CODI -Directories - has the membership list of the President's Committee on Employment of People with Disabilities, two RCEP II directories (CAPs and ILCs) and a national list of support organizations compiled by the IBM Special Needs Information Referral Center.
PubMed Abstract of study by Pediatric Clinic, Mersin University School of Medicine Research and Administration Hospital, Turkey - Difficulties experienced by families with disabled children
PubMed Abstract of N. Ireland Study, School of Nursing, assessign the impact on mothers of bringing up a child with intellectual disabilities: a cross-cultural study
PEDIATRICS - Official Journal of the American Academy of Pediatrics Article Abstract: The Health and Well-Being of Caregivers of children with Cerebral Palsy - 2005 Canadian study
PubMed Abstract of Arizona State University Sutdy: Mothers and Fathers Together: Contrast in Parenting Across Preschool to EarlySchool Age in Children with Developmental Disabilities
PubMed Abstract of Arizona Study assessing Resilience and the course of daily parenting stress in families of young children with intellectual disabilities
PubMed Abstract 2006 study, Boston college, MA, examines the contribution of the marital relationship to the well being of both mothers and fathers of children with developmental disabilities.
The Center on the Social and Emotional Foundations for Early Learning (CSEFEL) has published a new Family Tool to help family members and caregivers understand what self-help skills can be expected from young children and to provide tips for helping
children learn how to become more independent with daily routines. It is available online.
The Association of Maternal and Child Health Programs is a national resource, partner and advocate for state public health leaders and others working to improve the health of women, children, youth and families, including those with special health care needs.
"Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through our national network, we provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care.
The Administration for Children and Families (ACF), within the Department of Health and Human Services (HHS) is responsible for federal programs that promote the economic and social well-being of families, children, individuals, and communities. ACF programs aim to achieve the following: *families and individuals empowered to increase their own economic independence and productivity;
*strong, healthy, supportive communities that have a positive impact on the quality of life and the development of children;
*partnerships with individuals, front-line service providers, communities, American Indian tribes, Native communities, states, and Congress that enable solutions which transcend traditional agency boundaries; *services planned, reformed, and integrated to improve needed access;*and a strong commitment to working with people with developmental disabilities, refugees, and migrants to address their needs, strengths, and abilities.
"The mission of the American Music Therapy Association is to advance public awareness of the benefits of music therapy and increase access to quality music therapy services in a rapidly changing world
"The primary purpose of this tool is to provide names, addresses, and contact information for suppliers that provide services or products under the Medicare program.
"Welcome to the Long-Term Care Planning tool. The primary goal of this tool is to help you understand:What long-term care services are available, How much you can expect to pay for long-term care, and
What financing options are available to support your long-term care costs.
The results of the Long-Term Care Planning tool are general in nature and not
intended to replace comprehensive financial and other long-term personal
planning.
This tool will ask between twelve and twenty questions and will then provide
you with the long-term care results you need by comparing your answers to those
of individuals with similar profiles."
PubMed Abstract: OBJECTIVES: To thoroughly examine the literature dealing with life expectancy in children with cerebral palsy and mental retardation. This review paper comprehensively reviews the literature relating to survival in children with cerebral palsy and developmental disability. CONCLUSIONS: Literature review definitively shows that children with CP and DD have a diminished life expectancy, which can be assessed based on simple clinical examination findings.
