Skip to main content

Home/ CIPP Information Privacy & Security News/ Group items tagged Donor

Rss Feed Group items tagged

Karl Wabst

Who's Your Daddy?: Children of sperm donors are seeking more information about their on... - 0 views

  •  
    Eight years ago, a woman we'll call Sarah discovered that she was not biologically related to the father she had known all her life. Sarah, her mother revealed, was "donor-conceived." Her parents, after trying without success for a pregnancy of their own in the late 1970s, turned to a fertility center, where Sarah's mother was artificially inseminated with sperm from an anonymous donor. At the time sperm banks did not offer detailed donor profiles. Upon discovering the truth, Sarah was told what her parents had been told about her biological father: He was a medical student, possibly of Scandinavian ancestry. Sarah, who describes her family as "loving and stable," was shocked. Today she is also sick. A year before finding out about her conception, she began to experience severe, unexplained bladder problems. She has been seeing doctors at Johns Hopkins; so far they haven't figured out the cause. Recently married, Sarah worries that she may pass the illness on to future children. The medical history of her biological father could provide a crucial piece of the diagnostic puzzle. But in the early days of artificial insemination, clinics often shredded or burned files to ensure donor anonymity and client privacy. Sarah's father's identity may be locked away in storage somewhere, or it may have been destroyed. Although aware of the likely futility of her search, Sarah still continues-writing the clinic, nurses, her doctor-in the hope that someone can help. Faced with stories like this, the fertility industry and a few state governments are trying to come up with a way to ensure that future donor-conceived children will have access to their fathers' medical files. A national registry, for example, could allow banks to monitor how many times a man donates semen and how many children are born from his seed, to share updates about medical issues and to facilitate long-term research on health outcomes. But any such registry poses a threat to the p
Karl Wabst

When Mashups Intrude on Privacy - 0 views

  •  
    Prop 8 maps, a mashup of Google Maps and Prop 8 Donors, shows the names of those who contributed money to the passage of California's Proposition 8, which prohibits same-sex marriage. The mashup also shows the streets where these people live. This kind of mashup is useful, but to some, it's also intrusive and scary. While these contribution records are public record, the idea that your name and mapped street are online could be considered unnecessarily invasive. The mashup offers great information, but is the backlash and privacy invasion worth it? This particular mashup, while not on a news site, raises questions about when and how journalists should use this type of online application.
Karl Wabst

15 workers fired for accessing octuplet mom's file - San Jose Mercury News - 0 views

  •  
    LOS ANGELES-Fifteen hospital workers have been fired and another eight disciplined for looking at medical records of octuplet mother Nadya Suleman without permission, hospital officials said Monday. Kaiser Permanente reported the violations of health care privacy laws to the state and has warned employees at its Bellflower facility to keep away from Suleman's records unless they have a medical purpose, said hospital spokesman Jim Anderson. "Despite the notoriety of this case, to us this person is a patient who deserves the privacy that all our patients get," Anderson told The Associated Press. Anderson would not elaborate on how the other eight employees were reprimanded, saying only that the punishments were significant. A similar privacy breach at UCLA hospitals led to celebrities' medical information getting leaked to tabloids in recent years, including details of Farrah Fawcett's cancer treatment showing up in the National Enquirer. Anderson said Kaiser does not believe any of Suleman's information was shared with the media, based on the results of their inquiry. The 33-year-old single mother of 14 gave birth to her octuplets on Jan. 26 at Kaiser's hospital in Bellflower, about 17 miles southeast of Los Angeles. Her attorney Jeff Czech said Suleman does not plan to file a lawsuit, though he suspects Kaiser employees were looking for medical information on Suleman's sperm donor. He said the name is not listed on the Advertisement medical records. "She trusts Kaiser and they said they'd look into it," Czech said. "We feel that they're on top of it and are taking care of it." Anderson could not provide details about when Suleman's medical records were accessed and by what kind of hospital employee. He said Kaiser had warned its employees about patient confidentiality rules before Suleman checked into the hospital in December. "Even though no one knew she was there, they knew she was going to have a lot of babies," Anderson said. "The extra monitoring he
Karl Wabst

The Columbus Dispatch : Secrecy 101 - 0 views

  •  
    Across the country, many major-college athletic departments keep their NCAA troubles secret behind a thick veil of black ink or Wite-Out. Alabama.Cincinnati. Florida. Florida State. Ohio State. Oklahoma. Oregon State. Utah. They all censor information in the name of student privacy, invoking a 35-year-old federal law whose author says it has been twisted and misused by the universities. Former U.S. Sen. James L. Buckley said it's time for Congress to rein in the Family Educational Rights and Privacy Act, which he crafted to keep academic records from public view. A six-month Dispatch investigation found that FERPA, as it's commonly called, is a law with many conflicting interpretations. And that makes it virtually impossible to decipher what is going on inside a $5 billion college-sports world that is funded by fans, donors, alumni, television networks and, at most schools, taxpayers.
Karl Wabst

Smart Money: Is Your Favorite Charity Spying on You? - WSJ.com - 0 views

  •  
    "Whether a patient comes in for a gall-bladder operation or to have a baby, the routine remains the same for staff at Sharp HealthCare hospitals in San Diego. The front desk checks insurance records to make sure the bills get paid on time. Nurses take vitals and tag their charges with a bar-coded wristband. And behind the scenes, fund-raisers scan the assets of each patient -- to find out whether they're "megarich," "wealthy" or merely "comfortable.""
  •  
    Is that a microscope following me around? Must get more tin foil to keep them from seeing my thoughts.
1 - 5 of 5
Showing 20 items per page