PCI compliance; Unique PCI challenges for merchants and banking institutions alike; What needs to be done to raise awareness of PCI compliance. Taylor founded the PCI Knowledge Base and before that the PCI Alliance. He worked with many leading edge companies as an analyst for Gartner for 14 years. The PCI Knowledge Base is a research community that shares information and knowledge to help merchants, banks and other organizations achieve PCI compliance.

"If you live in Texas, your medical records are definitely up for sale by the state. If you live anywhere else in the United States, they probably are for sale there, too. Medical health records provide key information to researchers, who have lobbied hard to keep them accessible, despite government concerns about the privacy of patient data. The controversy dates back to 1996, when Congress passed the Health Insurance Portability and Accountability Act (HIPAA) to protect patients. "Researchers have very broad access rights to health care records under HIPAA," says Pam Dixon, director of a non-profit called the World Privacy Forum "The rules are pretty loose, and there are a lot of ways to get around them." That's especially true since the act wasn't designed to cover common scenarios today: records stored online in a vast, hackable cloud. In the rush to digitize all electronic health records, Dixon says not everyone is taking the proper steps to de-personalize the data and protect patients."

Web sites that strip personally identifiable information about their users and then share that data may be compromising their users' privacy, according to researchers at the University of Texas at Austin. They took a close look at the way anonymous data can be analyzed and have come to some troubling conclusions. In a paper set to be delivered at an upcoming security conference, they showed how they were able to map out the connections on public social networks such as Twitter and Flickr. They were then able to identify people who were on both networks by looking at the many connections surrounding their network of friends. The technique isn't 100 percent effective, but it may make some users uncomfortable about whether they should allow their data to be shared in an anonymous format. Web site operators often share data about users with partners and advertisers after stripping it of any personally identifiable information such as names, addresses or birth dates. Arvind Narayanan and fellow researcher Vitaly Shmatikov found that by analyzing these "anonymized" data sets, they could identify Flickr users who were also on Twitter about two-thirds of the time, depending on how much information they have to work with. "A lot of the time people will share information online and they'll expect that they are anonymous," Narayanan said in an interview. But if their identity can be ascertained on one social network, its possible to find out who they are on some other network, or at least make a "strong guess," he said.

But what do consumers think about behavioral advertising? Our research uncovered a variety of consumer privacy perspectives on behavioral advertising, some expected, some, surprising. Here are my five, high-level research takeaways: 1. In the absence of education, consumers assume the worst

"A new report from Javelin Strategy and Research suggests that many credit and debit card holders fail to understand the importance of a notice saying that a credit card or debit card has been breached and do not protect themselves from fraud. The company's research found that people notified of a breach of their secure data were four times as likely as the public at large of actually experiencing financial or other fraud within a year of the notification. Further, those who experienced a breach in their secure data and then an incident of fraud very rarely link the fraud to the breach. "Among consumers who received a data breach notification in the past 12 months, 19% suffered fraud, yet only 2% attributed their fraud to a data breach, the firm reported. "It seems as if consumers are not connecting the dots on data breach notifications to fraud events. They are aware, in the abstract, some personal records of theirs have been compromised, but when they become a victim of fraud they do not make the connection to the breach notification.""

"A new proof-of-concept (PoC) application enables an attacker to remotely activate a BlackBerry microphone and listen in on surrounding sounds and conversations. The application, called PhoneSnoop, was released last week on the blog of security researcher Sheran Gunasekera. To download and install the application, an attacker would need physical access to a BlackBerry device and to know a PIN, if the owner uses one to lock his or her device. After PhoneSnoop is installed on a device, when a call is received from a preconfigured number, the BlackBerry automatically answers the phone, allowing an attacker to listen in, Marc Fossi, senior researcher at Symantec Security Response told SCMagazineUS.com on Thursday. Once the call is connected, the BlackBerry is set to speakerphone, increasing the microphone's sensitivity to pick up sound from far distances. "First and foremost, the most important thing about this is it's a proof of concept, Fossi said. "It's not something you need to worry about right now.""

In a study that is unlikely to find favor among privacy advocates, researchers from two academic institutions warned that increased efforts to protect the privacy of health data will hamper the adoption of electronic medical records systems. The study, conducted by researchers at MIT and the University of Virginia, said EMR adoption is often slowest in states with strong regulations for safeguarding the privacy of medical records. On average, the number of hospitals deploying EMR systems was up to 30% lower in states where health care providers are forced to comply with strong privacy laws than it was in states with less stringent privacy requirements. That's because privacy rules often made it harder and more expensive for hospitals to exchange and transfer patient information, thereby reducing the value of an EMR system, the study found.

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Laws in Canada and other countries are increasingly helping technology force people to identify themselves where they never had to before, threatening privacy that allows people to function effectively in society, a new study has found. "What we're starting to see is a move toward making people more and more identifiable," University of Ottawa law professor Ian Kerr said Wednesday. His comments followed the launch of Lessons from the Identity Trail: Anonymity, Privacy and Identity in a Networked Society, a book summing up the study's findings, at a public reading in downtown Ottawa hosted jointly with the Privacy Commissioner of Canada. Kerr led the study with University of Ottawa criminology professor Valerie Steeves. They collaborated with 35 other researchers in Canada, the U.S., the U.K., the Netherlands and Italy. The researchers reported that governments are choosing laws that require people to identify themselves and are lowering judicial thresholds defining when identity information must be disclosed to law enforcement officials. That is allowing the wider use of new technologies capable of making people identifiable, including smartcards, security cameras, GPS, tracking cookies and DNA sequencing. Consequently, governments and corporations are able to do things like: * Embrace technologies such as radio frequency identification tags that can be used to track people and merchandise to analyze behaviour. * Boost video surveillance in public places. * Pressure companies such as internet service providers to collect and maintain records of identification information about their customers. While Canada, the U.K., the Netherlands and Italy all have national laws protecting privacy - that is, laws that allow citizens to control access to their personal data - such legal protection does not exist for anonymity, Kerr said. "Canada is quite similar [to other countries] with respect to anonymity. Namely, it's shrinking here just as it is there.

