NOVA Online | Cracking the Code of Life | Watch the Program - 7 views
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Madeline Brownstone on 15 Feb 11Please use this bookmark to post your reflections. Using a Paper 2 style approach, CRITERION A) identify the IT system and describe the issues. Identify the relationship of the major stakeholders to the issues. CRITERION B) Describe step-by-step how the system works and describe how the system is related to the issue(s). CRITERION C) Evaluate the impacts on society -- both positive and negative or from differing stakeholder's P.O.V. CRITERION D) Evaluate the efficacy of a solution to the problem.
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Noreen C on 26 Feb 11There is another issue along with this involving the ability of researchers to have full access to the information about anyone. Many people want to maintain their right to privacy, but others argue that this could lead to new knowledge about diseases, and the development of new medicines. For those who are afraid of risking their privacy, there are standards developed in order to protect them. Their information, such as SSNs are encoded for security reasons and the DNA part of the project is voluntary, and not imposed. However, ethicists are still afraid of this database. They claim that the future of DNA is a valuable thing because it can predict the probability of diseases, life expectancies, etc. But all copies can be made available to the FBI, schools, etc. at the time of birth. For the Biotech Industry, this is seen as a huge advantage because people an be tested for hundreds of diseases. The awareness of the disease is a great thing, because it could lead to early prevention. However, the system is faulty because it sometimes doesn't provide certainty of a disease and it limits a person's privacy. Other times, there is no cure for the disease, so the patient cannot do anything even if they know. In relation to this, there also will arise severe psychological impacts of a person knowing that they have the possibility for getting a life threatening disease. If this is a disease that will affect them later on in life, it would be detrimental for a person to live their life without the hope of a prosperous future. A solution to this problem could be giving patients the choice of knowing or not.
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Joel Lubi on 27 Feb 11Criterion A - The IT system is the DNA database containing information about the genetic past, present, and future of the patients. The primary issues associated with this database are of privacy and anonymity. These issues arise when patients, who are one of the major stakeholders, feel that that the information in these databases shouldn't be accessible to others, or anyone for that matter. While some believe this is private information, others believe that the information should not be known by anyone because of the ethical issues associated with knowing what will come in the future. Criterion B - The medical database is a relational database meaning that it establishes relationships between different tables in the database. The smallest building blocks of a relational database are items. Items are individual pieces of information in tables. These items are organized into fields and records. Fields are columns in a table that that represent different categories of information. Records are rows that represent all the information for a specific patient. At the cross-section of a particular record and field lies the item associated with a specific piece of information related to the specified patient. These tables are related to each other through links which are established by unique primary keys assigned to each patient. This system is related to the issue of privacy because the information contained within it is considered by many to be privileged and access to it should be very limited or altogether eliminated. Criterion C - The impacts of such a database on society are varied. Some people are very against the entire idea of a genetic database because of its ethical concerns. When people have their blood analyzed for DNA, they are giving up their genetic make-up. The information that can be obtained from such tests is considered by many to be privileged, and by others to be completely unethical in every way. Often people are against very private medical