The Center on the Social and Emotional Foundations for Early Learning (CSEFEL) has published a new Family Tool to help family members and caregivers understand what self-help skills can be expected from young children and to provide tips for helping
children learn how to become more independent with daily routines. It is available online.
2008 Pub Med Abstract assessing Stress in parents of children with cerebral palsy: what sources of stress are we talking about? Study to explore the relation between aspects of parental distress in the parenting role and the child's limitations in functional skills and the child's behavioural difficulties, in parents of children with CP.
PubMed Abstract 2006 study, Boston college, MA, examines the contribution of the marital relationship to the well being of both mothers and fathers of children with developmental disabilities.
PubMed Abstract of Arizona Study assessing Resilience and the course of daily parenting stress in families of young children with intellectual disabilities
PubMed Abstract of Arizona State University Sutdy: Mothers and Fathers Together: Contrast in Parenting Across Preschool to EarlySchool Age in Children with Developmental Disabilities
PEDIATRICS - Official Journal of the American Academy of Pediatrics Article Abstract: The Health and Well-Being of Caregivers of children with Cerebral Palsy - 2005 Canadian study
PubMed Abstract of N. Ireland Study, School of Nursing, assessign the impact on mothers of bringing up a child with intellectual disabilities: a cross-cultural study
PubMed Abstract of study by Pediatric Clinic, Mersin University School of Medicine Research and Administration Hospital, Turkey - Difficulties experienced by families with disabled children
CODI -Directories - has the membership list of the President's Committee on Employment of People with Disabilities, two RCEP II directories (CAPs and ILCs) and a national list of support organizations compiled by the IBM Special Needs Information Referral Center.
eap.partners.org - Special Needs Children: Working with Professionals - Content provided courtesy of the National Dissemination Center for Children with Disabilities (NICHCY).
For more information or to discuss parenting concerns please contact Partners Employee Assistance Program at 1-866-724-4EAP
PubMed Abstract of 2010 published study assessing the factors associated with bone density in different skeletal regions in children with cerebral palsy of various motor severities.
PubMed Abstract: Negotiating lay and professional roles in the care of children with complex health care needs. AIMS OF THE PAPER: To assess how the transfer of responsibility from professionals to parents was negotiated, the tensions and contradictions that can ensue, and the implications for professional nursing roles and relationships with parents.