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Tero Toivanen

Little Flowers of St. Francis - Part 2 - 1 views

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    Is this the oldest history about autism? HOW BROTHER JUNIPER CUT OFF THE FOOT OF A PIG TO GIVE IT TO A SICK BROTHER from "The Little Flowers of St. Francis of Assisi.
Tero Toivanen

Facing Autism in New Brunswick: Autism Taboo: Shhhh! Don't Mention THEM! - 0 views

  • It is now politically incorrect to refer to anyone as mentally retarded. The polite and proper term to use now is intellectually disabled. Either way there is very little mention of the fact that many persons with Autism Spectrum Disorder diagnoses are severely intellectually challenged. In the world's autism communities there are many who perceive it as an insult to mention the existence of the intellectually disabled autistic population.
  • some well known autism researchers work hard at showing the world how intelligent autistic persons really are, even those who cannot demonstrate that intelligence with any obvious ability to communicate or function in the real world.
  • The mere mention of the existence of low functioning autistic persons with serious intellectual challenges is forbidden.
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  • The exclusion by autism self advocates of the intellectually disabled autistic population occurs despite the fact that many persons with Autistic Disorder are intellectually disabled. The ICD-10 mentions this fact expressly in its description of Autistic Disorder:
  • Autistic Disorder...In addition to these specific diagnostic features, it is frequent for children with autism to show a range of other nonspecific problems such as fear/phobias, sleeping and eating disturbances, temper tantrums, and aggression. Self-injury (e.g. by wrist-biting) is fairly common, especially when there is associated severe mental retardation.
  • All levels of IQ can occur in association with autism, but there is significant mental retardation in some three-quarters of cases.
  • There are more than 200 known causes of intellectual disability. Some common examples of intellectual disability are: Down syndrome Autism
  • The attempt by higher functioning persons with ASD's and Aspergers to disassociate "autism" from intellectual disability helps stigmatize persons with intellectual disabilities including the many persons with autistic disorder and intellectual disabilities.
  • And some ND's, to counter the fact that most with LFA are retarded, some "famous" autistics like to promote FC as "proof" that they aren't.
  • My cousin is profoundly autistic. He is around 20 and cannot communicate at all, not verbally or in the written word, and has never said a word. Luckily, his family is smart enough to know that if anyone tries use FC on him they will know it is a scam.If a facilitator told my aunt that P was writing poems and understood Shakespeare she would just laugh. She loves P as he is; she knows reality and doesn't try to force him to be someone he isn't.
  • The current Wikipedia article still shows a frequency of 25-70% incidence of mental retardation in people with autism.
  • Yet, the reader is drawn to see not the high percentage (25% is still very high) but the width of the range, therefore there must be something wrong with the ability of standard tests to measure "autistic intelligence".
  • Mentally retarded IMO comes from the intelligence scales. These do not address the learning styles of all people and are inflexible. I do believe there are better ways to understand how someone learns. I also don't believe there are limits on what we learn, the brain's placisity allows us to learn our entire life.
  • I've spoken hundreds of parents and it worries me that so many have problems accepting their children as they are and will be.For some intelligence is the magic word, a kind of hidden cure inside their child.But autistic kids with a normal IQ which they can use function better than those with high IQ's they can't use.
  • I am only concerned about the cases where the FC person NEVER does ANY kind of independent work, which seem to be the majority of FC cases.
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    It is now politically incorrect to refer to anyone as mentally retarded. The polite and proper term to use now is intellectually disabled. Either way there is very little mention of the fact that many persons with Autism Spectrum Disorder diagnoses are severely intellectually challenged. In the world's autism communities there are many who perceive it as an insult to mention the existence of the intellectually disabled autistic population.
Tero Toivanen

Asperger Square 8: Judging a Book by its Cover - 0 views

  • I've heard too many cracks from "helpful" people, telling people not to call us autistics, or autistic people, but "people with autism," with the reasoning that "You don't call somebody a cancer patient, you call them a person with cancer." It makes me a little more sad and angry every time I see that comparison, and this... is the worst thing so far, in that vein.
    • Tero Toivanen
       
      How to call this people?
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    Judging a Book by its Cover
Tero Toivanen

