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The HRSA Maternal and Child Health Bureau improves the health of mothers, children and their families. Authorized under Title V of the Social Security Act, HRSA maternal and child health programs - Assure access to quality care, especially for those with low-incomes or limited availability of care. Reduce infant mortality. Provide and ensure access to comprehensive prenatal and postnatal care, especially for low-income and at-risk women. Increase the number of children receiving health assessments and follow-up diagnostic and treatment services. Provide and ensure access to preventive and child care services, as well as rehabilitative services for certain children. Implement family-centered, community-based systems of coordinated care for children with special healthcare needs. Provide assistance in applying for services to pregnant women with infants and children who are eligible for Medicaid.

PEDIATRICS - Official Journal of the American Academy of Pediatris - Vol. 113, No. 2, 2004. Study assessing Constraint-Induced Movement therapy. Constraint-Induced Movement (CI) therapy has been found to be a promising treatment for substantially increasing the use of extremities affected by such neurologic injuries as stroke and traumatic brain injury in adults. The purpose of this study was to determine the applicability of this intervention to young children with cerebral palsy. Study concluded that Pediatric Constraint Induced Therapy produced major and sustained improvement in motoric function in the young children with hemiparesis in the study.

American Academy of Pediatrics - Parenting Corner Q&A: Transporting Children with Special Needs - General guidelines for transportating a child with special needs

National Disability Rights Network - Protection & Advocacy for Individuals with Disabilities - The National Disability Rights Network (NDRN) has a vision of a society where people with disabilities have equality of opportunity and are able to participate fully in community life by exercising choice and self determination. MISSION NDRN's mission is to promote the integrity and capacity of the P&A and CAP national network and to advocate for the enactment and vigorous enforcement of laws protecting civil and human rights of people with disabilities.

eap.partners.org - Special Needs Children: Working with Professionals - Content provided courtesy of the National Dissemination Center for Children with Disabilities (NICHCY). For more information or to discuss parenting concerns please contact Partners Employee Assistance Program at 1-866-724-4EAP

The Administration for Children and Families (ACF), within the Department of Health and Human Services (HHS) is responsible for federal programs that promote the economic and social well-being of families, children, individuals, and communities. ACF programs aim to achieve the following: *families and individuals empowered to increase their own economic independence and productivity; *strong, healthy, supportive communities that have a positive impact on the quality of life and the development of children; *partnerships with individuals, front-line service providers, communities, American Indian tribes, Native communities, states, and Congress that enable solutions which transcend traditional agency boundaries; *services planned, reformed, and integrated to improve needed access;*and a strong commitment to working with people with developmental disabilities, refugees, and migrants to address their needs, strengths, and abilities.

Helps seriously ill children and their families cope with their pain, fear and isolation through entertainment, education and family activities. Dedicated to improving the quality of life for children with chronic and life-threatening illnesses and life-altering injuries by providing entertainment, education and family activities that help them cope with the pain, fear and isolation of prolonged illness.

Here, young people with disabilities and illnesses connect with all kinds of possibilities that address their needs as curious, growing citizens of the planet. They meet and chat with other people like them in a virtual world that transcends boundaries and barriers. They make friends, get tips from mentors, and freely participate in an atmosphere of collaboration, companionship and support.

Only organization dedicated to providing families with the latest medical information, aggressively funding the most promising research, offering meaningful support, and raising public awareness and advocating for those living with the neurological disorder called Rett syndrome.Funds research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services

Increases access to assistive technology in North Dakota by engaging in activities that raise awareness, disseminate information, provide training and dssessments, work with policy makers, loan equipment for trial-use, and demonstrate assistive technology (AT) devices to individuals of all ages with disabilities and those experiencing the effects of aging throughout the state. IPAT increases AT acquisition by making available a used equipment bulletin board and an alternative financial loan program specific to the purchase of AT devices and services. Delivers servics to people with disabiilities can get the assistive technology they need for work, school and home.

Promotes polices and advances evidence-based practices that support families and enhance the optimal development of young children who have or are at risk for developmental delays and disabilities. One of seventeen divisions of the Council for Exceptional Children (CEC) - the largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted. DEC is especially for individuals who work with or on behalf of children with special needs, birth through age eight, and their families.

Completed study. Objective of this project was to develop and evaluate two different alternative or complementary medical modalities that have been used in children with cerebral palsy by practitioners in an attempt to decelerate the complications from the neurologic insult and resultant muscle imbalance.

Dr. Michelle Kuperminc of the University of Virginia is conducting a clinical study to determine what the best way is to measure Body Composition in children with Cerebral Palsy. Body composition is the amount of muscle, bone and fat in your body. There are several different ways we can measure body composition and would like to know which one is best for children with CP.

I am a twenty-eight-year-old woman with spastic Cerebral Palsy. This means that I have very tight muscles and heightened muscle tone, which makes walking difficult. As a result, I use a wheelchair to be mobile. By looking at me, the only way to tell there is something wrong is my wheelchair. Most who know me do not call attention to my physical limitations; they simply make accommodations to include me in whatever they may be doing at the time. I am a very smart and driven individual. If I were able to walk, there would be absolutely no difference in you or me.

Shriners Hospitals for Children study to evaluate the use of unilateral or bilateral VEPTR devices, with or without expansion thoracoplasty, for preventing further progression of the Cobb angle, allowing for spinal growth and improving pulmonary function in the treatment of children with progressive scoliosis without rib abnormalities

Adolescent Idiopathic Scoliosis (AIS) can change the respiratory dynamics and performance of the inspiratory and expiratory muscles, affecting ventilatory capacity. This was a randomized, controlled, open study to test the impact of a physiotherapeutic program of aerobic exercises on respiratory muscle strength, in patients with adolescent idiopathic scoliosis. Patients with AIS were randomly assigned to the aerobic exercise-training program group or the no treatment group. There was a significant increase in Pimax and Pemax in the group which received physiotherapy.

The American Association of People with Disabilities (AAPD), the country's largest cross-disability membership organization, organizes the disability community to be a powerful voice for change - politically, economically, and socially. AAPD was founded in 1995 to help unite the diverse community of people with disabilities, including their family, friends and supporters, and to be a national voice for change in implementing the goals of the Americans with Disabilities Act (ADA).

The Consortium for Citizens with Disabilities is a coalition of approximately 100 national disability organizations working together to advocate for national public policy that ensures the self determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.

Life Without Limits is a national movement to empower people with disabilities to envision and build a better future for themselves, their community, and society. A platform to promote projects that advance the health and well-being of people with disabilities, three initial projects underscore its key focus areas My Child Without Limits (early childhood intervention); Ruby's Bequest (care giving); and Emerging Technologies for Independent Living (housing & technology) United Cerebral Palsy (UCP), a pivotal advocate for people with all disabilities, is leading the Life Without Limits initiative in cooperation with former Congressman, and lifelong advocate for people with disabilities, Tony Coelho ."

PubMed.gov Abstract - 2008 Case Western Reserve University- Dept of Pediatrics study on trends in the rates of cerebral palsy associated with neonatal intensive care of preterm children, neonatal morbidity and rates of cerebral palsy associated low birth weight and low gestation infants.