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davetaz

ISB1523: Anonymisation Standard for Publishing Health and Social Care Data - NHS Digital - 1 views

  • ISB1523: Anonymisation Standard for Publishing Health and Social Care Data This process standard for publishing health and social care data provides an agreed and standardised approach to anonymisation.
  • Although the law makes a clear distinction between identifying and non-identifying data, where that line should be drawn may be far from clear in practice. That is why this anonymisation standard for publishing health and social care data is needed. This process standard provides an agreed and standardised approach, grounded in the law, enabling organisations to: distinguish between identifying and non-identifying information deploy a standard approach and a set of standard tools to anonymise information to ensure that, as far as it is reasonably practicable to do so, information published does not identify individuals.
Ben Snaith

Which Covid-19 Data Can You Trust? - 2 views

  • In a crisis situation like the one we are in, data can be an essential tool for crafting responses, allocating resources, measuring the effectiveness of interventions, such as social distancing, and telling us when we might reopen economies. However, incomplete or incorrect data can also muddy the waters, obscuring important nuances within communities, ignoring important factors such as socioeconomic realities, and creating false senses of panic or safety, not to mention other harms such as needlessly exposing private information.
  • Unfortunately, many of these technological solutions — however well intended — do not provide the clear picture they purport to. In many cases, there is insufficient engagement with subject-matter experts, such as epidemiologists who specialize in modeling the spread of infectious diseases or front-line clinicians who can help prioritize needs. But because technology and telecom companies have greater access to mobile device data, enormous financial resources, and larger teams of data scientists, than academic researchers do, their data products are being rolled out at a higher volume than high quality studies.
  • To some extent, all data risk breaching the privacy of individual or group identities, but publishing scorecards for specific neighborhoods risks shaming or punishing communities, while ignoring the socioeconomic realities of people’s lives that make it difficult for them to stay home.
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  • Even more granular examples, such as footfalls at identifiable business locations, risks de-identifying religious groups; patients visiting cancer hospitals, HIV clinics, or reproductive health clinics; or those seeking public assistance. The medical and public health communities long ago deemed the un-masking of such information without consent unacceptable, but companies have recently been releasing it on publicly available dashboards.
  • Until we know more about how these changing movement patterns impact epidemiological aspects of the disease, we should use these data with caution.
  • Simply presenting them, or interpreting them without a proper contextual understanding, could inadvertently lead to imposing or relaxing restrictions on lives and livelihoods, based on incomplete information.
  • In the absence of a tightly coupled testing and treatment plan, however, these apps risk either providing false reassurance to communities where infectious but asymptomatic individuals can continue to spread disease, or requiring an unreasonably large number of people to quarantine. The behavioral response of the population to these apps is therefore unknown and likely to vary significantly across societies.
  • Some contact-tracing apps follow black-box algorithms, which preclude the global community of scientists from refining them or adopting them elsewhere. These non-transparent, un-validated interventions — which are now being rolled out (or rolled back) in countries such as China, India, Israel and Vietnam — are in direct contravention to the open cross-border collaboration that scientists have adopted to address the Covid-19 pandemic.
  • pidemiological models that can help predict the burden and pattern of spread of Covid-19 rely on a number of parameters that are, as yet, wildly uncertain. We still lack many of the basic facts about this disease, including how many people have symptoms, whether people who have been infected are immune to reinfection, and — crucially — how many people have been infected so far. In the absence of reliable virological testing data, we cannot fit models accurately, or know confidently what the future of this epidemic will look like for all these reasons, and yet numbers are being presented to governments and the public with the appearance of certainty
  • Telenor, the Norwegian telco giant has led the way in responsible use of aggregated mobility data from cell phone tower records. Its data have been used, in close collaboration with scientists and local practitioners, to model, predict, and respond to outbreaks around the world. Telenor has openly published its methods and provided technological guidance on how telco data can be used in public health emergencies in a responsible, anonymized format that does not risk de-identification.
  • The Covid-19 Mobility Data Network, of which we are part, comprises a voluntary collaboration of epidemiologists from around the world analyzes aggregated data from technology companies to provide daily insights to city and state officials from California to Dhaka, Bangladesh.
Ben Snaith

