Skip to main content

Home/ Autism Teachers/ Group items tagged parents

Rss Feed Group items tagged

Tero Toivanen

Autism and Parental Obsession: A Troublesome Mix - 0 views

  • But what really troubled me about both of these books is the obsessive nature of each author's focus on her child's autism - and the assumption, on the part of both authors, that all parents should be equally obsessed.
  • Not only is it fiscally, personally and physically dangerous to become obsessive about autism treatments, but the the promise of a cure is disingenuous. The probability of a child with autism being literally cured is astronomically small (though of course symptoms can lessen and all children gain new skills). By playing on parents guilt and anxiety, though, it's not too hard to push families to the brink of financial, physical and personal collapse.
  •  
    Autism and Parental Obsession: A Troublesome Mix
Tero Toivanen

Finding Perspective as an Autism Parent: First, Put on Your Own Breathing Mask - 0 views

  • Emergency professionals are taught that the first person they must ensure is safe from harm at the scene of an emergency is themselves for the simple reason that if they are injured they are no longer in a position to help anyone else. The same holds true for parents for if they don’t protect their own wellbeing and collapse from the strain emotionally or if they drive themselves into financial ruin, they are no longer in a position to help their children with autism or to help their children who do not have autism.
  • Ever the most heroic emergency worker can be confronted by their personal limitations and, to be a good emergency worker, they must accept them so that “all is not lost” in the process of “trying to save everything.” For our families to survive, we parents of children with autism must also be realistic when facing our own personal limitations. No one else can face them for us.
  •  
    Finding Perspective as an Autism Parent: First, Put on Your Own Breathing Mask
Tero Toivanen

BPS RESEARCH DIGEST: Experts point to lack of gesturing as reason for smaller vocabular... - 0 views

  • The use of gestures, such as pointing, has been recognised as an important aspect of child development for some time. For example, the amount a child gestures at a young age predicts her later vocabulary size.
  • Rowe and Goldin-Meadow found that parents and children from poorer backgrounds (i.e. of low socioeconomic status) used a narrower range of gestures when they interacted with each other compared with parents and children from more affluent backgrounds.
  • Combining this observation with the earlier finding about the role of parental gesturing, implies but by no means proves, that one reason children from poor backgrounds develop smaller vocabularies is because their parents gestured to them less when they were younger.
  •  
    BPS RESEARCH DIGEST: Experts point to lack of gesturing as reason for smaller vocabulary in poor children
Tero Toivanen

New study confirms link between advanced maternal age and autism - 4 views

  • Advanced maternal age is linked to a significantly elevated risk of having a child with autism, regardless of the father's age, according to an exhaustive study of all births in California during the 1990s by UC Davis Health System researchers.
  • The researchers note that understanding the relationship between increased parental age and autism risk is critical to understanding its biological causes. Earlier studies have observed that advanced maternal age is a risk factor for a variety of other birth-related conditions, including infertility, early fetal loss, low birth-weight, chromosomal aberrations and congenital anomalies.
  • One possible clue comes from a 2008 UC Davis study that found some mothers of children with autism had antibodies to fetal brain protein, while none of the mothers of typical children did. Advancing age has been associated with an increase in autoantibody production.
  • ...2 more annotations...
  • They added that some persistent environmental chemicals accumulate in the body and also may have a role to play in autism, possibly contributing to the apparent effect of parental age.
  • The study also suggests that epigenetic changes over time "may enable an older parent to transfer a multitude of molecular functional alterations to a child ... thus epigenetics may be involved in the risks contributed by advancing parental age as a result of changes induced by stresses from environmental chemicals, co-morbidity or assistive reproductive therapy."
  •  
    Advanced maternal age is linked to a significantly elevated risk of having a child with autism, regardless of the father's age, according to an exhaustive study of all births in California during the 1990s by UC Davis Health System researchers.
Amanda Kenuam

Online Summer Reading Sites for Students with Special Needs - 0 views

  •  
    "special education, special needs, reading, websites, parents, summer, fluency"
Tero Toivanen

Oklahoma parents of autistic children turning to oxygen therapy - People CD - Remodelin... - 0 views

  •  
    Oklahoma parents of autistic children turning to oxygen therapy General discussion
Tero Toivanen

NeuroLogica Blog » Dr. Laureys Admits Facilitated Communication Failure - 1 views

