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The Friedreich's Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to curing Friedrech's ataxia (FA) through research. FARA grants and activities provide support for basic and translational FA research, pharmaceutical/ biotech drug development, clinical trials, and scientific conferences. FARA also serves as a catalyst, between the public and scientific community, to create worldwide exchanges of information that drive medical advances.

Provides the information and tools parents need to understand the uniqueness of children and to enable them to help each child develop into the successful human being they were meant to be. Our mission is to help parents develop a positive parenting style that leads to a family where parents and children can listen to each other, support each other and have fun playing and enjoying family activities.

Family Caregiver Alliance was the first community-based nonprofit organization in the country to address the needs of families and friends providing long-term care at home. Long recognized as a pioneer in health services, FCA now offers programs at national, state and local levels to support and sustain caregivers.\n

"Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through our national network, we provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care.

Medicare.gov - Caregiver Information and Resources

ISAAC supports and encourages the best possible communication methods for people who find communication difficult.

Public, nonprofit multidisciplinary rehabilitation center operated by the county of Los Angeles, and located in Downey, California, ten miles southeast of downtown Los Angeles. The Rehabilitation Engineering Program (REP) is grant supported and is located on the grounds of Rancho.

Helps seriously ill children and their families cope with their pain, fear and isolation through entertainment, education and family activities. Dedicated to improving the quality of life for children with chronic and life-threatening illnesses and life-altering injuries by providing entertainment, education and family activities that help them cope with the pain, fear and isolation of prolonged illness.

Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web.WE MOVE is a not-for-profit organization that utilizes creativity, innovation, and collaborative approaches to improve awareness, diagnosis, and management of movement disorders among people living with these conditions and the professionals who care for them. Educational Programs and Resources for Professionals

Enabled Online offers information and stories involving issues that affect people with disabilites

Welcome to Scope the disability organization in England and Wales whose focus is people with Cerebral Palsy. Our aim is that disabled people achieve equality: a society in which they are as valued and have the same human and civil rights as everyone else. Scope's purpose is to drive the changes that will make our society the first in which disabled people are able to realise their full civil liberties and human rights.

Provides hospital and retreat housing services to critically ill children and their families. Programs include Hospital and Respite Housing, respite facilities

Resources and referrals to help people and their families cope with the problems that occur with TS. Membership includes individuals, families, relatives, and medical and allied professionals working in the field. University of Michigan - Hereditary Spastic Paraplegia - Program development, education and medical programs, government outreach, adherence to TSA's mission, maximizing efforts, minimizing expenses, event management, awareness, media, publications, chapter relations, research grants, scientific and medical conferences, are ongoing efforts of TSA's full-time professional staff.

Professional, scientific, and credentialing association for more than 127,000 members and affiliates who are audiologists, speech-language pathologists, and speech, language, and hearing scientists.

National professional organization representing more than 66,000 members. Fosters advancements in physical therapy practice, research, and education.

DHS helps Illinois families achieve self-sufficiency, independence and health to the maximum extent possible. One of Illinois' largest agencies, provides state residents with streamlined access to integrated services.

Promotes polices and advances evidence-based practices that support families and enhance the optimal development of young children who have or are at risk for developmental delays and disabilities. One of seventeen divisions of the Council for Exceptional Children (CEC) - the largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted. DEC is especially for individuals who work with or on behalf of children with special needs, birth through age eight, and their families.

Provides leadership and support for a comprehensive program of research related to the rehabilitation of individuals with disabilities. All of our programmatic efforts are aimed at improving the lives of individuals with disabilities from birth through adulthood

Conducts and supports research on topics related to the health of children, adults, families, and populations. Some of these topics include:Reducing infant deaths; Improving the health of women, men, and families; Understanding reproductive health and fertility, infertility; Learning about growth and development; Examining, preventing and treating problems of birth defects and intellectual and developmental disabilities; and Enhancing well-being of persons through the lifespan with optimal rehabilitation research.

Provider of seating systems, support systems, adaptive transportation solutions, mobile toilet and bath chair products and a variety of special needs mobility and assistive products