A crystal ball for the NHS - Palantir, a data firm loved by spooks, teams up with Brita... - 0 views

  • Now, as the covid-19 pandemic rages, several independent sources say that Palantir has started work with a new client: Britain’s National Health Service.
Ben Snaith

Mobile phone data for informing public health actions across the COVID-19 pandemic life... - 0 views

  • Decision-making and evaluation or such interventions during all stages of the pandemic life cycle require specific, reliable, and timely data not only about infections but also about human behavior, especially mobility and physical copresence. We argue that mobile phone data, when used properly and carefully, represents a critical arsenal of tools for supporting public health actions across early-, middle-, and late-stage phases of the COVID-19 pandemic.
  • Seminal work on human mobility has shown that aggregate and (pseudo-)anonymized mobile phone data can assist the modeling of the geographical spread of epidemics (7–11).
  • Although ad hoc mechanisms leveraging mobile phone data can be effectively (but not easily) developed at the local or national level, regional or even global collaborations seem to be much more difficult given the number of actors, the range of interests and priorities, the variety of legislations concerned, and the need to protect civil liberties. The global scale and spread of the COVID-19 pandemic highlight the need for a more harmonized or coordinated approach.
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  • Government and public health authorities broadly raise questions in at least four critical areas of inquiries for which the use of mobile phone data is relevant. First, situational awareness questions seek to develop an understanding of the dynamic environment of the pandemic. Mobile phone data can provide access to previously unavailable population estimates and mobility information to enable stakeholders across sectors better understand COVID-19 trends and geographic distribution. Second, cause-and-effect questions seek to help identify the key mechanisms and consequences of implementing different measures to contain the spread of COVID-19. They aim to establish which variables make a difference for a problem and whether further issues might be caused. Third, predictive analysis seeks to identify the likelihood of future outcomes and could, for example, leverage real-time population counts and mobility data to enable predictive capabilities and allow stakeholders to assess future risks, needs, and opportunities. Finally, impact assessments aim to determine which, whether, and how various interventions affect the spread of COVID-19 and require data to identify the obstacles hampering the achievement of certain objectives or the success of particular interventions.
  • During the acceleration phase, when community transmission reaches exponential levels, the focus is on interventions for containment, which typically involve social contact and mobility restrictions. At this stage, aggregated mobile phone data are valuable to assess the efficacy of implemented policies through the monitoring of mobility between and within affected municipalities. Mobility information also contributes to the building of more accurate epidemiological models that can explain and anticipate the spread of the disease, as shown for H1N1 flu outbreaks (29). These models, in turn, can inform the mobilization of resources (e.g., respirators and intensive care units).
  • Continued situational monitoring will be important as the COVID-19 pandemic is expected to come in waves (4, 31). Near real-time data on mobility and hotspots will be important to understand how lifting and reestablishing various measures translate into behavior, especially to find the optimal combination of measures at the right time (e.g., general mobility restrictions, school closures, and banning of large gatherings), and to balance these restrictions with aspects of economic vitality.
  • After the pandemic has subsided, mobile data will be helpful for post hoc analysis of the impact of different interventions on the progression of the disease and cost-benefit analysis of mobility restrictions. During this phase, digital contact-tracing technologies might be deployed, such as the Korean smartphone app Corona 100m (32) and the Singaporean smartphone app TraceTogether (33), that aim at minimizing the spread of a disease as mobility restrictions are lifted.
  • Origin-destination (OD) matrices are especially useful in the first epidemiological phases, where the focus is to assess the mobility of the population. The number of people moving between two different areas daily can be computed from the mobile network data, and it can be considered a proxy of human mobility.
  • Amount of time spent at home, at work, or other locations are estimates of the individual percentage of time spent at home/work/other locations (e.g., public parks, malls, and shops), which can be useful to assess the local compliance with countermeasures adopted by governments. The home and work locations need to be computed in a period of time before the deployment of mobility restrictions measures.
  • The use of mobile phone data for tackling the COVID-19 pandemic has gained attention but remains relatively scarce.
  • First, governments and public authorities frequently are unaware and/or lack a “digital mindset” and capacity needed for both for processing information that often is complex and requires multidisciplinary expertise (e.g., mixing location and health data and specialized modeling) and for establishing the necessary interdisciplinary teams and collaborations. Many government units are understaffed and sometimes also lack technological equipment.
  • Second, despite substantial efforts, access to data remains a challenge. Most companies, including mobile network operators, tend to be very reluctant to make data available—even aggregated and anonymized—to researchers and/or governments. Apart from data protection issues, such data are also seen and used as commercial assets, thus limiting the potential use for humanitarian goals if there are no sustainable models to support operational systems. One should also be aware that not all mobile network operators in the world are equal in terms of data maturity. Some are actively sharing data as a business, while others have hardly started to collect and use data.
  • Third, the use of mobile phone data raises legitimate public concerns about privacy, data protection, and civil liberties.
  • Control of the pandemic requires control of people—including their mobility and other behaviors. A key concern is that the pandemic is used to create and legitimize surveillance tools used by government and technology companies that are likely to persist beyond the emergency. Such tools and enhanced access to data may be used for purposes such as law enforcement by the government or hypertargeting by the private sector. Such an increase in government and industry power and the absence of checks and balance is harmful in any democratic state. The consequences may be even more devastating in less democratic states that routinely target and oppress minorities, vulnerable groups, and other populations of concern.
  • Fourth, researchers and technologists frequently fail to articulate their findings in clear, actionable terms that respond to practical political and technical questions. Researchers and domain experts tend to define the scope and direction of analytical problems from their perspective and not necessarily from the perspective of governments’ needs. Critical decisions have to be taken, while key results are often published in scientific journals and in jargon that are not easily accessible to outsiders, including government workers and policy makers.
  • Last, there is little political will and resources invested to support preparedness for immediate and rapid action. On country levels, there are too few latent and standing mixed teams, composed of (i) representatives of governments and public authorities, (ii) mobile network operators and technology companies, and (iii) different topic experts (virologists, epidemiologists, and data analysts); and there are no procedures and protocols predefined. None of these challenges are insurmountable, but they require a clear call for action.
  • To effectively build the best, most up-to-date, relevant, and actionable knowledge, we call on governments, mobile network operators, and technology companies (e.g. Google, Facebook, and Apple), and researchers to form mixed teams.
  • For later stages of the pandemic, and for the future, stakeholders should aim for a minimum level of “preparedness” for immediate and rapid action.
Ben Snaith

