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The Wellcome Trust Sanger Institute in the UK, a key player in the Human Genome Project, has often led the way in this area, and in the latest issue of Genome Medicine, Tim Hubbard and Stephanie Dyke from the Wellcome Trust Sanger Institute explain  how they developed and implemented the Institute's policy.

Over the last decade the digital age has seen an explosion in the rate of data creation. Estimates from 2009 suggest that over 100 GB of data has already been created for every single individual on the planet ranging from holiday snaps to health records-that's over 1 trillion CDs worth of data, equivalent to 24 tons of books per person!