Miami Children's Brain Institute at Miami Children's Hospital the nation's first comprehensive medical program dedicated solely to pediatric neurosciences - Miami Children's Brain Institute will expand its status as the world leader in pediatric neurosciences, collaborating with other institutions in the community and providing a full spectrum of care and subspecialty excellence to children with neurological disorders
Health Science: AAC- SGD - Providing communication for persons with severe speech disorders - Augmentative Communication - funding & Insurance - Accessories - Software - Literacy and Learning - alternative access
National Institute of Arthritis and Musculoskeletal and Skin Disease NIAMS - The mission of the National Institute of Arthritis and Musculoskeletal and Skin Diseases is to support research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases; the training of basic and clinical scientists to carry out this research; and the dissemination of information on research progress in these diseases.
The Friedreich's Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to curing Friedrech's ataxia (FA) through research. FARA grants and activities provide support for basic and translational FA research, pharmaceutical/ biotech drug development, clinical trials, and scientific conferences. FARA also serves as a catalyst, between the public and scientific community, to create worldwide exchanges of information that drive medical advances.
The mission of the ASNR is to promote the medical and social wellbeing of persons with disabling neurological disorders, to advance training and research in the basic and clinical sciences that can lead to functional recovery of neurologically impaired persons, and to disseminate the knowledge of this research among professionals and the general public.
The Feldenkrais Method® has strong scientific roots. These intensive programs appeal to a large variety of people who are interested in improving their movement skills including people with neuromotor difficulties (i.e. Cerebral Palsy and strokes), chronic pain, injuries as well as musicians, actors, dancers, athletes and martial artists.
Dedicated to conquering more then 40 neuromuscular diseases that affect a million Americans. Nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. Provides comprehensive health care and support services, advocacy and education
Provides special utensils and products for children with feeding and oral motor disorders including the Johnson Therapeutic Textured Spoon, shallow bowls and utensils that provide oral-sensory stimulation with feeding
Theta-burst transcranial magnetic stimulation (TBS) is a type of repetitive transcranial magnetic stimulation (rTMS) method that reduces the excitability of a small region of brain for less than one hour. Since dystonia and spasticity may be associated with increased excitability of motor cortex, we expect that by reducing the excitability of motor cortex with TBS we will temporarily improve these symptoms and hopefully open avenues in the future for the use of TBS as a new, non-invasive therapeutic intervention to aid in physical therapy and symptom amelioration of dystonia and spasticity.
Stanford University sponsored study of trihexyphenidyl in children with upper extremity dystonia due to cerebral palsy. It is hypothesized that trihexyphenidyl in doses up to 0.75mg/kg/day would be well-tolerated and show significant changes on the Melbourne scale of upper extremity function.
Study to create a bio-repository of blood samples from patients and healthy subjects who are participating in NINDS motor learning studies. A variety of genes that may affect motor learning are being increasingly identified, and variations among these genes, referred to as polymorphisms, may help explain individual differences.
National Institutes of Halth Clinic Center study to: 1) characterize and compare lower extremity motor coordination in children with cerebral palsy (CP) across mobility levels and to children without CP; and 2) evaluate the effects of two home-based exercise programs on motor coordination, as well as other physical, functional and neurological outcomes in children with CP
University of California study compare two types of treatment of hydrocephalus: placement of a ventriculoperitoneal (VP) shunt versus an endoscopic third ventriculostomy (ETV). A second goal of this study will be to understand how the two different types of procedures, VP shunt versus ETV, affect brain blood flow and pressures.