Britons want quality of life indicators to take priority over economy | Society | The G... - 0 views

  • A YouGov poll has found eight out of 10 people would prefer the government to prioritise health and wellbeing over economic growth during the coronavirus crisis, and six in 10 would still want the government to pursue health and wellbeing ahead of growth after the pandemic has subsided, though nearly a third would prioritise the economy instead at that point.
  • The focus on GDP means economic growth can take place at the expense of the environment, and people’s quality of life, without any of the resulting damages ever being taken into account, the report argues. That in turn encourages ministers and officials to seek ways of raising the GDP figures, even if rising nominal growth is accompanied by environmental degradation, worsening health, poor educational attainment and increasing poverty.
Ben Snaith

Data reveals coronavirus hotspots in Bradford, Barnsley and Rochdale | World news | The... - 0 views

  • Local public health officials and medics have complained that the government has not supplied sufficiently detailed information on local infections, the lack of which they say hampers attempts to quash new outbreaks.
  • Councils have been promised postcode-level data for weeks from Public Health England and the newly created Joint Biosecurity Centre. But some public health directors are concerned the centre has not been sharing data about potential clusters of infections with councils, which could enforce school or workplace closures that could suppress an outbreak at an early stage.
  • “If the only data you’re getting is ‘in this population of 90,000 people there are 40 positives’ it’s like looking for a needle in a haystack. If Leicester had got the data sooner they could have had a fighting chance of managing it,” said one public health director, who asked not to be named.
Ben Snaith

