For About and By Caregivers. Caregiver Media Group is a leading provider of information, support and guidance for family and professional caregivers. Founded in 1995, we produce Today's Caregiver magazine, the first national magazine dedicated to caregivers, the "Fearless Caregiver Conferences", and our web site, caregiver.com which includes topic specific newsletters, online discussion lists, back issue articles of Today's Caregiver magazine, chat rooms and an online store. Caregiver Media Group and all of it's products are developed for caregivers, about caregivers and by caregivers
Provides research on caregivers to health care manufacturers, caregiver support organizations, financial services providers, and other organizations interested in learning from caregivers. Database of 25,000 family caregivers and a research panel of thousands of family caregivers nationwide, with whom it conducts strategically focused, results-driven market research.
The National Family Caregivers Association educates, supports, empowers and speaks up for the more than 65 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age. NFCA reaches across the boundaries of diagnoses, relationships and life stages to help transform family caregivers' lives by removing barriers to health and well being.
Family Caregiver Alliance was the first community-based nonprofit organization in the country to address the needs of families and friends providing long-term care at home. Long recognized as a pioneer in health services, FCA now offers programs at national, state and local levels to support and sustain caregivers.\n
The National Caregivers Library is one of the most extensive libraries for caregivers that exist today. Find hundreds of articles, forms, checklists and links to topic specific external resources, organized into logical categories
PEDIATRICS - Official Journal of the American Academy of Pediatrics Article Abstract: The Health and Well-Being of Caregivers of children with Cerebral Palsy - 2005 Canadian study
Centers for Disease Control and Prevention CDC Families with Special Needs: Caregiving Tips - General caregiving tips and links to information on specific health topics to help you and those you care for stay safe and healthy.
Study assessing the comparison of impact on mood, health, and daily living experiences of primary caregivers of walking and non-walking children with cerebral palsy and provided community services support.
2006 Study ssessing: "Sense of coherence and parenting stress in mothers and fathers of preschool children with developmental disability. RESULTS: Mothers and fathers of children with DD reported high levels of parenting stress, with 84% of mothers' and 67% of fathers' scores falling within the clinical range. Parents of children with DD consistently reported higher levels of parenting stress, weaker SOC, and, for mothers and parents in 2-parent families, poorer health than parents of children without DD. Within families, mothers of children with DD reported poorer health, higher levels of parenting stress, and weaker SOC than their partners. There were no significant differences in reported health, parenting stress, or SOC between parents of children without DD.
CONCLUSION of 2007 study:: According to Antonovsky's concept, the SOC level is established in adulthood and it is relatively stable. These results showed that taking care of a child with CP is a potential source of chronic burden, which may cause a SOC level weakness.
PubMed Abstract of N. Ireland Study, School of Nursing, assessign the impact on mothers of bringing up a child with intellectual disabilities: a cross-cultural study
Lab Tests Online has been designed to help you, as a patient or family caregiver, to better understand the many clinical lab tests that are part of routine care as well as diagnosis and treatment of a broad range of conditions and diseases
2008 Pub Med Abstract assessing Stress in parents of children with cerebral palsy: what sources of stress are we talking about? Study to explore the relation between aspects of parental distress in the parenting role and the child's limitations in functional skills and the child's behavioural difficulties, in parents of children with CP.
Study Abstract: Based on a qualitative research project guided by grounded theory methodology, this article describes parents' participation in home therapy programs recommended by physical and occupational therapists. The study involved in-depth interviews with 8 parents and 4 therapists of children with cerebral palsy. The parents reported that in the initial stages of adjustment to the diagnosis, they were typically overwhelmed by their situation and unable to participate in providing activities at home for their child
The California Evidence-Based Clearninghouse for child welfare - Screening and Assessment Tools for child welfare - Parenting Stress Index (PSI) and Parenting Stress Index-Short Form