For a Child with Autism, How Much Help Is Too Much Help? - 3 views

  • I've noticed that when you offer a person constant help and support, even when he doesn't need it, he will stand back and let you do all the work.  It's just human nature: why work hard when someone else will do it for you?
  • Over the years, I've noticed that teachers and parents get into the habit of accomodating and stepping in for their children with autism.
  • I'm working hard to overcome my tendency to help too much, expect too little, and accept less than my son's best.
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    How to teach students to be independent?
Tero Toivanen

12 Tips to Setting up an Autism Classroom « Principal Kendrick - 6 views

  • In a world that’s ever changing, routine and structure provide great comfort to a child on the autism spectrum.  Define routines clearly. 
  • Activities are successful when they’re broken into small steps.
  • Make sure children know what to do if they finish ahead of time.  Typically, children with autism do not use free time productively; therefore strive to have as little downtime between activities as possible.
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  • 2. Use visuals
  • Remember to keep explanations simple and short about each picture or concentration will wane.   Give written instructions instead of verbal whenever you can.  Highlight or underline any text for emphasis.
  • People with autism like order and detail.  They feel in control and secure when they know what to expect
  • Picture schedules are even more powerful because they help a student visualize the actions.
  • Make sure you have this schedule in a very visible place in your classroom and direct the students’ attention to it frequently, particularly a few minutes before you begin the next activity.
  • Written schedules are very effective for good readers.  These can also be typed up and placed on a student’s desk.
  • 4. Reduce distractions
  • Many people with autism find it difficult to filter out background noise and visual information.  Children with autism pay attention to detail.  Wall charts and posters can be very distracting. 
  • Try and seat children away from windows and doors. 
  • 5. Use concrete language
  • Always keep your language simple and concrete.   Get your point across in as few words as possible. 
  • Avoid using idioms.
  • Give very clear choices and try not to leave choices open ended.  You’re bound to get a better result by asking “Do you want to read or draw?” than by asking “What do you want to do now?”
  • 6. It’s not personal
  • Children with autism are not rude.  They simply don’t understand social rules or how they’re supposed to behave.
  • NEVER, ever, speak about a child on the autism spectrum as if they weren’t present
  • Despite the lack of reaction they sometimes present, hearing you speak about them in a negative way will crush their self esteem.
  • 7. Transitions
  • Children on the autism spectrum feel secure when things are constant.  Changing an activity provides a fear of the unknown.  This elevates stress which produces anxiety
  • Reduce the stress of transitions by giving ample warning
  • Using schedules helps with transitions too as students have time to “psyche themselves up” for the changes ahead.
  • People can be slow when they are learning a new skill until they become proficient
  • Encourage your students to ask each other for help and information
  • Making decisions is equally important and this begins by teaching students to make a choice.  Offer two choices. 
  • When giving a directive or asking a question, make sure you allow for extra processing time before offering guidance.  Self help skills are essential to learn
  • Never underestimate the power of consistency.
  • Avoid this temptation and make sure you allow ample time before you abandon an idea.  Remember that consistency is a key component of success.  If you’re teaching a student to control aggression, the same plan should be implemented in all settings, at school and at home.
  • 9. Rewards before consequences
  • We all love being rewarded and people with autism are no different.  Rewards and positive reinforcement are a wonderful way to increase desired behavior
  • If possible, let your students pick their own reward so they can anticipate receiving it.
  • There are many reward systems which include negative responses and typically, these do not work as well.
  • Focusing on negative aspects can often lead to poor results and a de-motivated student.  When used correctly, rewards are very powerful and irresistible
  • Every reward should be showered in praise.  Even though people on the spectrum might not respond typically when praised, they enjoy it just as much as you!
  • 10. Teach with lists
  • Teaching with lists sets clear expectations.  It defines a beginning, middle and an end.
  • People on the autism spectrum respond well to order and lists are no exception.  Almost anything can be taught in a list format.
  • While typical people often think in very abstract format, people on the spectrum have a very organized way of thought.  Finding ways to work within these parameters can escalate the learning curve.    
  • 11. Creative teaching
  • It helps to be creative when you’re teaching students with autism.  People on the spectrum think out of the box and if you do too, you will get great results.
    • Tero Toivanen
       
      Exactly!
  • Often, people with autism have very specific interests.  Use these interests as motivators.
    • Tero Toivanen
       
