Group items tagged registry - PLUK eNews

FREE - Federal Registry for Educational Excellence | FREE - Federal Registry for Educat... - 0 views

free.ed.gov

US Department of Education education teaching resources

shared by Roger Holt on 08 Jul 13 - Cached

The Federal Registry for Educational Excellence (FREE) makes it easier to find digital teaching and learning resources created and maintained by the federal government and public and private organizations.
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Understanding SUDEP Research and the Role You Can Play - Webinar - Jan. 15, 2014 - 0 views

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webinar epilepsy SUDEP

shared by Sierra Boehm on 17 Dec 13 - No Cached

Sierra Boehm on 17 Dec 13

Register for this event

What:
Ending sudden unexplained death in epilepsy (SUDEP) is a shared responsibility. And you can help! Any successful effort will require doctors, people with epilepsy, nurses, researchers, coroners and those bereaved by the loss of someone to SUDEP to work together. It will require collaboration across many different organizations over many years. This webinar will begin with a look at what research is telling us about the possible causes as well as future prevention methods and cures for SUDEP. The second part of this webinar will explore how you or a loved one can help by joining a study. We will also discuss the support needs of research study participants and the resources available to them. The presenters will also briefly discuss the SUDEP registry and its role in SUDEP research.

When:
Wednesday, January 15, 2014
1:00 pm Mountain

Cost:
Space is limited. A $25 donation is suggested.

<div class="cArrow"> </div><div class="cContentInner">Register for this event<br /><br />What:<br />Ending sudden unexplained death in epilepsy (SUDEP) is a shared responsibility. And you can help! Any successful effort will require doctors, people with epilepsy, nurses, researchers, coroners and those bereaved by the loss of someone to SUDEP to work together. It will require collaboration across many different organizations over many years. This webinar will begin with a look at what research is telling us about the possible causes as well as future prevention methods and cures for SUDEP. The second part of this webinar will explore how you or a loved one can help by joining a study. We will also discuss the support needs of research study participants and the resources available to them. The presenters will also briefly discuss the SUDEP registry and its role in SUDEP research. <br /><br />When:<br />Wednesday, January 15, 2014<br />1:00 pm Mountain<br /><br />Cost:<br />Space is limited. A $25 donation is suggested.</div>

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Bill would create national registry to track undiagnosed illnesses | News for Dallas, T... - 0 views

www.dallasnews.com/...agnosedregistry.11f8f726f.html

undiagnosed illnesses registry

shared by Roger Holt on 28 Aug 09 - Cached

In May 2008, the National Institutes of Health started an undiagnosed diseases program. Its goal is to provide answers to patients with mysterious conditions that have long eluded diagnosis and to advance medical knowledge about rare diseases.
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NIH Announces Genetic Testing Registry, March 18, 2010 News Release - National Institut... - 0 views

www.nih.gov/...od-18.htm

genetics NIH

shared by Roger Holt on 18 Mar 10 - Cached

The National Institutes of Health announced today that it is creating a public database that researchers, consumers, health care providers, and others can search for information submitted voluntarily by genetic test providers. The Genetic Testing Registry (GTR) aims to enhance access to information about the availability, validity, and usefulness of genetic tests.
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HealthDay - 0 views

www.healthday.com/Article.asp

autism study

shared by Roger Holt on 10 May 10 - Cached

FRIDAY, May 7 (HealthDay News) -- Infections during infancy or childhood do not seem to raise the risk of autism, new research finds. Researchers analyzed birth records for the 1.4 million children born in Denmark between 1980 and 2002, as well as two national registries that keep track of infectious diseases. They compared those records with records of children referred to psychiatric wards and later diagnosed with an autism spectrum disorder. Of those children, almost 7,400 were diagnosed with an autism spectrum disorder.
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Autism Research Widens To Include Grandparents - Disability Scoop - 0 views

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autism research

shared by Roger Holt on 09 Oct 09 - Cached

Research on parents and children with autism has grown exponentially in recent years. Now, grandparents are invited to get into the act too. Since 2007, over 30,000 individuals with autism and their immediate families have submitted information about themselves to The Interactive Autism Network (IAN). Researchers then mine data from the registry to learn more about autism and to find subjects for studies.
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