  • This is where the story gets interesting, and where it became an international controversy. Enter Linda Wouters – a speech therapist who uses facilitated communication (FC). She claimed that after months of training she could communicate with Houbens by sensing the subtle movements of his right hand, which he could use to direct her across a computer screen keyboard.
  • FC, unfortunately, is pure pseudoscience. It was introduced in the late 1980s as a wonderful new method for communicating with children with cognitive disorders, on the assumption that they were more verbally than mentally impaired. Many therapists were convinced, and many parents were overjoyed as their previously non-communicative children starting writing poetry expressing their love for their parents. (And there was also a dark side as some children, through FC, started reporting physical and sexual abuse by parents and caretakers.)
  • When people got around to actually testing FC scientifically it turned out, rather unequivocally, that all the communication was being done subconsciously by the facilitator – a phenomenon called the ideomotor effect. They were not just supporting the hand of their client, they were directing it. Well-designed studies showed that the facilitator was always doing all the communication. FC then shrank to a fringe phenomenon – but its adherents would not give up, and FC continues to this day (even sometimes in courtroom testimony), hoodwinking the unawares and having to be debunked all over again and again.
  • ...3 more annotations...
  • Regarding Rom Houben video showing Wouters performing FC with Houben clearly showed that he could not be doing the communication. In one video Houben was not even looking at the keyboard, and may not have even been awake. But in every video Wouters was moving his hand across the keyboard at unbelievable speeds – not even a neurologically intact person could direct another to keystrokes with such speed an accuracy by just moving one finger.
  • Laureys has now carried out those tests, and his results hold that it wasn’t Houben doing the writing after all. The tests determined that he doesn’t have enough strength and muscle control in his right arm to operate the keyboard. In her effort to help the patient express himself, it would seem that the speech therapist had unwittingly assumed control… In the more recent test, Houben was shown or told a series of 15 objects and words, without a speech therapist being present. Afterward, he was supposed to type the correct word — but he didn’t succeed a single time.
  • It is truly a scandal that FC is still around. Like homeopathy, therapeutic touch, and many similar medical pseudosciences – their persistence is not a failure of science, which has adequately shown them to be nothing but illusions, but rather of collective rationality.
  •  
     It is truly a scandal that FC is still around. Like homeopathy, therapeutic touch, and many similar medical pseudosciences - their persistence is not a failure of science, which has adequately shown them to be nothing but illusions, but rather of collective rationality.
Tero Toivanen

facilitated communication - The Skeptic's Dictionary - Skepdic.com - 0 views

  • The American Psychological Association has issued a position paper on FC, stating that "Studies have repeatedly demonstrated that facilitated communication is not a scientifically valid technique for individuals with autism or mental retardation" and describing FC as "a controversial and unproved communicative procedure with no scientifically demonstrated support for its efficacy."
  • Frontline Program on facilitated communication:
    • Tero Toivanen
       
      Here is the video about Facilitated Communication (FC). If you have something to do with FC, I think you should watch it.
  • Parents are grateful to discover that their child is not hopelessly retarded but is either normal or above normal in intelligence. FC allows their children to demonstrate their intelligence; it provides them with a vehicle heretofore denied them.
  • ...9 more annotations...
  • Facilitated Communication therapy began in Australia with Rosemary Crossley. The center for FC in the United States is Syracuse University, which houses the Facilitated Communication Institute (FCI) in their School of Education.
  • A very damaging, detailed criticism was presented on PBS's "Frontline", October 19, 1993. The program was repeated December 17, 1996, and added that since the first showing, Syracuse University has claimed to have done three studies which verify the reality and effectiveness of FC, while thirty other studies done elsewhere have concluded just the opposite.
  • Furthermore, FC clients routinely use a flat board or keyboard, over which the facilitator holds their pointing finger. Even the most expert typist could not routinely hit correct letters without some reference as a starting point.
  • Facilitators routinely look at the keyboard; clients do not. The messages' basic coherence indicates that they most probably are produced by someone who is looking at the keyboard.
  • Anyone familiar with Helen Keller, Stephen Hawking or Christy Brown knows that blindness, deafness, cerebral palsy, multiple sclerosis, amyotrophic lateral sclerosis (ALS), or physical or neurological disorders, do not necessarily affect the intellect. There is no necessary connection between a physical handicap and a mental handicap. We also know that such people often require an assistant to facilitate their communication. But what facilitators do to help the likes of a Hawking or a Brown is a far cry from what those in the facilitated communication business are doing.
  • But the vast majority of FC clients apparently are mentally retarded or autistic. Their facilitators appear to be reporting their own thoughts, not their patient's thoughts. Interestingly, the facilitators are genuinely shocked when they discover that they are not really communicating their patient's thoughts. Their reaction is similar to that of dowsers and others with "special powers" who, when tested under controlled conditions, find they don't have any special powers at all.
  • It is interesting that the parents and other loved ones who have been bonding with the patient for years are unable to be facilitators with their own children.
  • And when the kind strangers and their patients are put to the test, they generally fail. We are told that is because the conditions made them nervous. These ad hoc excuses sound familiar; they sound like the complaints of parapsychologists.
  • Skeptics think the evidence is in and FC is a delusion for the most part. It is also a dangerous delusion. Critics have noted a similarity between FC therapy and repressed memory therapy: patients are accusing their parents and others of having sexually abused them. Facilitators are taught that something like 13% of their clients have been sexually abused. This information may unconsciously influence their work.
  •  
    You find here a very about Important Video about Facilitated Communication (FC). The American Psychological Association has issued a position paper on FC, stating that "Studies have repeatedly demonstrated that facilitated communication is not a scientifically valid technique for individuals with autism or mental retardation" and describing FC as "a controversial and unproved communicative procedure with no scientifically demonstrated support for its efficacy."
Tero Toivanen