      This is how I work! It's works!
  • Another great strategy to use is called “Teaching with questions”.  This method keeps students involved, focused and ensures understanding.
  • Another great way of teaching is by adding humor to your lessons.  We all respond to humor.
    • Tero Toivanen
       
      When you feel well, your students feel well also and learn better!
  • 12. Don’t sweat the small stuff
  • The final goal is for children to be happy and to function as independently as possible.
  • Don’t demand eye contact if a student has trouble processing visual and auditory information simultaneously.
    • Tero Toivanen
       
      It may even be painful for the student... There are research about this issue.
  • By correcting every action a person does, you’re sending a message that they’re not good enough the way they are.  When making a decision about what to correct, always ask yourself first, “Will correcting this action help this person lead a productive and happy life?”
Tero Toivanen

Facing Autism in New Brunswick: Autism Diagnoses: DSM V Should Separate Autistic Disord... - 0 views

  • This inclusion of substantially different disorders, with wildly different challenges, in one "spectrum" of disorders implies that the very serious challenges of persons with Autistic Disorder who lack a fundamental understanding of the world, who have very limited abstract thought and who have very little in the way of communication skills are somehow fundamentally similar to persons with good to excellent facilities in all these crucial areas of life.
  • Research is resulting in more and more people describing autism in the plural as autism disorders with different causes and different possible treatments.
  • It is time for the DSM to get realistic about the Autism "Spectrum".
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  • It is time to merge High Functioning autism disorders with Aspergers Disorder and separate them from Autistic Disorder.
  • It is time for the DSM to recognize the importance of levels of ability to function in and understand the world and to reflect those levels in their classification of development disorders.
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    It is time to merge High Functioning autism disorders with Aspergers Disorder and separate them from Autistic Disorder.
Tero Toivanen

Facilitated Communication - 0 views

  • Facilitators who work closely with individuals with autism, as well as other developmental disabilities (e.g., mental retardation, cerebral palsy, etc.) report that individuals with little or no language are fully expressive about life experiences, thoughts, feelings, choices, preferences, and decisions, when allowed to communicate through facilitation.
  • Biklen and other proponents of facilitated communication have been strongly opposed to objective, empirical validity testing. They maintain that testing undermines the individual's confidence, places him or her under pressure, and introduces negativism that destroys the communicative exchange.
  • Rather, under the surface of autism is a person with full cognitive faculties. Smith and Belcher (1993) indicate that much of this suggests a basic unwillingness on the part of families, professionals, and caregivers to accept the individuals with disabilities for what they are, thus diminishing the value of the individual in a way that the disability itself could not have.
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  • Thompson (1993) describes facilitated communication as a classic example of the self-fulfilling prophecy. The facilitator wants to believe that the person with a severe cognitive and language disability is actually of normal to superior intellectual ability. Parents especially want to believe that a way has been found to finally unlock the door to their real son or daughter.
  • In short, people want facilitated communication to work.
  • Advocates of facilitated communication often respond to naysayers, "It can't hurt to try it." Biklen agrees, "It is not harmful to teach people to communicate through pointing." However, he qualifies his claim with the caveat that "it can be harmful if the facilitator over interprets, does not monitor the person's eyes, facilitates when the person is looking away, is not sensitive to the possibility of guiding the person, and asks leading rather than clarifying questions."
  • Some argue that "false communication" may distort beliefs, understanding, and rehabilitative approaches to persons with autism and other developmental disabilities.
  • Additionally, facilitated communication in the past few years has been the source of many contested abuse allegations, usually allegedly reported by an individual with very limited unassisted communication skills against a family caregiver or caregivers.
  • There are at least 50 legal cases in the U.S. involving allegations of sexual abuse produced through facilitated communication (Berger, 1994). Several such cases have already occurred in Australia, and some have arisen in Europe (Green, 1992).
  • With the exception of three empirical studies (Intellectual Disability Review Panel, 1989; Calculator and Singer, 1992; and Velazquez (in press)) which provide preliminary validation of facilitated communication, most of the support for the validity of facilitated communication is based on anecdotal reports.
  • Unfortunately, validity questions surround anecdotal reports of facilitated communication. In general, these reports lack the controls necessary to rule out experimenter biases, reliability concerns, and threats to validity (Cummins and Prior, 1992; Jacobsen, Eberlin, Mulick, Schwartz, Szempruch, and Wheeler, 1994).
  • Although Biklen (1990) admits that facilitator influence is a real possibility, facilitated communications are typically reported as though they are the words of the person with a disability.
  • Without exception, these empirical studies have questioned the authenticity of the communication as truly coming from the individual versus the facilitator.
  • Interdisciplinary Party Report (1988) and the Intellectual Disability Review Panel (1989) both of which examined the source of facilitated communications produced by persons in Australia, and found strong evidence that responses obtained through facilitation were influenced by the facilitator.
  • Gina Green, Director of Research for the New England Center for Autism and Associate Scientist for the E.K. Shriver Center for Mental Retardation, Inc., has reviewed over 150 cases where empirical testing was performed and cites 15 independent conduct evaluations involving 136 individuals with autism and/or mental retardatiion who were alleged to have been taught to communicate via facilitated communication. In none of the cases were investigators able to confirm facilitated communication by the 136 individuals.
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    Facilitated Communication by Natalie Russo [First Published in Quality of Care Newsletter, Issue62, January-February 1995]
Tero Toivanen

