Group items tagged

Only organization dedicated to providing families with the latest medical information, aggressively funding the most promising research, offering meaningful support, and raising public awareness and advocating for those living with the neurological disorder called Rett syndrome.Funds research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services

provides sports and recreation opportunities for youth and adults with physical and visual disabilities. Based in Lake Forest, IL, GLASA offers a wide range of sports and activities both indoors and out, including wheelchair and ambulatory basketball, hand-cycling, kayaking, floor hockey, ice sled hockey, tennis, aerobics, swimming and more. There is also a week long adaptive sports summer camp.

The American Associaltion of Adapted Sports Programs works in partnership with education agencies in the U.S. to establish programs, policies, procedures and regulations in interscholastic adapted sport for students with physical disabilities

The U.S. Electric Wheelchair Hockey Association. Mission is to provide a quality hockey program for persons requiring the use of an electric (power) wheelchair in daily life.

Information concerning ongoing clinical trial and study examining botulinum toxin (BOTOX, or BTX) for the treatment of muslce twitches and spascitity associated with cerebral palsy.

Theta-burst transcranial magnetic stimulation (TBS) is a type of repetitive transcranial magnetic stimulation (rTMS) method that reduces the excitability of a small region of brain for less than one hour. Since dystonia and spasticity may be associated with increased excitability of motor cortex, we expect that by reducing the excitability of motor cortex with TBS we will temporarily improve these symptoms and hopefully open avenues in the future for the use of TBS as a new, non-invasive therapeutic intervention to aid in physical therapy and symptom amelioration of dystonia and spasticity.

Baclofen Efficacy and Safety Trials - Pediatric Pharmacokinetic and Pharmacodynamic Study of Oral Baclofen for the Treatment of Spasticity Associated with Cerebral Palsy (BEST-PK/PD)

Endotracheal intubation is a painful and stressful procedure, which is associated with acute increases of blood pressure, intracranial pressure, bradycardia and hypoxemia with high morbidity.The aim of the study is to compare recovery time, efficacy and tolerance in a andomized controlled study, between sevoflurane and propofol for intubation in neonates in Neonatal Intensive Care Unit.

AHRQ Research and Quality Evidence Report and Technology Assessment: Number 72 - Failure to Thrive - Criteria for Determining disability in Infants and Children summary.The Social Security Administration (SSA) requested that the Agency for Healthcare Research and Quality (AHRQ), through its Evidence-based Practice Center (EPC) program, provide a systematic review of the scientific evidence on whether children, defined by investigators as failing to thrive or grow adequately, have a concurrent disability, or will have one within 6 months. The population of interest includes children age 18 years or younger, both male and female, of all racial, ethnic, and socioeconomic groupings. The evidence report was prepared to assist SSA in updating its Listing of Impairments and revising its disability policy, as may be appropriate.

Completed observational study assessed whether measurements of certain pro-inflammatory and anti-inflammatory cytokines in the blood (either singly or in combination) at birth and/or up to day of life 21 can predict cerebral palsy at 18-22 months corrected age.

Magnesium is neuroprotective in neonatal animal models of acquired hypoxic-ischemic and/or inflammatory cerebral lesions. It is associated with a significant reduction of perinatal death and cerebral palsy in some observational studies.The objective of the study is to assess if prenatal magnesium sulfate given to women at risk of preterm birth before 33 week's gestation is neuroprotective

Children's Hemiplegia and Stroke Association, CHASA, the first non-profit organization in North America to offer information and support to families of infants, children, and young adults who have hemiplegia or hemiplegic cerebral palsy.

The Brain Attack Coalition is a group of professional, voluntary and governmental entities dedicated to reducing the occurrence, disabilities and death associated with stroke. The goal of the Coalition is to strengthen and promote the relationships among its member organizations in order to help stroke patients or those who are at risk for a stroke.