Study will collect information on the different ways people control limb and body movements. This information will be used to develop a database on normal movements and adaptive movements of people who have diseases that affect the way they move. The database will serve as a tool to improve diagnosis and treatment of patients with movement-related problems.
NIH PubMed Abstract - Testing range of motion in cerebral palsy. Objective of study was to To propose a standardized test of joint range of motion in paediatric patients with cerebral palsy, based on the opinion of a cerebral palsy specialist group (physicians, physiotherapists and surgeons) and literature review. Study concluded that a standardized testing of lower-limb-joint range of motion will allow for better communication between clinicians and will facilitate the development of a database. Care should be taken in the interpretation of the joint range-of-motion test results and realized only after reliability analysis of the test, especially interobserver reliability. A further step would be to develop an outpatient booklet for cerebral palsy that shows growth and weight curves, joint range-of-motion curves and curves of the principal radiographic measurements during growth.
Provides research on caregivers to health care manufacturers, caregiver support organizations, financial services providers, and other organizations interested in learning from caregivers. Database of 25,000 family caregivers and a research panel of thousands of family caregivers nationwide, with whom it conducts strategically focused, results-driven market research.
Creates public databases, conducts research in computational biology, develops software tools for analyzing genome data, and disseminates biomedical information - all for the better understanding of molecular processes affecting human health and disease.
Provide support, current information, and understanding to those affected by the Arnold Chiari malformation and syringomyelia. Staffed by dedicated volunteers, the World Arnold Chiari Malformation Association (WACMA) is committed to providing heartfelt support, current information, and understanding to those affected by Arnold Chiari Malformations, Syringomyelia, and related conditions.site features our member recommended doctors listing, a variety of helpful articles, illustrations and general information about Chiari and related conditions, tips on dealing with symptoms, the largest database of archived information of any Chiari support group in the world, and more
Information technology company that develops and markets innovative hardware and software integrated into solutions to assist individuals with disabilities and special needs. Also offers many free unique services including:a personalized Product Search & Referral service to help you choose appropriate assistive technology solutions and locate product vendors. a quarterly Newsletter to keep abreast of assistive technology developments. Access to our AT Links Library, a comprehensive collection of links to the largest assistive technology catalogs, databases and vendor directories in North America.
Comprehensive database of evidence-based clinical practice guidelines and related documents. NGC is an initiative of the Agency for Healthcare Research and Quality (AHRQ), U.S. Department of Health and Human Services. NGC was originally created by AHRQ in partnership with the American Medical Association and the American Association of Health Plans (now America's Health Insurance Plans [AHIP]).
Study to promote research in the area of cerebral palsy by connecting researchers with persons with cerebral palsy through a secure, established database.
National Library of Medicine. This site offers clinical alert notices. Clinical alerts are provided to expedite the release of findings from the NIH-funded clinical trials where such release could significantly affect morbidity and mortality.
PubMed Abstract - Early surfactant administration with brief ventilation vs. selective surfctant and continued mechanical ventilation for preterm infants with or at risk for respiratory distress syndrome. Purpose of the purpose of this review was to compare outcomes between two strategies of surfactant administration in infants with RDS; prophylactic or early surfactant administration followed by prompt extubation, compared with later, selective use of surfactant followed by continued mechanical ventilation.
Disability related material guide. Disability Resources, inc. is a nonprofit 501(c)(3) organization established to promote and improve awareness, availability and accessibility of information that can help people with disabilities live, learn, love, work and play independently.