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Régis Barondeau

The risks and rewards of a health data commons - O'Reilly Radar - 1 views

  • It’s pretty hard to do anything beyond a gift. It’s more like organ donation, where you don’t get to decide where the organs go. What I’m working on is basically a donation, not a conditional gift.
  • people’s attitudes toward risk and benefit change depending on their circumstances. Their own context really affects what they think is risky and what they think isn’t risky.
  • I believe that the early data donors are likely to be people for whom there isn’t a lot of risk perceived because the health system already knows that they’re sick. The health system is already denying them coverage, denying their requests for PET scans, denying their requests for access to care. That’s based on actuarial tables, not on their personal data. It’s based on their medical history.
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  • We would like to see exactly how effective big computational approaches are on health data. The problem is that there are two ways to get there. One is through a set of monopoly companies coming together and working together. That’s how semiconductors work. The other is through an open network approach. There’s not a lot of evidence that things besides these two approaches work. Government intervention is probably not going to work.
nicola poletti

Giving A Kick-Ass Presentation In The Age Of Social Media | Fast Company - 2 views

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    All of the people we spoke to for this piece are very effective speakers, and though each has their own distinctive style, there are a few other commonalities I'd like to point out. First, none of them depend on word-laden PowerPoint presentations. Second, most are good storytellers and use humor, often self-deprecating, to connect with their audiences. Finally, each of them manages to keep their presentations short enough to allow time for a healthy Q&A.
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