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Malcolm McRoberts

Disease registry - Wikipedia, the free encyclopedia - 0 views

  • Disease or patient registries are collections of secondary data related to patients with a specific diagnosis, condition, or procedure
  • from simple spreadsheets that only can be accessed by a small group of physicians to very complex databases that are accessed online across multiple institutions.
  • An electronic medical record keeps track of all the patients a doctor follows but a registry only keeps track of a small sub population of patients with a specific condition.
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  • Many of measures tracked are based on Evidence-based medicine and are defined and standardized by national organizations like the NCQA
  • Experts say that the United States wastes billions of dollars annually on medical treatments which may not work. But the financial and human consequences are also large when evidence exists but is not collected."
  • A few medical organizations here, like Kaiser Permanente, operate their own registries to good effect
  • The cost-effectiveness of a disease registry is related with the cost-effectiveness of prevention of specific medical conditions. Increasing compliance through a registry with preventive measures like children vaccination or colonoscopy screening can actually be a cost-saving measure
  • Registries can be associated with pay-for-performance (P4P) quality based contracts for individual doctors, groups of doctors
  • Medicare also started a 1.5% P4P contract based on health measures that can be tracked by disease registries
Malcolm McRoberts

Metadata registry - Wikipedia, the free encyclopedia - 0 views

  • Common characteristics of a metadata registry A metadata registry typically has the following characteristics: Protected environment where only authorized individuals may make changes Stores data elements that include both semantics and representations Semantic areas of a metadata registry contain the meaning of a data element with precise definitions Representational areas of a metadata registry define how the data is represented in a specific format, such as in a database or a structured file format (e.g., XML)
  • ISO 11179
  • A metadata registry is a central location in an organization where metadata definitions are stored and maintained in a controlled method.
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  • Metadata registries are used whenever data must be used consistently within an organization or group of organizations
  • Organizations that need consistent definitions of data across time, between databases, between organizations or between processes, for example when an organization builds a data warehouse
Malcolm McRoberts

Physician Quality Reporting System - Centers for Medicare & Medicaid Services - 0 views

  • rting System  >  Physician Quality Reporting System Physician Quality Reporting System Spotlight How To Get Started CMS Sponsored Calls Statute Regulations Program Instructions ICD-10 Section Measures Codes Registry Reporting Electronic Health Record Reporting CMS-Certified Survey Vendor Qualified Clinical Data Registry Reporting Group Practice Reporting Option GPRO Web Interface Maintenance of Certification Program Incentive Analysis and Payment Payment Adjustment Information Educational Resources Help Desk Support 2011 Physician Quality Reporting System 2012 Physician Quality Reporting System 2013 Physician Quality Reporting System Physician Quality Reporting System Physician Quality Reporting System (Physician Quality Reporting or PQRS) formerly known as the Physician Quality Reporting Initiative (PQRI)
Malcolm McRoberts

Data steward - Wikipedia, the free encyclopedia - 0 views

  • In metadata, a data steward is a person that is responsible for maintaining a data element in a metadata registry. A data steward may share some responsibilities with a data custodian.
  • The Data Warehouse Lifecycle Toolkit, by Ralph Kimball et. el., Wiley, 1998, also briefly mentions the role of data steward in the context of data warehouse project management on page 70.
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