Access-Now-recommendations-on-Covid-and-data-protection-and-privacy.pdf - 0 views

shared by Ben Snaith on 23 Apr 20 - No Cached
  • International and national laws recognize that extraordinary circumstances require extraordinary measures. This means that certain fundamental rights, including the rights to privacy and data protection, may be restricted to address the current health crisis as long as basic democratic principles and a series of safeguards are applied, and the interference is lawful, limited in time, and not arbitrary.
  • Special legal orders and measures should be written and broadcast, and disseminated broadly in appropriate languages and forums. They must have a sunset clause; indefinite term measures are not acceptable. Potential extension could be considered if necessary, but extraordinary measures must be limited in their severity, duration, and geographic scope. Governments and authorities must take every measure to restore regular rules as soon as possible at the end of a special legal order.
  • The National Health Institute of​ Perú​ developed a platform where you can consult the health reports of patients who were tested for COVID-19 by entering their national identity document. For a few days, the information was therefore accessible to the public, not limited to the patient. After receiving criticism, the national 10 authorities included a second authenticator. To connect to the platform, an SMS-based code is now necessary. 11
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  • In ​India​, at least two state governments — including the state of Karnataka, housing the tech hub of Bangalore — have uploaded PDF files online with names, house addresses, and travel history of people ordered into COVID-19 quarantines. The 12 information is accessible by everyone.
  • In particular, the ongoing crisis highlights how much the public and public authorities are depending on tech companies to function: from providing broadband access, to allowing people to work from home, to providing video-conferencing solutions or tools that respond directly to the crisis, such as diagnosis apps.
  • In ​Tunisia​,​ ​Enova Robotics signed an agreement with the Ministry of Interior to start operating PGuard robots. These robots will be equipped with a set of infrared 39 cameras and used to stop people from leaving their houses. There is no information as to where these robots will be deployed, what information they will gather, how long they will keep the data and who would have access to it.
Ben Snaith

Virus Is Twice as Deadly for Black and Latino People Than Whites in N.Y.C. - The New Yo... - 0 views

  • The coronavirus is killing black and Latino people in New York City at twice the rate that it is killing white people
  • In New York City, Latinos represent 34 percent of the people who have died of the coronavirus but make up 29 percent of the city’s population, according to preliminary data from the city’s Health Department. Black people represent 28 percent of deaths but make up 22 percent of the population.
  • In Chicago, for example, black people account for 72 percent of virus-related fatalities, even though they make up a little less than a third of the population.
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  • Data from the Health Department shows that emergency room visits for flulike symptoms have surged in neighborhoods where the typical household income is less than the city’s median of $60,000, according to an analysis of data by The New York Times.
  • “We are watching, in real time, racial disparities and the pandemic of poverty,” said Michael Blake, an assemblyman from the Bronx whose district overlaps with one of the poorest congressional districts in the country.
Ben Snaith

About this Project | COVID-19 County Social Distancing Reporter - 0 views

  • In achieving these goals, we started by applying our experience at Camber and the experience of the epidemiological teams, and taking into account the differences between aggregated human movements that are predictable and movements that are not, notably socialization. Presenting both radius of gyration and entropy gives a more complete picture of socialization patterns within a county. For example, a high RoG and low entropy could indicate a population that needs to travel far to go to work or the grocery store, but are otherwise staying home; a low RoG and high entropy could indicate a more dense area where people are staying near home but are still moving in their neighborhood. Both are important signals needing different interventions.*
    • Ben Snaith
       
      yo @fionntan this seems helpful, I just don't really get it
  • In collaboration with epidemiologists within the COVID-19 Mobility Data Network including the Harvard School of Public Health, Direct Relief, Princeton, and many others, we built this dashboard as an enhanced offering to public health officials that builds further on others’ early work product. This effort provides a more accurate and actionable understanding of the effectiveness of social distancing and other policy interventions aimed at reducing or slowing the spread of COVID-19.
  • In developing this dashboard, we began with several goals. First, we worked with public-health researchers to understand what they needed and provide them with the most-important data and metrics. Second, we worked with experts to ensure that we used privacy-forward practices in developing these metrics. Finally, we aim to iterate based on new information and feedback from the public and researchers to continue to aid the fight against COVID-19.
Ben Snaith

