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Lisa Levinson

Salvatore Iaconesi: What happened when I open-sourced my brain cancer | TED Talk | TED.com - 0 views

www.ted.com/...i_open_sourced_my_brain_cancer

womenslearningstudio WLStudio technology learning TEDIdeas brain cancer open_source healing global_online_community

shared by Lisa Levinson on 19 Jul 15 - No Cached
  • Lisa Levinson on 19 Jul 15
     
    Amazing TED talk by an Italian artist who created a global community to help him cure his brain cancer. He created a web site, La Cura (the cure) and posted his brain scans online, inviting anyone to help him heal as a whole person. His site went viral and he received over 500,000 contacts. Through his site, he formed his team of neurosurgeons, oncologists, and several thousand people who were there for his cure as a person, not just for his cancer. He offers his open source model as one for anyone to do, for as he says, it is not just healing for himself, but healing for all of us that matters.
Doris Reeves-Lipscomb

Doctors Plan Database On Cancer Drugs, Showing Effectiveness And Cost : NPR - 0 views

www.npr.org/...showing-effectiveness-and-cost

networks doctors database cancer drugs womenslearningstudio

shared by Doris Reeves-Lipscomb on 24 Jul 15 - No Cached
  • Doris Reeves-Lipscomb on 24 Jul 15
     
    importance of networks of practitioners to band together to improve access to and quality of drugs for cancer patients.
Doris Reeves-Lipscomb

Docs Often Use Social Media on the Job: Survey - US News - 0 views

health.usnews.com/...social-media-on-the-job-survey

physicians social media Twitter womenslearningstudio

shared by Doris Reeves-Lipscomb on 26 Mar 14 - No Cached
  • Doris Reeves-Lipscomb on 26 Mar 14
     
    Article in U.S. News & World Report on physicians using social media, January 1, 2013. About one in four U.S. doctors uses social media daily to scan or explore medical information, according to a new study. The survey of nearly 500 cancer specialists (oncologists) and primary-care doctors also found that 14 percent contribute new information via social media each day, said the researchers at the Johns Hopkins Kimmel Cancer Center in Baltimore. Sixty-one percent of the doctors said they use social media once a week or more to look for information, and 46 percent said they contribute new information once a week or more, according to the study, which appeared recently in the Journal of Medical Internet Research. More than half of the respondents said they use only physician-only communities and only 7 percent said they use Twitter.
Doris Reeves-Lipscomb

How curation cures cancer | Scoop.it Blog - 0 views

blog.scoop.it/...how-curation-cures-cancer

curation blog Smith health

shared by Doris Reeves-Lipscomb on 04 Jun 13 - No Cached
  • Doris Reeves-Lipscomb on 04 Jun 13
     
    Blog by Marty Smith on May 29, 2013 on Scoop.it on how social media is leading to a sharing and curation of health care information with huge positive implications for speeding up research, improving health care delivery, informing patients, etc.
Doris Reeves-Lipscomb

When Big Data Marketing Becomes Stalking - Scientific American - 0 views

www.scientificamerican.com/...ata-marketing-becomes-stalking

big_data privacy Scientific_American Crawford womenslearningstudio

shared by Doris Reeves-Lipscomb on 28 Jul 15 - No Cached
  • but we do know that third-party data brokers sell all manner of information to businesses, including “police officers’ home addresses, rape sufferers, and genetic disease sufferers” as well as suspected alcoholics and cancer and HIV/AIDS patients.
  • The first is that almost everything is personal. In the words of computer scientists Arvind Narayanan (Princeton
  • this model simply doesn’t reflect the reality of the deeply unequal situation we now face. Those who wield the tools of data tracking and analytics have far more power than those who don’t.
  • ...2 more annotations...
  • narrow focus on individual responsibility is not enough. The scale of the problem far exceeds the individual: it is systemic. We are now faced with large-scale experiments on city streets where people are in a state of forced participation, without any real ability to negotiate the terms, and often without the knowledge their data is being collected.
  • We need a sweeping debate about ethics, boundaries and regulation for location data technologies.
  • Doris Reeves-Lipscomb on 28 Jul 15
     
    Great article on inability of big data marketing brokers failing to regulate themselves by Kate Crawford, January 28, 2014. Individuals can do little to protect themselves or opt-out.
Doris Reeves-Lipscomb

Living by the Numbers: A Tyranny of Data? - SPIEGEL ONLINE - 0 views

www.spiegel.de/...nto-the-future-a-899964-7.html

tyranny data spiegel online womenslearningstudio

shared by Doris Reeves-Lipscomb on 28 Jul 15 - No Cached
  • So far, many companies have tried to dispel such fears by noting that the data they gather, store and analyze remains "anonymous." But that, as it turns out, is not entirely accurate, in that it sells the power of data analysis radically short. Take the analysis of anonymous movement profiles, for example. According to a current study by the online journal Scientific Reports, our mobility patterns are so different that that they can be used to "uniquely identify 95 percent of the individuals." The more data is in circulation and available for analysis, the more likely it is that anonymity becomes "algorithmically impossible," says Princeton computer scientist Arvind Narayanan. In his blog, Narayanan writes that only 33 bits of information are sufficient to identify a person.
  • A study by New York advertising agency Ogilvy One concludes that 75 percent of respondents don't want companies to store their personal data, while almost 90 percent were opposed to companies tracking their surfing behavior on the Internet.
  • Is it truly desirable for cultural assets like TV series or music albums to be tailored to our predicted tastes by means of data-driven analyses? What happens to creativity, intuition and the element of surprise in this totally calculated world?
  • ...2 more annotations...
  • But for a modern society, an even more pressing question is whether it wishes to accept everything that becomes possible in a data-driven economy. Do we want to live in a world in which algorithms predict how well a child will do in school, how suitable he or she is for a specific job -- or whether that person is at risk of becoming a criminal or developing cancer?
  • Users, of course, "voluntarily" relinquish their data step by step, just as we voluntarily and sometimes revealingly post private photos on Facebook or air our political views through Twitter. Everyone is ultimately a supplier of this large, new data resource, even in the analog world, where we use loyalty cards, earn miles and rent cars.
  • Doris Reeves-Lipscomb on 28 Jul 15
     
    #7 in a series on big data by Martin Muller, Marcel Rosenback and Thomas Schulz
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