Autism and early oxygen deprivation 2 | On the Brain by Dr. Mike Merzenich,Ph.D. - 0 views

  • Fraternal twins typically have different placentas, whereas identical twins share a placenta but have different cords. The blood supply, and pre-clamping susceptibility to anoxia, would surely be different.
  • As for the idea that one could statistically detect whether cord clamping is the problem, we can! Amish people do not clamp the cord until placental delivery, and they have no autism rate. The same is true in Somalia, but Somalian immigrants to westernized medical countries have high rates. Try to systematically find out autism rates and immediate cord clamping rates, on a country by country, or region by region basis. It is a task someone should get on immediately, but it will take a lot of effort.
  • An interesting discussion of the “Amish anomaly” re autism incidence has been provided by Dan Olmsted, who went to Amish Country to find the 150 or so individuals there who could be expected to be severely autistic. They aren’t there. He seems pre-disposed to believe that the difference lies with their non-vaccination. Many studies now show that this is unlikely. As David Blake points out, there is another difference in this population: In Amish birthing, by tradition, the cord is not clamped prior to placenta delivery.
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  • The picture with autism in Somali children is a little murkier. It turns out that the incidence of autism is very high in children of Somali origin who were born in the US (several times higher than normal), while it appears to be very low in Somali children born in their native country. Again, vaccination has been identified as the likely cause by Somali parents and by many observers — but again, clamping follows placental delivery in Somalia, while the cord has been clamped without delay as a general practice in Minnesota, where a high incidence of autism in these children of Somali immigrants was first discovered.
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    Comment about the hypothesis that early umbilical cord clamping might contribute to the risk of origin of autism.
Tero Toivanen

Early intervention for toddlers with autism highly effective, study finds - 1 views

  • The study, published online today in the journal Pediatrics, examined an intervention called the Early Start Denver Model, which combines applied behavioral analysis (ABA) teaching methods with developmental 'relationship-based' approaches.
  • The five-year study took place at the University of Washington (UW) in Seattle and was led by Dawson, then a professor of psychology and director of the university's Autism Center, in partnership with Rogers. It involved therapy for 48 diverse, 18- to 30-month-old children with autism and no other health problems.
  • At the conclusion of the study, the IQs of the children in the intervention group had improved by an average of approximately 18 points, compared to a little more than four points in the comparison group. The intervention group also had a nearly 18-point improvement in receptive language (listening and understanding) compared to approximately 10 points in the comparison group. Seven of the children in the intervention group had enough improvement in overall skills to warrant a change in diagnosis from autism to the milder condition known as 'pervasive developmental disorder not otherwise specified,' or PDD-NOS. Only one child in the community-based intervention group had an improved diagnosis.
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  • In this study, the intervention was provided in a toddler's natural environment (their home) and delivered by trained therapists and parents who received instruction and training as part of the model.
  • Parents are taught strategies for capturing their children's attention and promoting communication. By using these strategies throughout the day, the children were offered many opportunities to learn to interact with others.
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    A novel early intervention program for very young children with autism - some as young as 18 months - is effective for improving IQ, language ability, and social interaction, a comprehensive new study has found.
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