Code red - To curb covid-19, China is using its high-tech surveillance tools | China | ... - 0 views

  • The red colour of the QR code on Ms Sun’s “Hangzhou Health Code” app indicated that she was supposed to be undergoing 14 days of self-quarantine. Had the code been yellow, it would have meant she was a lower risk and had to isolate herself for seven days. For free passage around the city, people must produce their phones at checkpoints and show they have a green QR code. Pictured is another method of keeping tabs on people: drivers have to scan the code held up by a drone to register for entry into the city, in this case Shenzhen.
  • But those efforts involve only a single province. Creating such systems is far harder when it entails data-sharing between provinces, or between provincial and central authorities. Co-operation is undermined by competition for favour in Beijing. The boss of a foreign artificial-intelligence developer in China says that fusing datasets within a single firm is often quick, but not if it involves co-operation between different institutions. “The person in charge is unwilling to take the risk,” he says, and usually reckons that doing nothing is safer than sharing.
Ben Snaith

'More scary than coronavirus': South Korea's health alerts expose private lives | World... - 0 views

  • As South Korean media pored over their movements, citizens looked on with a mixture of horror and fascination as their private lives were laid bare, leading to speculation that they were having an affair and that the secretary had undergone plastic surgery.
Ben Snaith

Air pollution linked to raised Covid-19 death risk - BBC News - 0 views

  • A US study suggests Covid-19 death rates rise by about 15% in areas with even a small increase in fine-particle pollution levels in the years before the pandemic."Patterns in Covid-19 death rates generally mimic patterns in both high population density and high [particulate matter] PM2.5 exposure areas," the Harvard University report says.
Ben Snaith

Reports to help combat COVID-19 - The Keyword - 0 views

  • For example, this information could help officials understand changes in essential trips that can shape recommendations on business hours or inform delivery service offerings.
  • Ultimately, understanding not only whether people are traveling, but also trends in destinations, can help officials design guidance to protect public health and essential needs of communities.
  • The Community Mobility Reports are powered by the same world-class anonymization technology that we use in our products every day. For these reports, we use differential privacy, which adds artificial noise to our datasets enabling high quality results without identifying any individual person. 
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  • The insights are created with aggregated, anonymized sets of data from users who have turned on the Location History setting, which is off by default.
Ben Snaith

European mobile operators share data for coronavirus fight - Reuters - 0 views

  • In Germany, where schools and restaurants are closing and people have been told to work at home if they can, the data donated by Deutsche Telekom offer insights into whether people are complying, health czar Lothar Wieler said.
  • In Italy, mobile carriers Telecom Italia, Vodafone and WindTre have offered authorities aggregated data to monitor people’s movements.
  • Movements exceeding 300-500 meters (yards) are down by around 60% since Feb. 21, when the first case was discovered in the Codogno area, the data show.
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  • A1 Telekom Austria Group, the country’s largest mobile phone company, is sharing results from a motion analysis application developed by Invenium, a spin-off from the Graz University of Technology that it has backed.
  • Invenium analyses how flows of people affect traffic congestion or how busy a tourist site will get, said co-founder Michael Cik, but its technology is equally applicable to assessing the effectiveness of measures to reduce social contact or movement that seek to contain an epidemic.
Ben Snaith

Greater Manchester STILL doesn't know how many people are testing positive for COVID-19... - 0 views

  • But one exasperated local source said the problem lay with the data itself, which they said cannot currently be broken down to local level and therefore cannot be usefully shared with councils.
  • The Department of Health and Social Care said it was 'actively working on a solution to share anonymised data with our stakeholders', with councils a top priority. It said it had been engaging with the Local Government Association on the issue.
  • It is understood Greater Manchester is now trying to persuade the government to merge the two testing systems together in a partnership, so that public health departments can get hold of all the relevant results.
Ben Snaith

