Just to provide some background, our little Nicholas was born in 2010, a perfect little boy, 10 fingers, 10 toes, no health issues, and he slept for 12 hours a night almost from the start. A glorious, amazing, wonderful, funny little guy, which in spite of all of the challenges we have faced since his epilepsy and autism diagnosis, hasn't changed. He has endured so much poking and prodding, countless EEGs, MRIs, blood tests, biopsies and spinal taps, and always bounced back with a smile as if it was "normal."
As a parent, you would do anything to help your child, to make him better, to try to give him the best life possible. My wife gave up any thoughts of a career because our son needed 24-hour care during all of this.
We've tried seven "traditional" epilepsy medications, naturopathic medications and special diets. We've paid for a trip to SickKids Hospital in Toronto and therapists out of our own pocket, while we were on the two-year wait list for government support. And we've interviewed and hired several different applied behaviour analysis workers to assist in his development.