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Malcolm McRoberts

Disease registry - Wikipedia, the free encyclopedia - 0 views

en.wikipedia.org/...Disease_registry

disease registry

shared by Malcolm McRoberts on 27 Feb 14 - No Cached
  • Disease or patient registries are collections of secondary data related to patients with a specific diagnosis, condition, or procedure
  • from simple spreadsheets that only can be accessed by a small group of physicians to very complex databases that are accessed online across multiple institutions.
  • An electronic medical record keeps track of all the patients a doctor follows but a registry only keeps track of a small sub population of patients with a specific condition.
  • ...6 more annotations...
  • Many of measures tracked are based on Evidence-based medicine and are defined and standardized by national organizations like the NCQA
  • Experts say that the United States wastes billions of dollars annually on medical treatments which may not work. But the financial and human consequences are also large when evidence exists but is not collected."
  • A few medical organizations here, like Kaiser Permanente, operate their own registries to good effect
  • The cost-effectiveness of a disease registry is related with the cost-effectiveness of prevention of specific medical conditions. Increasing compliance through a registry with preventive measures like children vaccination or colonoscopy screening can actually be a cost-saving measure
  • Registries can be associated with pay-for-performance (P4P) quality based contracts for individual doctors, groups of doctors
  • Medicare also started a 1.5% P4P contract based on health measures that can be tracked by disease registries
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