A Family United For The Autistic: 15 Yr Old Aspie Talks About Autism - 0 views

  • Autism gives many unique traits to an individual, and many of these people go on to do great things (it is said Isaac Newton, Albert Einstein, Bill Gates, and other innovators and scientists had forms of autism). I can’t speak for others - maybe they do want to rid themselves of their condition. But as for the parents and individuals making the decision, think about it: do you honestly want a cure that is going to change the individual you are?
  •  
    Autism gives many unique traits to an individual, and many of these people go on to do great things (it is said Isaac Newton, Albert Einstein, Bill Gates, and other innovators and scientists had forms of autism). I can't speak for others - maybe they do want to rid themselves of their condition. But as for the parents and individuals making the decision, think about it: do you honestly want a cure that is going to change the individual you are?
Tero Toivanen

BMSO Training Manuals - 0 views

  •  
    Training manuals cover a wide range of behavioral strategies, including Pivotal Response Treatment (PRT), Priming, Understanding Problem Behaviors, Self-Management, Parent-Professional Collaboration, and Toilet Training.
Patti Porto

www.medtechfortots.com - Home - 0 views

  •  
    Student project "This website has been created for parents or children who do not know anything (or want to learn more) about tools and machines at a pediatrician's office. This lack of knowledge may lead children to fear the pediatrician's office. Hopefully, when they view this website, their fear will go away."
Graeme Wadlow

Parental stress associated with caring for children with Asperger's syndrome or autism - 0 views

  •  
    IngentaConnect Pediatrics International
J B

Children With Autism Improve Key Thinking Skills Over Time - On Parenting (usnews.com) - 4 views

  •  
    Children With Autism Improve Key Thinking Skills Over Time
Tero Toivanen

Autism Research Blog: Translating Autism: Vision problems in autism: Reduced convergence? - 0 views

  • The authors found that 11% of the typically developing children and 31% of the ASD had a documented visual impairment (myopia, astigmatism, etc). This difference was statistically significant. That is, children with ASD were significantly more likely than typically developing children to have these conditions. Children with autism also displayed significantly poorer visual acuity (but within normal limits), and lower convergence. Convergence refers to the process by which the eyes move towards each other to maintain focus on approaching or close-range objects.
  • The findings of reduced visual acuity in children with autism when compared to typically developing children contradict previous studies that have shown enhanced visual acuity in autism. This brings us to a major limitation of this study that was correctly noted by the authors.
  • Limited convergence therefore would be associated with more limited depth perception. I find this intriguing because the neuropsychological profile of children with high functioning autism is often very similar to what is observed in kids with non-verbal learning disabilities (including relative weaknesses in motor-visual functioning). In addition, many parents with children with ASD report that their kids have trouble with sports and other physical activities. I thus wonder how much the reduced convergence observed in ASD may affect the motor-visual functioning in autism.
  • ...1 more annotation...
  • Clinically, I was also intrigued by the high rates of vision problems found among the ASD group. Although, as I mentioned, this may be due to a self-selection of the parents who agreed to participate, this is consistent with data suggesting that children with developmental disorders are more likely to have visual problems than typically developing children
  •  
    Analysis of visual functioning in children with autism suggests impairment in visual convergence. A brief review of: Elizabeth Milne, Helen Griffiths, David Buckley, Alison Scope (2009). Vision in Children and Adolescents with Autistic Spectrum Disorder: Evidence for Reduced Convergence Journal of Autism and Developmental Disorders DOI: 10.1007/s10803-009-0705-8
Tero Toivanen

For a Child with Autism, How Much Help Is Too Much Help? - 3 views

  • I've noticed that when you offer a person constant help and support, even when he doesn't need it, he will stand back and let you do all the work.  It's just human nature: why work hard when someone else will do it for you?
  • Over the years, I've noticed that teachers and parents get into the habit of accomodating and stepping in for their children with autism.
  • I'm working hard to overcome my tendency to help too much, expect too little, and accept less than my son's best.
  •  
    How to teach students to be independent?
J B

iPrompts - 0 views

  •  
    Prompts is a software application for the iPhone and iPod Touch. Designed especially for parents, special educators & therapists, iPrompts allows for the presentation of customized picture schedules, "social stories," countdown timers and choice offerings to those with developmental and language impairments. The visual supports packed into iPrompts are used to help get those with special needs through the day. Costs $75.
Tero Toivanen