A leading technology advisor to President Obama said in a research note for his investment firm today that privacy and net neutrality will be among the biggest telecommunications issues facing the Federal Communications Commission and the administration going forward. Analyst Blair Levin, who was the co-lead of Obama's technology and innovation team along with nominated FCC Chair Julius Genachowski, wrote in a Stifel Nicolaus research note that the economic crisis and change of administration will shift the focus of telecom policy away from traditional phone companies to "Internet/edge" players. Indeed, Google and other Web video and voice companies like Skype have been increasingly active in recent years at the FCC, pushing particularly for net neutrality rules that would prevent carriers from blocking or charging more for certain content that travels over the Web. Levin said in a note that net neutrality will emerge again as an issue in the new administration for wireless networks. On the other hand, there won't likely be a push for new net neutrality rules for cable, DSL, and fiber network carriers at the FCC. "(There is a) consensus emerging that disputes about whether a wireline network management tool is 'reasonable' (or is actually blocking or degrading traffic) to be resolved on a case-by-case basis," Levin wrote in the note with analysts Rebecca Arbogast and David Kaut. It would be a tough climb to impose rules that force wireless carriers to open their networks. Apple and AT&T successfully argued to lawmakers and regulators to keep their exclusive iPhone contract. Skype's petition to the FCC to force carriers to allow any handset or software to operate on any network was shot down by former FCC Chairman Kevin Martin. He said the biggest "sleeper" issue will be privacy. With a major overhaul of healthcare records to the Web, the rise in behavioral advertising and cloud computing, where information is stored in computers strung across many geographies

The federal government has a key role to play in researching and organizing a national response to the problem of medical identity theft, authors of a government-funded study have concluded. Patients, providers, payers and other members of the healthcare community also must join in the effort to combat a problem that is serious, although as yet its scope is not fully known, the report stated. Contractor Booz Allen Hamilton released the report last week. It represents the final phase of the $450,000 study funded last year by the Office of the National Coordinator at HHS. The study consisted of three parts, the first being to review existing knowledge about medical identity theft as well as policies and practices to prevent it. Those findings were included in a research paper on the subject released last October. The second phase involved a public meeting Oct. 15, 2008, the same day the paper was released, to "open a dialogue about medical identity theft within the healthcare industry. The final phase, the 26-page report, includes 31 "potential actions," which are recommendations that could form a national policy on medical identity theft. While medical identity theft "may be categorized as healthcare fraud," according to the report, "there are unique and important distinctions of medical identity theft that need to become more commonly understood to address this issue effectively." One difference, the report authors noted, is that the primary motive behind healthcare fraud "is most often monetary gain, such as when fraudulent providers bill for more expensive services than those rendered. However, medical identity theft tends to be focused on the use of someone else's information to gain goods, services and healthcare." IT could hurt, help Therefore, undetected medical identity theft poses medical risks to its victims, since their medical records may contain inaccurate and potentially harmful information that may cause them not to be con

The software vendor's commissioned research will be revealed during a panel discussion with leaders from the California Office of Privacy Protection, Intel, and MySpace. Wednesday, Jan. 28, 2009, is Data Privacy Day, and to mark the occasion, Microsoft is participating in a panel discussion in San Francisco with privacy experts from the California Office of Privacy Protection, the Center for Democracy and Technology, Intel (NSDQ: INTC), and MySpace. Better this week than last, when Heartland Payment Systems and Monster.com disclosed major malware-driven data breaches that promise privacy headaches or worse for affected account holders. It is such incidents that worry Peter Cullen, Microsoft (NSDQ: MSFT)'s chief privacy strategist, because of the impact they can have on consumer trust. "Trust is becoming increasingly important," he said. That's why Data Privacy Day exists. Microsoft and other organizations recognize that without trust, the online economy only gets worse for everyone. Cullen explained that Data Privacy Day represents a global opportunity for organizations and individuals to come together to discuss how to better educate consumers about data privacy issues. One way to advance the discussion, Cullen said, was to commission some research, which Microsoft did in two cities, in California and Texas. "We wanted to understand how different segments of consumers, from teens to professionals to boomers, thought about privacy," he said. "There were some rather interesting results that came out of this." "Our hypothesis is that across these three segments, there would be different ways of thinking about these things," said Cullen. "We were really surprised to learn there's a large degree of similarity in the way people think about privacy."

During the past decade, rapid developments in information and communications technology have transformed key social, commercial, and political realities. Within that same time period, working at something less than Internet speed, much of the academic and policy debate arising from these new and emerging technologies has been fragmented. There have been few examples of interdisciplinary dialogue about the importance and impact of anonymity and privacy in a networked society. Lessons from the Identity Trail: Anonymity, Privacy and Identity in a Networked Society fills that gap, and examines key questions about anonymity, privacy, and identity in an environment that increasingly automates the collection of personal information and relies upon surveillance to promote private and public sector goals. This book has been informed by the results of a multi-million dollar research project that has brought together a distinguished array of philosophers, ethicists, feminists, cognitive scientists, lawyers, cryptographers, engineers, policy analysts, government policy makers, and privacy experts. Working collaboratively over a four-year period and participating in an iterative process designed to maximize the potential for interdisciplinary discussion and feedback through a series of workshops and peer review, the authors have integrated crucial public policy themes with the most recent research outcomes. The book is available for download under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 Canada License by chapter below. Hard copies are available for purchase at Amazon & at Oxford University Press.