The Technical Assistance ALLIANCE for Parent Centers (the ALLIANCE) is an innovative partnership of one national and six regional parent technical assistance centers, each funded by the U.S. Department of Education's Office of Special Education Programs (OSEP). These seven projects comprise a unified technical assistance system for the purpose of developing, assisting, and coordinating the over 100 Parent Training and Information Centers (PTIs) and Community Parent Resource Centers (CPRCs) under the Individuals with Disabilities Education Act. The national and regional parent technical assistance centers work to strengthen the connections to the larger OSEP Technical Assistance and Dissemination Network and fortify partnerships between Parent Centers and education systems at local, state, and national levels.
2006 Study ssessing: "Sense of coherence and parenting stress in mothers and fathers of preschool children with developmental disability. RESULTS: Mothers and fathers of children with DD reported high levels of parenting stress, with 84% of mothers' and 67% of fathers' scores falling within the clinical range. Parents of children with DD consistently reported higher levels of parenting stress, weaker SOC, and, for mothers and Parents in 2-parent families, poorer health than Parents of children without DD. Within families, mothers of children with DD reported poorer health, higher levels of parenting stress, and weaker SOC than their partners. There were no significant differences in reported health, parenting stress, or SOC between Parents of children without DD.
Provides the information and tools parents need to understand the uniqueness of children and to enable them to help each child develop into the successful human being they were meant to be. Our mission is to help parents develop a positive parenting style that leads to a family where parents and children can listen to each other, support each other and have fun playing and enjoying family activities.
2008 Pub Med Abstract assessing Stress in parents of children with cerebral palsy: what sources of stress are we talking about? Study to explore the relation between aspects of parental distress in the parenting role and the child's limitations in functional skills and the child's behavioural difficulties, in parents of children with CP.
The California Evidence-Based Clearninghouse for child welfare - Screening and Assessment Tools for child welfare - Parenting Stress Index (PSI) and Parenting Stress Index-Short Form
LD Online - Parenting & Family - Top articles - Response to Invervention - Communicating with your child's School through letter writing - Life Success for Students with Learning Disabilities: A Parent's Guide - Questions & Answers - and more
Study Abstract: Based on a qualitative research project guided by grounded theory methodology, this article describes parents' participation in home therapy programs recommended by physical and occupational therapists. The study involved in-depth interviews with 8 parents and 4 therapists of children with cerebral palsy. The parents reported that in the initial stages of adjustment to the diagnosis, they were typically overwhelmed by their situation and unable to participate in providing activities at home for their child
PubMed Abstract of Arizona Study assessing Resilience and the course of daily parenting stress in families of young children with intellectual disabilities
The Federation is a center for parents and parent organizations to work together on behalf of children with special needs and their families. A coalition of parent groups representing children with a variety of disabilities, the Federation operates a Parent Center in Massachusetts which offers a variety of services to parents, parent groups, and others who are concerned with children with special needs.
Most children have a preconceived notion that every day of summer should be exciting and adventurous. Children with special needs are no exception. As parents, we feel an obligation to provide our children with memorable summer breaks, without breaking the bank! Determining how to manage that day-to-day challenge can be exhausting for parents of a special needs child, especially when you factor in possible accessibility issues that may arise for children in wheelchairs or with mobility challenges.
American Academy of Pediatrics - Parenting Corner Q&A: Transporting Children with Special Needs - General guidelines for transportating a child with special needs
PubMed Abstract: Negotiating lay and professional roles in the care of children with complex health care needs. AIMS OF THE PAPER: To assess how the transfer of responsibility from professionals to parents was negotiated, the tensions and contradictions that can ensue, and the implications for professional nursing roles and relationships with parents.
NACD provides neurodevelopmental evaluations and individualized programs for children and adults, updated on a quarterly basis. As a family-centered organization. Stresses parent training and parent implementation of the program. Eclectic organization, gathering and utilizing the newest strategies that yield success and incorporating them into programs custom-designed for each client. Support provided to families through video reviews, e-mail and telephone sessions. Chapters can be found across the United States.
TheraSuit is the most recent and sophisticated design yet, but does not require lengthy training or special skills. TheraSuit was created to be used by therapists and parents alike, both during therapy time and out of the clinical setting. TheraSuit is the only one of these kind of devices in United States registered with FDA and meeting all requirements and regulations. Currently there is more than 161 clinics around world: North America, South America, Europe, Asia and Middle East successfully using TheraSuit. There is more than 2,000 trained therapists using TheraSuit Method (Suit Therapy) in their clinics and hundreds of trained parents using TheraSuit with their children at home on the daily basis.
Parenting tips for Special Needs at Early Intervention Support.com - This website is a place for families who are facing challenges pertaining to their child's development and growth. It is a place to find answers and practical suggestions.