Digital immunity passport 'the lesser of two evils,' says UK startup boss - POLITICO - 0 views

  • The idea behind so-called digital “passports” is that they would allow people who have recovered from the coronavirus to signal their immunity and thus move around freely, enabling economies to open up. But there are fears such a system, which is at a preliminary stage of discussion with the developer, could lead to discrimination, create perverse incentives to get infected, and violate privacy.
  • The scheme also relies on reliable antibody testing and enough kits for large-scale testing — neither of which exist, yet. Not to mention that health experts don’t know whether immunity to the coronavirus even exists and, if it does, how long it lasts. In late April, the World Health Organisation (WHO) warned against a passport scheme on the basis that “there is currently no evidence that people who have recovered from Covid-19 and have antibodies are protected from a second infection.”
  • Onfido’s technology would work by first verifying someone’s identity — by comparing a picture or video of their face against a picture of their identity card — and then linking that to a coronavirus test result. People would then be able to bring up a QR code on an app or a browser signalling their immunity status just by taking a picture of their face.
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  • As to privacy, Kassai says data in Onfido's system would be stored on “a private server for an individual,” that can only be accessed with the user's face. "No private business, no government should really be, there's no need for them to hold your personal data. You as a consumer should," he says.
Ben Snaith

How to revive the world economy - A recession is unlikely but not impossible | Finance ... - 0 views

  • One way the virus hurts the economy is by disrupting the supply of labour, goods and services. People fall ill. Schools close, forcing parents to stay at home. Quarantines might force workplaces to shut entirely. This is accompanied by sizeable demand effects. Some are unavoidable: sick people go out less and buy fewer goods. Public-health measures, too, restrict economic activity. Putting more money into consumers’ hands will do little to offset this drag, unlike your garden-variety downturn. Activity will resume only once the outbreak runs its course.
Ben Snaith

How Many Americans Really Have the Coronavirus? - The Atlantic - 0 views

  • Everyone is cooking the data, one way or another. And yet, even though these inconsistencies are public and plain, people continue to rely on charts showing different numbers, with no indication that they are not all produced with the same rigor or vigor. This is bad.
  • The other problem is, now that the U.S. appears to be ramping up testing, the number of cases will grow quickly. Public-health officials are currently cautioning people not to worry as that happens, but it will be hard to disambiguate what proportion of the ballooning number of cases is the result of more testing and what proportion is from the actual spread of the virus.
  • People trust data. Numbers seem real. Charts have charismatic power. People believe what can be quantified. But data do not always accurately reflect the state of the world. Or as one scholar put it in a book title: “Raw Data” Is an Oxymoron.
Ben Snaith

Iran Launched an App That Claimed to Diagnose Coronavirus. Instead, It Collected Locati... - 0 views

  • The government has already boasted that millions of citizens have shared this information with them at a time when most Iranians are completely in the dark about the threat from coronavirus. The government is being accused of covering up the real infection and death rates with experts claiming the real figures are exponentially higher. With confusion and fear gripping many parts of Iran, this app is looking to take advantage of that to boost Tehran's surveillance capabilities.
  • It is impossible to say how many of Iran’s citizens have downloaded the app, but according to this tweet from the ICT minister MJ Azari Jahromi, at least 3.5 million people have now shared their precise location and intimate details with the government.
  • “The regime’s attitude is evident during the coronavirus crisis,” Gobadi said. “Instead of being transparent and alerting the public regarding the real scope of the crisis, the regime has resorted to a massive campaign of deception and concealment particularly as it pertains to the number of victims and fatalities.”
Ben Snaith

Yuval Noah Harari: the world after coronavirus | Free to read | Financial Times - 0 views

  • Yet if we are not careful, the epidemic might nevertheless mark an important watershed in the history of surveillance. Not only because it might normalise the deployment of mass surveillance tools in countries that have so far rejected them, but even more so because it signifies a dramatic transition from “over the skin” to “under the skin” surveillance. 
  • A self-motivated and well-informed population is usually far more powerful and effective than a policed, ignorant population. 
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