Why parents swear by ineffective treatments for autism. - By Sydney Spiesel - Slate Mag... - 0 views

  • Since most of the ways we diagnose autism are based on behavior, we can't rely on biological, structural, or chemical findings to determine if a treatment is working. We primarily measure success based on a patient's change, or lack thereof, in behavior.
  • The behavioral changes produced by the few effective treatments make life in social settings (including the home) possible, but we have no idea whether they have any effect on the underlying cause (or causes) of autism or whether they even make severely affected patients feel better.
  • One method intended to help, "facilitated communication," is based on the idea that a sensitive facilitator will hold the hand of a patient over a kind of Ouija board. She will then help the patient respond to questions by sensing his intention and helping guide his hand to spell out answers. Rigorous studies have shown that the spelled-out answers come from the unconscious (or, worse, the conscious) mind of the facilitator. Nonetheless, the practice is still in use, and I know parents who are utterly convinced that it is valid and useful. Frankly, something important did happen when facilitated communication was introduced to my patients: They improved, they brightened, they became more social and more interactive, and they seemed, somehow, happier, even though facilitated communication didn't actually translate their thoughts into words. I'll come back to "why" in a minute.
  • ...4 more annotations...
  • The techniques of sensory integrative treatment include rubbing or brushing skin (using graded and tactile stimulation), balance exercises, exposure to soft music, and the use of weighted clothes, among other things. Does it work? Most of the research has been of very poor quality, but, in virtually all of the recent studies, sensory integration doesn't seem to be any more beneficial than any other treatment.
  • It looks as if environmental alteration, especially if coupled with increased attention and perhaps expectation, often leads to change in human behavior. It's called the "Hawthorne effect."
  • People respond—mostly favorably—to positive attention and interaction. The question we need to ask about all the treatments available for autism is whether they actively shape and change brain development and thus treat the underlying condition, as many proponents believe, or whether the benefits (if they are present at all) are simply another example of the Hawthorne effect.
  • Perhaps my patients who became more alive and more interactive after facilitated communication was introduced changed because their families and caretakers were taking them more seriously as people who might have an inner life—people worthy of attention and interaction.
  •  
    People respond-mostly favorably-to positive attention and interaction. The question we need to ask about all the treatments available for autism is whether they actively shape and change brain development and thus treat the underlying condition, as many proponents believe, or whether the benefits (if they are present at all) are simply another example of the Hawthorne effect.
Tero Toivanen

Interview with Robert Koegel | Pivotal Response Treatments for Autism Author on ABC's S... - 1 views

  • The NLP became synonymous with motivation and motivation is pivotal in teaching children with autism to respond to multiple questions.
  • 1988 was the first time the word pivotal was used to describe this method. It was referred to previously as the NLP. It is considered a behavior intervention with similarities to the Lovaas method/ABA. 
  • Why would you say PRT is more effective than other therapies
  • ...10 more annotations...
  • First and foremost, children think of it as fun and learn skills by doing what they enjoy.
  • PRT is effective in all of the child’s environments and versatile enough to use at home, in clinical settings, in an inclusive classroom, and in the community, and parents can easily start folding PRT strategies into the child's established routine right away.
  • How does PRT decrease stress for parents?
  • Children often hate having to perform drill practices involved with other autism treatments, they feel like they are being forced to do something they don't enjoy and they react to this by causing a scene to get out of treatment.
  • What exactly are "pivotal responses?"
  • "areas that are central to wide areas of functioning such that improvements occur across a large number of behaviors." 
    • Tero Toivanen
       
      Pivotal responses määrittely!!!
  • Once they understand the connection between using their own words and getting something they want, they will start to use words spontaneously to communicate their needs. Mastering this one pivotal behavior, motivating the child to understand the connection between their own efforts to communicate with the outcomes of their efforts, will have an enormous ripple effect on other skills.
    • Tero Toivanen
       
      In practice.
  • It works because there is a motivator that makes the child want to work to accomplish the task at hand, the reward for accomplishing the task has a direct connection to it.
  • PRT was named by the National Research Council of the National Academy of Sciences in 2001 as one of the top 10 state-of-the-art treatments for autism in the United States.
  • A child who is highly motivated to communicate and is having fun doing it will learn much more rapidly than a child who is not motivated and not enjoying what they are learning.
1 - 20 of 51 Next › Last »
Showing 20 items per page